sometimes a batch of words comes tumbling into our world, fluttering onto the path we cross as if the petals from an apple blossom whose bloom has expired. the words come unannounced, and lay there waiting for us to notice. once we read them we can’t think of anything else. all day long, all our thoughts come round to them again and again.
so it was when a friend whose grief is without measure sent along these words the other morning:
I have been telling myself that I don’t know how to do this, that nothing has prepared me.
i’ve been thinking long and hard about those loads we’re tasked to carry. how every one of us, at some time or another, is bound to have one. a load so beyond measure, a load we never saw coming, it simply stumbles us, knocks us flat and gasping. and in the depth of our hollows — if we’re telling truth — we mouth those very words: “i don’t know how to do this. . . . nothing has prepared me.”
all we see is steep climbing ahead. a load we don’t know how to hold. and all we’ve got to bear it are our stubby shuffling feet, and a ribcage that holds the parts of us that breathe and pump the oxygen. our shoulders and our spine we fear will crumple under the weight of it.
and then there’s the beehive of a brain, where all the wiring and the worrying, where all the remembering and the grieving and the what-iffing and the if-onlying whirs in and out at every turn in every hour of the day.
the poet and collagist jan richardson put it like this in her “blessing for the dailiness of grief”:
It will take your breath away, how the grieving waits for you in the most ordinary moments.
It will wake with your waking.
It will sit itself down with you at the table, inhabiting the precise shape of the emptiness across from you.
It will walk down the street with you in the form of no hand reaching out to take yours. . . .
but here, maybe, is what we need to remember, to bear the load we’re sure will finally be the one we cannot budge or bear: our whole life long, we’ve been preparing. every hurt and insult hurled our way. the time in third grade when we cried because the kid one desk over made fun of our clunky shoes. but, next morning, we tied their laces into bows and we walked back in the classroom, and sat there all day long, learning how it is to become more than the stubby shoes that were not penny loafers. the time in high school, when someone in the hall pointed at us and said our face looked like someone smashed us flat against a wall. and it stung for weeks after, every time we stood before a mirror and turned this way and that to measure just how flat our irish face really was.
and then the big ones come: the time the doctor walked up to the knot of us coagulated in the hospital corridor, and simply said, “i’m sorry.” and we were left without air in our lungs, and with the sudden senseless knowing that the brightest light in our existence had just gone dark. forever.
or the night the clots kept coming. and at last the tiny, tiny arms and legs, the intricately blessed face i’ll never forget, as the baby i thought i was having was cupped in the palms of my bloody hands, the miscarriage that hurt the most.
the litany is plenty long. and we sometimes never notice just how much each ache is strengthening the fibers of the muscle group without a name, the one that holds us up — yes, wobbling at first; yes, stained with umpteen tears; yes, with sleepless sleepless night — but the one that, in the end, does not fail us.
we are stronger than we know. and, all along, we’ve been piling on the sinew, deepening the courage, deep breathing the determination, to look that unbearable load square in the eyes, to say, “climb on. i’ll carry you.”
just watch.
and then, at last, there comes this (jan richardson again, this time “blessing of breathing”):
That the first breath will come without fear. That the second breath will come without pain.
The third breath: that it will come without despair.
until at last . . .
When the tenth breath comes, may it be for us to breathe together, and the next, and the next,
until our breathing is as one, until our breathing is no more.
my dear and blessed friend, and all who bear loads they deem unbearable, you do know how to do this. deep in your marrow, you know. your whole life long you’ve been growing strong and stronger. you’ve got this, and you’ve got this. and if and when you stumble, we are here with our simple grace and our love that will not falter.
where did you find the strength you did not know was yours?
PS (note the all caps!): it’s the birthday sunday of one of the wise women of the chair, our very own lamcal, and i can’t gather up enough love in my bouquet to sufficiently surround her. she is beyond measure! happy blessed day, beautiful one. xoxox and happy mothering day who all who love in that way that knows no end….
there are days we mark in silence, days best kept in solitude, in the quiet deep down places where only we can trace the contours of the shadow, the weight of how they’ve changed us, cleared the lens through which we see.
they’re the days that have left their mark on us, indelibly. the days in our lifetime that will forever inscribe the demarcation, time divided starkly––before and ever after.
one by one, or one alone, they’re the days, the dates, the hours that constitute our subterrain, the strata by which our soul is shaped and stretched and textured. it’s the timeline that draws us into depths, to keener understanding of what it means to be alive. or our life, anyway.
it might be a death or disfigurement. it might be birth, or betrothal. a beginning or an end. most often, both at once. to close one chapter is, by definition, to open the next. and while some of those days are duly announced, and bracketed with anything from helium balloons to holding our breath, it might be the weightier ones––the ones whose mark is most unexpungable––best kept in solitary vigil.
it is in the profound spaciousness of unspoken thoughts that we find the room to grope for consequence, that we fumble toward those few faint stirrings that draw us closer and closer to what becomes our truth. we can’t really find our way without the grace of our aloneness, the room where knowing comes. in the beginning and the end, we tread the thin-bare thread of life with but our God to take us by the hand. or so i believe.
and here’s a truth: by the time we’ve hobbled through a few decades (or less or more, depending on our lot), we all accumulate those days. the days whose dates we don’t forget. the day we met our one true love. the long night of our first miscarriage. the house fire that chased us out. the last look into someone’s eyes. the first time the doctor put breath to the word cancer, and quickly added how surprised he was they’d found it deep inside us.
we keep those days in cloak of silence because we are sifting still through all the ways they’ve reconfigured who we know ourselves to be, and how we move through time.
yesterday was one such day for me. one year since i awoke on a gurney, my surgeon by my side. i shudder now to remember it, though at the time i didn’t shudder at all. i was brave that day. it hadn’t sunk in so deeply yet. ever since, and all year long, i’ve had glimpses both of bravery and brokenness. i’ve cried buckets and, then, i’ve set my shoulders firm; i’ve faced the worst of my fears with unflinching questions, endless hours reading, and airplane rides to doctors i wish i’d never needed to know. i’ve slowly, slowly, tried to imagine adding numbers to my years.
april 18 is a date i’ve uttered umpteen times in the last year. date of surgery: date of diagnosis. date of new beginning. date of counting time with deeper intention and attention.
maybe the date will dim, as i move on from it. as 2024 fades to 2025 and . . . (and hallelujah for the 4 that now sits firmly where the 3 began.) a year ago today was the first time i saw my life measured in the span best known as five-year-survival rate, the chance you’ll be around five years hence. believe you me, it’s a bracing thing to count forward and hope and pray you cross the line to––bing! bing! bing! your magic number is….––04.18.28. the date now yours with odds attached.
i’m going for broke here, and placing bets. but that’s only because at this very moment what swells in me is hope. quick as the clouds scuttle across an april sky, i might flinch, get scared, and pull my money from the table.
my point is simply to say that there are days that define who we are, and we keep those days in silent vigil, wrap those days in certain grace. and we pray to God we come out the other side, with lessons learned and underscored, as we reach and reach toward that one repeating prayer: dear Holy Gracious God, let me make of this one most sacred day every iota of blessing that is mine––and yours––to give.
some mornings are so much clumsier than others; this is a clumsy one, but my vow to try–even when i mostly miss–is one i take to heart. to write raw is its own peculiar dare. but here’s the why: because every fleeting while you just might catch a dust mote of life as you know it. and thus i will keep swatting at the passing motes, in hopes of putting words to those ineffable pieces of the puzzle. because we are all bumbling along together here, and in good company we find light and air.
as you look back across the plane of your life, are there days you’ve not forgotten, days you note alone and without mention, because you know how lastingly they’ve marked you? and that’s a questions whose answer you needn’t give voice to here. but just a prompt.
be not afraid is the instructive. it comes in a hymn we belt from our pews, and in one form or another it’s spelled out in sacred text in most every religion. i’ve belted the words to the hymn with voice cracking, and tears running down my cheeks. i’ve belted out those words as if in singing them loudly i could muscle up to the task.
to be not afraid, we’ve been told, is to be certain of faith. what then of us wafflers? the ones with wobbly knees?
i sometimes think i’m the poster child for fear. and the fear i’ve felt in this whole last year is a whole new subterranean trembling. it’s one that wakes you in the night. and one that sends you and your worries catapulting off into nevernever land. all it takes is a headache that won’t go away. or a pang in the side that’s not from cold ice cream.
sometimes i think it’s only fair that i find myself in the company of fear so very often these days. it’s an unerasable fact of my life that not quite a year ago i awoke from a surgery and heard the doctor say, “i was so surprised, it was cancer.” and then, as if needing proof there on my gurney, i reached down to where the holes were, five of them––front, back, and side––the slits from which they pulled out a good chunk of my lung.
surprises like that are a bit hard to shake.
so now, for two long weeks, a curious constellation of queasies has been pinned to me like a shadow, and i am pretty much wide-eyed afraid. last night my doctor sent me for blood tests. a whole slew of them. i almost thought they’d grab a jug off the shelf and start to fill it.
for someone who doesn’t like talking about my medical woes, i am wading in a bit too deep here. but i am someone who takes to heart the knowledge that i’m not the only scaredy cat in the litter. and sometimes i think it’s the right thing to do to put voice to the truth that there are times when we aren’t so brave. there are times when we wish we could hide under the covers, or under the bed, and wait for the bogeyman’s footsteps to turn and go away.
does it mean i’m faithless because i’m afraid? i don’t think so. i think it means i’ve been keeping watch long enough to know that stories don’t always end with happy endings. and God can love you to pieces, but not write the story quite the way you’d plot it out. i mean, i’ve been to funerals of souls so breathtakingly good, you sit there gasping at the hole now left in their absence. at how the world without those particular angels living, breathing, and wafting among us is a far sorrier place. at how you can’t quite fathom a world without their showing us day after day just how magnificent the human species can be.
turns out the words to the song, “be not afraid,” were written by a jesuit priest-in-training who was deeply afraid when he wrote it. he was quaking with fear. the fear of not knowing what lay ahead. would he be any good at this priestly existence? where in the world would it lead him? was he hours away from the biggest mistake of his lifetime? well, father dufford was his name, and, on the cusp of his ordination, he was sent off to pray all by his lonesome. and that’s when he opened the nearest book to his elbow, which happened to be a Bible. flipping through chapter and verse, he turned to the story of the Annunciation, when the angel gabriel is said to have come to the Blessed Virgin Mary––an unmarried teen, you recall––to tell her she was “with child,” and gabriel said to her “do not be afraid.”
father dufford had his first line.
a few weeks later, as father D tells the tale, a friend of his told him she was being sent to ghana to do missionary work. and that made him really want to finish his hymn before she left. but hymn writing is not always easy. and despite his determination, he could only come up with a second line: “i go before you always.”
it would be a whole year before he got to the last line: “and i will give you rest.”
it’s a hymn that since 1975 has poured into the brokenness that defines so much of history, both the intimate personal history we know to be our very own, and the collective history of us as a people who’ve been crushed and shattered and brittled by so, so much.
it’s a hymn sister helen prejean, the great saint of death rows upon rows, often sings to those inmates she walks to death’s door––the last words they hear before their last breath. it’s the hymn bill clinton chose for his first inauguration at the morning prayer service. father dufford says that he’s gotten notes from people who lull themselves to sleep humming it on those nights when sleep won’t otherwise come.
when father dufford’s own father died some years later, he added one last verse:
And when the earth has turned beneath you and your voice is seldom heard, When the flood of gifts that blessed your life has long since ebbed away, When your mind is thick and hope is thin and dark is all around, I will stand beside you till the dawn.
maybe i should remember all the words.
and on the subject of fear and holding hands in the face of fear, here is this excerpt from naomi shihab nye’s “EVERY DAY AS A WIDE FIELD, EVERY PAGE,” a poem in which she puts word to the one sure thing i know that takes away my fears: when i picture ones i love huddled right beside me, squeezing my hand; when i remember that all of us together can keep our knees from buckling. isn’t that why we’re here? given that the world these days has plenty to knock us off our rockers, it’s a blessed thing to picture wide-eyed tender-hearted folk all around the globe, looking up into the night, holding hands in a virtual steadying circle. here’s naomi’s take on that, a thought that came to her watching fireflies blink in the dark of night….
We didn’t have to be in the same room — the great modern magic. Everywhere together now. Even scared together now from all points of the globe which lessened it somehow. Hopeful together too, exchanging winks in the dark, the little lights blinking. When your hope shrinks you might feel the hope of someone far away lifting you up. Hope is the thing …
when i am afraid, i look to the stories and the strength of ordinary folk whose hurdles are daunting, and yet who lope forward with grace. i seize on the kindness of strangers, the lady at the immediate care check-in desk, the schedulers on the hospital phone, the sweet woman who tied on the tourniquet and borrowed those many tubes of blood. in the past year, i’ve bumbled into a troupe of brave souls whose fearlessness takes my breath away. some of their roads are far bumpier than mine, and yet they press on, shedding their light on all who are blessed enough to take a few steps beside them. maybe the gift of being afraid is that it makes you reach beyond your own trembling walls. it makes you take a deep breath and step into the darkness. and in time, you find your bearings, and you look down and realize you’re stronger and braver than you ever imagined.
where do you turn when you are afraid?
p.s. in poking around just now, looking for a photo that wasn’t hokey, i stumbled on this bit of intrigue: apparently the words, “do not be afraid,” appear in the bible 365 times. (i love the folks who count these things…) so, apparently, that’s a reminder a day. except for in leap year. which is this year. which is six days from now. so we’ll have to remind ourselves: do not be afraid.
i’ll be honest (as if i’m ever not): this was an unbearably hard week. and i am exhausted to the bone. the horrors of the world––images and stories i could barely take in––shred us, and scare us; make me wonder if we’re teetering on another apocalyptic precipice. and within the world’s horrors, there is a much-closer-to-home struggle that’s absorbed my every ounce of attention and strength: the not-insurmountable, steep incline of moving my mother into the next much-dreaded chapter of her life. a chapter she had adamantly refused to consider until the bones in her body were broken and the home she has loved for six decades can no longer be a place of safety and refuge.
the days have been long, have been wearing. but time and again through the week, my eyes fell on words that all but saved me. i gathered them up each time, hungrily. voraciously. as if the ones who spoke the words, or wrote the words, or somehow laid the words all in a life-saving line had reached out through the darkness to give me their hand. each time i held on tight. here are the words that steadied me this week. maybe they’ll steady you too.
i turn first to the irish, because where better to turn in the face of a broken world, and a battered heart: this comes from pádraig Ó tuama, who wrote: “there’s an irish phrase, ‘Is olc liom do bhris,’ which we say during a time of grief. a literal translation is ‘your brokenness brings me horror.'”
i couldn’t pronounce the irish if you paid me, but i love that the irish soul immediately understands that sometimes we’re not simply saddened but out-and-out broken under the weight of our sorrows.
but then, at the very moment i needed it, anne sexton came along: as i sat there watching my mother, now bent over a walker, sometimes crying out in pain, i watched my somewhat shy mother shuffle into a dining room filled with strangers. i watched her gently lay her hand on the shoulder of someone she was shuffling by, and i heard her say, “hello, i’m barbara, i’m new here.” and i felt my belly gurgling like jelly, as in the days when i pressed my ear against the kindergarten door, praying my firstborn would make it through the morning, my tender brave boy in a sea of new faces and voices. i watched my mother show me courage in the face of everything she’d prayed would never come to her. and then anne sexton’s words slipped under my nose. and i thought for a minute the heavens must have been listening, or maybe instructing.
Courage
It is in the small things we see it. The child’s first step, as awesome as an earthquake. The first time you rode a bike, wallowing up the sidewalk. The first spanking when your heart went on a journey all alone. When they called you crybaby or poor or fatty or crazy and made you into an alien, you drank their acid and concealed it.
Later, if you faced the death of bombs and bullets you did not do it with a banner, you did it with only a hat to cover your heart. You did not fondle the weakness inside you though it was there. Your courage was a small coal that you kept swallowing. If your buddy saved you and died himself in so doing, then his courage was not courage, it was love; love as simple as shaving soap.
Later, if you have endured a great despair, then you did it alone, getting a transfusion from the fire, picking the scabs off your heart, then wringing it out like a sock. Next, my kinsman, you powdered your sorrow, you gave it a back rub and then you covered it with a blanket and after it had slept a while it woke to the wings of the roses and was transformed.
Later, when you face old age and its natural conclusion your courage will still be shown in the little ways, each spring will be a sword you’ll sharpen, those you love will live in a fever of love, and you’ll bargain with the calendar and at the last moment when death opens the back door you’ll put on your carpet slippers and stride out.
~ Anne Sexton ~
(The Awful Rowing Toward God)
and then, the news of the death of louise glück, the nobel prize-winning poet from cambridge, mass. a poet i once sat inches away from in a bookstore in harvard square, so close to me that i could feel the whoosh of her hand as she swept it through the air, punctuating one of her lines, pushing back her lioness locks of silver-streaked hair. louise died of cancer, and her beautiful words held a deep resonance in this week when i found myself talking to the kindest physician i’ve met in a long summer of looking for answers. in between worrying about my mother, i remembered i too am still looking for light in my own shrouded tunnel. a doctor from mass general, just down the road from cambridge, gave me that light. and she was more than kind in doling it out. but here’s louise:
CROSSROADS by Louise Glück
My body, now that we will not be traveling together much longer I begin to feel a new tenderness toward you, very raw and unfamiliar, like what I remember of love when I was young —
love that was so often foolish in its objectives but never in its choices, its intensities Too much demanded in advance, too much that could not be promised —
My soul has been so fearful, so violent; forgive its brutality. As though it were that soul, my hand moves over you cautiously,
not wishing to give offense but eager, finally, to achieve expression as substance:
it is not the earth I will miss, it is you I will miss.
and those are the words i clung to this week, the words that carried me across an awful abyss.
what words carried you?
p.s. there’s one other poem that saved me this week, because it always saves me: naomi shihab nye’s kindness. here tis:
KINDNESS
Before you know what kindness really is you must lose things, feel the future dissolve in a moment like salt in a weakened broth. What you held in your hand, what you counted and carefully saved, all this must go so you know how desolate the landscape can be between the regions of kindness. How you ride and ride thinking the bus will never stop, the passengers eating maize and chicken will stare out the window forever.
Before you learn the tender gravity of kindness, you must travel where the Indian in a white poncho lies dead by the side of the road. You must see how this could be you, how he too was someone who journeyed through the night with plans and the simple breath that kept him alive.
Before you know kindness as the deepest thing inside, you must know sorrow as the other deepest thing. You must wake up with sorrow. You must speak to it till your voice catches the thread of all sorrows and you see the size of the cloth.
Then it is only kindness that makes sense anymore, only kindness that ties your shoes and sends you out into the day to mail letters and purchase bread, only kindness that raises its head from the crowd of the world to say It is I you have been looking for, and then goes with you everywhere like a shadow or a friend.
inwhich i tell the truth and let on that this is a bumpy road right in here…
my summer companion, a fellow named tedd, leapt into the passenger seat, as he is wont to do these days. he loves nothing more than wending his way through the city, curiosity propelling the route. we stopped along the way, biscuits with cheddar and honey, fuel for the road. he took notes of places he’d want to come back to, the romanian sausage shop, the honeybear pancake house where the windows were bursting with clouds of silk flowers.
we were headed to a chicago institution, a garden shop that’s sprawled across city blocks. a garden shop that upholstered my very first garden, long long ago. we were looking, allegedly, for a fountain whose splash would punctuate the summer sounds, whose soothing whoosh might lull us into that fugue state that comes when you plop in a chair and listen to all that the world has to offer.
i love my companion more than life, and i love our urban adventures. but truth is, there was yet another uninvited passenger in the old red wagon, and its name was fear. i am inhabited of late by runaway fears, and worries, that this cancer has let loose and is running amok in odd parts of me. it’s too scary to say aloud to the people i love, so i mostly hold it inside. except for here, where words tapped out on keys have always been my one certain release valve.
it seems that two months after the day i first heard the words “it was cancer,” i’ve been caught in what’s likely an inevitable gulch. it’s a lot to absorb. it’s a lot to have half your lung up and cut out, sent off to pathology, where science-y folk slice it apart and mark it with names, stamp it with numbers that scare and confuse you. even the oncologist the other day said as much, though i think her words were something along the lines of “it rocks your world, especially when it’s right there in your chest.”
i was listening to a podcast the other day, a podcast for people with cancer (i still gulp when i write phrases like that, realizing i’m now among them, the people with cancer), and they talked knowingly about “the middle-of-the-night questions,” the ones that basically all circle back to “am i going to die?” there is solace, much solace, in knowing how universally some of this hits us. we are all human beings, a motley collection of bones and flesh, of freckles and smiles that wrinkle our faces in particular ways. we all hope big, though my big is different from yours. and we’ve all suffered hurts we’ll never forget, even if we’ve pushed them off to the side. and a lot of us get scared. the thing about cancer –– or any one of the other life-altering diagnoses –– is that it strips away so very much of the pretense. it’s brass tacks, and un-glittered questions. it’s a swift dunk in the truth-telling end of the pool, where you dispense with roundabout thoughts and spit out the unedited ones. the ones you might not bring up in the produce aisle, sifting through the bunches of carrots, or reaching for the ripest avocado.
once you have cancer, and find out the one or two others in your life who are on the same road, it’s like you’re ushered in to a particular locker room, where everyone walks around with the same flimsy towels, and no questions are barred. where you can say out loud those things that keep you awake in the night. and, somehow, putting breath to the words, seeing the knowing in the eyes of the one to whom you are talking, reminds you, over and over, how very much we all want to cling to this life we have built, this life filled with people we love, and dreams we still hold.
i’m thinking i’m struggling because all of this is so new, and it still feels like it came out of the blue. and it knocked the breath right out of me. i keep thinking that once i get one of those scans under my belt, the ones that will come every six months, i might settle in to the notion that maybe the cancer is gone. or at least settled back to its indolent state, my couch potato of a cancer, as the doctors proclaimed it (after all, it had been lolligagging down at the bottom of my lung for eight long years before anyone realized what trouble it was).
i realize i can’t call my doctor every time there’s an odd sensation — say, like the lump i feel in my armpit — or maybe i should just get a diagnostician on retainer, one who wouldn’t hold it against me for all of my worries.
somehow or other i am going to find my way to the other side of this rather dark cloud.
i intend to get on my knees. with trowel at my side. and a big jug of pellets, the ones that give plant roots a boost. while i’m down there i intend to dig deep into my very own soul, open up a portal to the God who animates the whole of me, and the whole of this earth.
deep in the night i spend plenty of time asking “those” questions. but i also spend just as much time lying in silence, holy silence, channeling the God in whose palm i am trying to rest, aching to rest.
i tend to find God when i’m out in the garden, or lying in the impossible dark. i tend to find God, too, when i tell the whole truth, and the balm comes — Holy Balm comes — to settle deep in the cracks.
how do you find your way to the other side, when the dark clouds come, or the wall of fear feels too high to scale?
i did find a couple poems i was going to leave here today, but i will save them for another day. and simply close with this blessed thought from rabbi abraham joshua heschel, one of my great, great sages…
To pray is to take notice of the wonder, to regain a sense of the mystery that animates all beings, the divine margin in all attainments. Prayer is our humble answer to the inconceivable surprise of living.
Abraham Joshua Heschel
photos (here and above) by teddy
p.s. a delightfully joyful thing did happen this week when, lo and behold, i discovered that none other than richard rohr, the great modern-day mystic, had quoted from The Book of Nature in his daily meditation for tuesday. and i’m getting back in the saddle this weekend, for a nature walk with an oak park synagogue, a two-hour radio show with a pittsburgh priest i’ve come to love, and a trek to milwaukee tuesday night for a conversation with the journal sentinel’s book critic, jim higgins, at the boswell book company, an east side literary institution.
p.s.s. happy blessed father’s day to the brilliant fathers who sometimes gather here…
i don’t think i will ever forget the first time i heard the word cancer spoken in a sentence in which i was the unspoken subject. i was groggy from anesthesia, but there was my surgeon, leaning against the curtain in the recovery room. he was dressed in street clothes, his backpack slung over his shoulder, headed home to dinner, i imagined, with his little brood up here in the leafy suburbs, where we happen to both share the same zip code. i heard him say “it was cancer,” and i heard him say he was so surprised. i don’t think i heard much after that. and for all the days since i’ve been trying on that word.
it’s a word that’s hard to say. it’s a word that’s hard to slip your lips around. especially when it belongs to you. and when the cancer in question is the one that was settled quite inconspicuously in your very own lung. i’ve thought a lot about the eight years since they first saw it there. no one thought it was cancer. they thought maybe it was a scar, from a pneumonia i’d once had. or an old broken rib. nothing to worry about. all those years. all those christmases and birthday candles blown. all those graduations and droppings off at college, and at law school. all those late late nights when a million worries kept me up, but never that one. never ever a worry that i had cancer in my lungs.
until december, when someone once again saw it by accident and decided we should not ignore it anymore. i owe that someone every year of the rest of my life. and while the next weeks of january into march were a wild, wild ride, it took till april 18 to finally figure out what it was, to finally figure out that the suspicious “neoplastic process” was in fact just that: neoplastic is another word for cancer.
and it’s gone now. they cut it out. all of it, we hope. my surgeon called the other day and in the cheeriest voice i might ever have heard, he said “congratulations;” said “it’s as good a report as we could hope for, knowing it was cancer.”
i am writing the word here, because words are how i make sense of life. i have always found my way with words. words on paper most of all. words on paper even more than words in air. words on paper are the tracings across the topography of my life. i find my way stringing one word to another, groping along from one to another till the sentence ends. and right now i am in a thicket that makes very little sense. for a few days there, i could not for the life of me tell which way was north, and which was south. i was all turned around, and upside down. i wept and wept some more.
but slowly, slowly, i am feeling my way. and i am feeling very brave. braver than i ever would have guessed. i would have guessed i’d crumble. but maybe all my crumbling is only in my imaginings. maybe, over the years, when i’ve played out my potpourri of disaster scenarios, i’ve been getting the crumbling out of the way, so that when the real thing came along i was practiced, i was ready to step boldly, bravely, even valiantly up to the plate.
part of being brave is learning to say those two words, strung together: lung + cancer. lung cancer. i am now part of an unwelcome sisterhood; i’m among the ones to whom those words now belong, and whose lives are shaped and re-shaped thereafter and ever after. and i am linking arms emphatically with the ones who know these hauntings and these hollows. i am, so help me God, intending with every ounce of will and fierce determination to be among the ones who say aloud that we’ve had lung cancer and we are here to prove you can live beyond it. you can live with it shrinking––day by day, month by month––into the distant distance.
i am still going to dance at my firstborn’s wedding, and my secondborn’s too (or whatever is the life event for which cakes will be ordered and flowers strung). i am going to sashay through my garden, the wise old woman who communes with birds and bumblebees and baby ferns. i will some day tell stories that include the chapter of the time they made the words lung and cancer a part of my vernacular. how never in a million years did i think those words would find their way into my narrative. but here they are. and who knows where they’ll take me, though i’ve a hunch it will be a heady, heady heart-swelling somewhere. i’m not one to leave life’s sheddings by the wayside, unstudied, unplumbed for all their wisdoms and epiphanies.
these might be the two hardest words i’ve ever said. but i am going to say them till they shrink in size, in wallop. i am going to say them till they’re stripped of high-voltage burn capacity.
we all have words that are hard to say, words we don’t think will ever be ours. words we don’t want to be ours: widow, widower, survivor, victim, divorcee, depressed, anxious, anorexic (the word that used to be my hardest one to say), amputee, diabetic, dyslexic, broken-hearted. maybe the point is to take on those words, slip our arms through their sleeves, make them a part of who we are, but not the whole of who we are. to be not afraid, nor defined solely by their simple syllables. but to allow them to deepen who we are, to add contour and dimension, to layer on the empathies. to shape our particular view of how we see the world. and where we find our place within it.
i don’t intend to turn this into a place where we contemplate cancer. not at all. but right now, it’s the woodsy thicket in which i am trying to find my way. if i—someone who never smoked a single cigarette, someone who never lived with anyone who smoked—can bring the words out into the open then maybe, just maybe, it won’t be such a surprise to the next someone who finds herself stymied by a spot on her lung that cannot be explained. i will be the first one to wave my hand in the air, and say, please don’t wait. don’t hesitate. bite the bullet and let them have at it. find out if it’s cancer or not. don’t dawdle. cuz dawdling does not buy time.
only courage buys time. stare it down, this cancer. let it know who’s in charge. let it know that you’ve no intention of letting it steal a day of your most precious life.
i have always known that life is fragile precious. i’ve known that since long before the day my papa died, and i somehow kept on breathing after he was gone. i’ve known it over and over and over again. i’ve known it on the day i got married, when walking down the aisle was something i never really knew i’d know. i’ve known it when i birthed each of my two boys, one whose birth almost felt as if it was about to slip away, but i was determined, and i was not going to lose the answer to the million prayers i’d prayed. i knew it, too, the night i miscarried my baby baby girl, a night as real to me as the ones that ended with babies cradled in my arms.
i’ve lived so many days i’d never thought i’d see.
and i am going to live even more. and i am going to say aloud that i once had cancer in my lung, but they cut it out, and now it’s gone. and i am going to tell the story of what it’s like to live emphatically after the doctor in the recovery room tells you he was so surprised. so so surprised to find out that it was, in fact, cancer idling in my lung.
cancer i hope and pray is gone. completely, totally, forever gone.
the two little bits i found this week seem fitting for a day of telling hard truths. first, musician Nick Cave’s advice to a 13-year-old:
“Read. Read as much as possible. Read the big stuff, the challenging stuff, the confronting stuff, and read the fun stuff too. Visit galleries and look at paintings, watch movies, listen to music, go to concerts — be a little vampire running around the place sucking up all the art and ideas you can. Fill yourself with the beautiful stuff of the world. Have fun. Get amazed. Get astonished. Get awed on a regular basis, so that getting awed is habitual and becomes a state of being. Fully understand your enormous value in the scheme of things because the planet needs people like you, smart young creatives full of awe, who can minister to the world with positive, mischievous energy, young people who seek spiritual enrichment and who see hatred and disconnection as the corrosive forces they are. These are manifest indicators of a human being with immense potential.
“Absorb into yourself the world’s full richness and goodness and fun and genius, so that when someone tells you it’s not worth fighting for, you will stick up for it, protect it, run to its defence, because it is your world they’re talking about, then watch that world continue to pour itself into you in gratitude. A little smart vampire full of raging love, amazed by the world.”
and next up, annie dillard on why we read and write at all….
“Why are we reading, if not in hope of beauty laid bare, life heightened and its deepest mystery probed? Can the writer isolate and vivify all in experience that most deeply engages our intellects and our hearts? Can the writer renew our hope for literary forms? Why are we reading if not in hope that the writer will magnify and dramatize our days, will illuminate and inspire us with wisdom, courage, and the possibility of meaningfulness, and will press upon our minds the deepest mysteries, so that we may feel again their majesty and power? What do we ever know that is higher than that power which, from time to time, seizes our lives, and reveals us startlingly to ourselves as creatures set down here bewildered?”
– Annie Dillard
and, this, maybe more than anything. . .
a friend who will be a lifeline sent me this late last night, and i breathed it in through my tears. we can do hard things. humans have done hard things since the beginning of time.
a little note: i am not going to share any medical details here, only the rumblings of my heart. please know that i have a team of angels on my side, medically.
what hard things have you done? and what lightened the load?
in the dark, i tiptoed down the stairs just now. saw the shimmer of white splattered across the front stoop, reflecting the light of the now shrinking Worm Moon, the moon who takes its name from the squirmers arising from winter’s slumber. any worms out there now might consider zippered jackets. same too for all the dear little green things now courageously, audaciously, sticking their necks out, inching their way up and out from deep earth’s underbelly, where they too have been whiling away the winter doing what green things do in their off-months.
to be a springtime bulb here in the middlelands of the continent, where windswept plains and lake-effect snows are part and parcel of the choreography well into april, is to be of hearty mettle. is to be one who tempts the fates. might as well whisper, “dare you to snow on me.” and yet, the heavens do, springtime after springtime, disgorge their fluffy crystals, dump an icy load. as if a test to see who survives, who withers. it’s lord of the flies, garden variety.
there are those of us who’ve been known to awake to such horrors––our tenderlings adorned in icy crystals––who race out the door, a rescue squad in rubber boots, shaking off the snow, applying blankets to the wounded.
i marvel every time at the ones who bounce back. who shake off the mounds of snow, and go right on punctuating march and april with their crayola-crayon-box colors.
and i think of them as parables, consider the wisdoms they suggest. it’s not too hard to draw a straight line from their vernal trials to the ones we humans face. the waning weeks of this winter have dumped a few harsh snows my way, snows that left me just a little bit knocked back. i’ve stared into the abyss of fear, and found that just like those rescue squads who race outside with brooms and blankets to clear away the snow, life drops down its own brigade of heroes, the ones who steady us in our deepest wobbles, the ones who dry our tears. have you ever noticed how much kindness comes in our darkest hours?
i find the gospel of the season, these liminal weeks when the last gasps of winter blow our way, and the full-on percolations of spring aren’t yet arrived, is one of holding onto hope. the leitmotif––don’t be felled by that which falls upon you––is played out, over and over, just beyond my windowpanes. yes, it snows and crushingly so. but then the melt comes. the stems and stalks and itty-bitty buds, undaunted.
i find a hint of fortitude in glancing out the door in the wake of melt, once the day warms up enough to chase away the fluffy stuff, in seeing the green things shake off their trials, sticking their necks out just a wee bit further. i dig deep and decide i, too, will do as the daffodils. i’ll be brave, and set my sights on bursting forth in fullest color. and along the way, i’ll trust in all of those who come running with broom, blanket, and the curative powers of simple kindness.
on the subject of march, i turn to henry david thoreau and his journals, to see what he had to say on the matter.
here, we dip into The Journal: 1837–1861, with entries from March 21, 1853. thoreau was thirty-five and pondering a different kind of thaw.
March. 21. Morning along the river.
Might not my Journal be called “Field notes?”
I see a honeybee about my boat, apparently attracted by the beeswax (if there is any) in the grafting-wax with which I have luted it. There are many; one is caught and killed in it.
P.M.—To Kibbe Place.
It is a genial and reassuring day; the mere warmth of the west wind amounts almost to balminess. The softness of the air mollifies our own dry and congealed substance. I sit down by a wall to see if I can muse again. We are affected like the earth, and yield to the elemental tenderness; winter breaks up within us; the frost is coming out of me, and I am heaved like the road; accumulated masses of ice and snow dissolve, and thoughts like a freshet pour down unwonted channels. Roads lead elsewhither than to Carlisle and Sudbury. Our experience does not wear upon us. It is seen to be fabulous or symbolical, and the future is worth expecting. In all my walking I have not reached the top of the earth yet.
and, finally, i snipped a few lines from a poem of george herbert, the seventeenth-century poet-priest, on the subject of prayer. i love his litany of metaphors for what prayer is, and find that i might meditate on any one of his multiple choices, the last line here most especially, “the soul in paraphrase, heart in pilgrimage”:
George Herbert, “Prayer (I).”
PRAYER the Churches banquet, Angels age, Gods breath in man returning to his birth, The soul in paraphrase, heart in pilgrimage . . .
may the prayers that rise from you this month be ones of resilience, of shaking off the snows that fall. and may our hearts always be in pilgrimage. where do you find wisdom in the stirrings of this cusp of hallelujah’s spring?
as soon as his breath propelled those words across his lips and out into the snow-flecked january cold, i inscribed them on my heart. i hadn’t quite framed it that way, in those four words, so profoundly, so poetically, so imploringly.
and then, as if that wasn’t enough, the wise old soul whose very fiber has been forged in the white-hot furnace of grief compounded by grief, he all but unbuttoned his coat, pulled back his ribs and showed us what burns in that cavity: “my whole soul is in it,” he said, as if speaking to each and every one of us, as if elbows were plopped on our very kitchen tables, eyeballs gazing at eyeballs, mugs of coffee just off to the side, instead of there in the sunlight and shadow of the nation’s capital. then he all but whispered it again: “my whole soul is in it.” and that’s when i whispered, “mine too.”
having just witnessed — from the edges of our seats — how close this fragile experiment in democracy came to crashing into splintered bits, having lived under a poisonous cloud of daily assaults on decency, straining to stay steady, to keep from being sucked under in the shifting quicksands of moral decay, of a nation under the false premise that license had been given to spew venom from the checkout line to the capitol steps, i am more certain than ever that this is not a one-person parade. if we stand a chance of shoving this moment in time toward the light we claim, toward the peaceable kingdom we believe is possible, well then every last one of us needs to get to work, to chip in, to put one foot before the other in a slow walk toward mercy and justice for all.
my inaugural promise is this:
i will cloak myself each and every day in humility and gentle spirit, the surest vestment for the hard and holy work ahead. for months now i’ve tiptoed in the darkness to my kitchen table where i’ve lit a candle and whispered the words of confession. “most merciful God…” i begin. “…we have not loved our neighbors as ourselves. we are truly sorry and we humbly repent.”
i will not reflexively shut my ears, close my heart, turn my cheek the wrong way. i will hear them out, whoever it is. i will try, oh i will try, not to leap in with my insistent retort. not to interrupt. not to wield the sharp sword of assumed superiority, not think that my way is the right way, and all else is wrong. i will try, i will try, to step into the other guy’s shoes. to imagine the hurt, or the fear. to look for a gentle way in, to open just a little bit wider the doorway to some common ground. even if only fraction by fraction.
i will actively step into kindness. into imagining the unexpected waft of goodness that might just turn the tide of someone else’s dark day. i will model the thousands of kindnesses that have come my way — the sacks of apples left on my stoop, the tray brought to my hospital bedside, the steaming hot chicken pot pie once delivered on an arctic cold night, to name just a few.
i will carve out time even amid the whirlingest of days for whoever taps me on the shoulder, looks me in the eye, and whispers, do you have a minute?
i will — in some way, shape, or form — seek out foreign terrain, the realm of those who might be quick to dismiss me: too white, too old, too left-leaning. and begin with the light-seeking questions: what keeps you awake at night? what do you dream? what brings you joy? what makes you cry? where does it hurt? who do you consider to be the most heroic human you’ve ever known? and how so? what’s one act of kindness you’ve never forgotten?
because i realize my impotence for change-making at the structural level, i will pinpoint one not-for-profit effectively working toward solution — be it reuniting children separated from parents at the border, or ferreting out all vestiges of racism and bigotry from the nooks and crannies of america, or protecting wetlands from the ravages of greedy exploitation — and i will commit to shaving off a dollar here, a dollar there from my weekly spending and send off occasional bundles from my consciously set-aside sum.
photo of Amanda Gorman by Patrick Semansky
but even more than dollar bills, the currency i commit to this campaign is the craft i ply each and every day: mine is a calling to words, words as instruments of peace, words as the silken thread that weaves together uncommon hearts, words that open doorways into long-locked corridors. as the beautiful and blessed national youth poet laureate amanda gorman so perfectly put it in the wake of her inaugural poem: “words matter. we’ve seen over the past few years the ways in which the power of words has been violated and misappropriated.” she sought, and i seek with her, to “reclaim poetry as that site in which we can repurify, resanctify the power of words. and to invest that in the highest office of the land.” to invest that in every office of the land, elected and otherwise. from the humblest foot soldier to the commander in chief. and to that, i say amen, amen.
we must end this uncivil war. and my whole soul is in it.
land of the free and the brave. land i want to be home to the kind and the gentle. and the fair and the just. land where truth is the national language, the one we expect to hear and to speak, the one that rings from sea to shining sea. land where we’re blind to the melanin that colors our skin, but not blind to the sins we’ve borne until now. still bear. land where bullies get sent to the principal’s office. and aren’t allowed on the playground, not till they right their ways. land where some big-hearted, big-eared soul sits down to listen, to find out why the bully’s so mean. land of confession. land where we fall to our knees, open our heart, and spill out our sins. where we say we’re sorry, so sorry, and we mean it. where we do right, right our wrongs. make up for the shatters and hurt we’ve left in our wake.
that’s the nation i want to belong to. that’s the world i want to populate, for the short time i get to be here.
it’s all evanescent. we’re not here for long. we’ve one short shot at weaving our one single thread into the tapestry. i aim for my thread to be radiant. too often it’s frayed. falls short. but the thing is, day after day, i clamber out of bed and i set my mind to living the promise: love as you would be loved. reach beyond your own borders. imagine how it feels to live in the other guy’s shoes. to be strapped with the load that he or she was born into, picked up along the way. the stuff that broke and scarred and left scabs that never quite healed.
i reach for the stars, for the heavens. my own personal plot, the one by which i measure my life, is to open the doorway to heaven here on earth. to make it all a little bit kinder, gentler, to love as i would be loved.
the thing is when you grow up knowing hurt, you sometimes decide to dedicate your every blessed hour to doing all you can to not let it happen to anyone else. to be, as blessed st. francis put it, the instrument of peace. to be the consoler. the sower of love. it’s a prayer i pray every day of my life.
i pray for that hope to spread like a rash. once upon a time i believed we could cure the world of the scourge of hunger, fill every last belly. now i’m sinking my hopes into the radical notion that we could all — just for one day, maybe even for longer — stop with the ugliness, put down the guns, dial down the incessant noise. stop seeing the world in us versus them.
for God’s sake: be still. breathe in the deep and calming oxygen of pure unfiltered kindness. imagine forgiveness.
i believe in capital D Decency. i believe in resurrection and redemption. i believe in the hard-rock capital of empathy. i’m willing to hope we can find it again. i’m not certain. but i cast my vote for all the holiness i believe in, the holiness that is the architecture, the underpinning, the spine and the sinew of my every blessed day.
and that’s why i wait, holding my breath, awaking in the night to peek at the numbers, to see if there’s half a chance we might become a more perfect union. one where life, liberty, and the pursuit of happiness is spelled out in three hundred million-plus variations on the theme. but one where justice, and fairness, and truth is the least common denominator. the one we strap on each and every morning, and take it from there. there is so much work to be done….
let us begin.
what are the threads of the world you believe in? the one that deep in your heart waits to be born?
it’s a scary thing to put yourself out there, to lay it all on the line. but this moment demands unfiltered courage in all its iterations. mine lies in saying it aloud, in whispering my heart’s deepest prayers. maybe i’m not alone…
poor dear alexander had one. alexander, of one of the all-time best-titled tomes in the land of children’s literature. or children’s books, anyway.
poor alexander went to bed with gum in his mouth, and woke up to find it in his hair. he tripped over his skateboard while getting out of bed. and dropped his sweater into the sink — while the water was running. and then when his two best pals found a.) a Corvette Sting Ray car kit, and b.) a Junior Undercover Agent code ring in their breakfast cereal boxes, all alexander found was, well, breakfast cereal.
it was neither gum in my hair, nor skateboards, nor sweaters in sinks — not even the lack of a decoder ring that got in my way. but, it turned into one of those days anyway. like i said, we all have them. there’s not a one of us who skates through a month, or a year, or a lifetime without tumbling into the occasional pothole, or skinning our knees on the rough edges of daily existence.
and, so, i decided to cook.
cooking, following steps from 1 to 2 to 4, seemed like it might be just the thing to soothe me (and maybe the fact that i seem to have skipped right over 3, there in my count, led to the outcome i’m veering toward). hauling out cutting boards and chopping devices, yanking bottles of spice from the shelf, eyeing the crucifers i remembered to buy at the store, it all seemed like the ingredients i needed for a healthy dose of self-soothe.
it was all seeming swell as i gurgled the olive-y oil into the bowl, dumped in coriander seeds, apple cider vinegar, a fine grainy mustard (french, even!). i chopped cabbage into one-inch wedges, as instructed. i sliced a purple onion into rings. but i went clearly awry when i reached in the fridge for the chicken i needed to cook before its due date had passed. i must not have been paying attention (always a downfall), but the chicken i reached for was that swanky somewhat-newish thing in the poultry department, a thin-sliced breast. which translates to slightly-better-than-cardboard. no fat, no skin, no taste. barely any meat to the bonelessness. all the cumin, coriander, salt and pepper, could not make for taste. or anything close.
i swooped on anyway, following closely every step of the rest of the way. i pulled out my silicone pastry brush, slathered my mustardy brew all over the flanks of that cabbage. drizzled olive oil atop the onion circles. bathed my boneless hen in blankets of spice, as called for. i piled it all on a baking sheet (my cooking vessel of choice these days), and awaited the clouds of enticement rising from the cracks in the oven. it smelled mighty fine. and my terrible day was melting away.
but then the old metal timer clanged, and i pulled my tray from the oven. right away, those skinny breasts hollered “failure!” (i’ll even show you the picture; you can judge for yourself–>)
unwilling to surrender, i made a last-minute dash to the “farm,” where the last of the herbs haven’t yet been sheared to the ground. i grabbed a few fine handfuls of flat-leaf parsley, and did what any self-respecting soul in search of salvation would do: i let it rain bitlets of leaves all over my tasteless, rubbery, very thin breasts, the original meat with no point.
all of which is to say there will come days that leave us limp like raggedy dolls. days that, like my chicken, strip us to (or of) the bone.
and it is a good and wise thing to have a coterie of tricks up your sleeve for shoving yourself over the hump. no matter the stumbles and falters.
once upon a time i had no clue, really, how to make the hurt go away. or maybe, truly, it’s that once upon a time i never knew how to sit with the hurt, to let it be, to understand just how strong i could be, to find my way to the clear on the days when the fog was so thick and so dense, and the hurt was so much. it’s taken a lifetime — all the days up till now — to learn the few things that i know.
what i do know is that my terrible, horrible, no good, very bad day is behind me now. and it’s the next morning. and there’s leftover cumin-bathed slabs chilling in the dark of the fridge. should anyone care to swing by, i’m putting them up for the taking. not even the possums who prowl my back stoop are likely to take me up on my offer.
what’s your cure for a terrible, horrible, no good, very bad day?
p.s. i’m not saying that chopping cabbage gets to the root of whatever it is that afflicts us, all i’m saying is sometimes we need something soothing to get to the other side, where we can begin to see through what hurts or what haunts us….
here’s another something i did this week, to leave you a wisp of the beautiful…..i was trying to hold onto a wee bit of summer’s bounty, by making my own potpourri. (martha stewart said to pluck the petals, strew on baking sheet, oven-dry at 250 for an hour.) it, too, was a flop (bad week for baking sheets at my house), as the glorious marigold and nasturtium and monkshood all turned a strange shade of bllkkh (variations in brown). so i started over, and decided to dry my petals the old-fashioned way: under the sun, strewn on my window sill. a work still in progress….
pull up a chair 