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Tag: suleika jaouad

hellfire

i’m at a loss and not inclined this week to take up too much oxygen on this earth that is thirsting for rain. or snow. or even a dense fog to begin to smolder the flames that have made for apocalyptic infernos in the land of the backyard grapefruit and avocado, the storybook land where palm trees might be outnumbered only by show runners and gaffers and star-studded trailers. 

the west coast is burning like hell and, among too many tragedies to count, one beloved friend has lost his whole classroom filled with 20 years of teaching, and others whom i don’t know have lost everything that constitutes the villages they call home: from the immigrant dry cleaners where they’re known by their shirts and their preference for starch, to the grocery stores where checkers are friends who ask about the kids and how quickly they’ve grown, to the churches and temples and mosques where knees are bent and prayers are sent up, to street after street of somebody’s home, once brimming with ballast and trinkets and treasures saved a whole life long––now embers at best. 

it’s the unspoken threads, the immaterial, the irreplaceable human-to-human bonds that feel forever lost. and therein is the crushingest blow.

i often am inclined to keep the big, bad world at bay here. to set the table and let us live our pensive lives in sacred quietude, paying attention to the little noticed. but over the years, the outside has rushed in when the horrors and heartache are too much to ignore. when the grieving belongs to us all.

so it is with the incineration of the city of angels. 

i can’t fathom it. can’t imagine the roar of a wall of flame barreling toward the windows, walls, and roofs where Christmas trees might have still been twinkling, where menorahs were just tucked back into cupboards. can’t imagine trying to not breathe in the toxins that are sure to leave scars in too many lungs (lungs are of prime consideration in my anatomy book these days). 

my best friend, a long-time california girl, texts whenever she has even a percentage of power in her phone. and begs to talk so she can be soothed by the voice of someone not looking into the distance for the billowing smoke, or the closer-coming wall of red, orange, and blue flame. 

she counts herself among the lucky unlucky, she says, for her husband indeed lost his meticulously cataloged classroom bookshelves, and his reams and reams of term papers saved (from before the digital age), and index card notes, and god knows what else a superstar english lit teacher saves. tragic irony is that he spent the summer finally clearing their garage of his files, and methodically transferring all to his bungalow classroom at Palisades Charter High, where beloved colleagues have lost classrooms and every bit of their homes. so suddenly the loss of only a classroom and a lifetime of teaching accoutrements stirs my best and longest friend to place herself in the lucky-unlucky column.

one of my brothers, one i adore for a million and ten reasons, not least of which is because he takes his care for the earth so deeply seriously, walking miles instead of driving, living with the sparest of necessities, always opting for a tent and starry night over any five-star hotel, hit the nail on the head when he captured the debacle thusly:

“Long past time for blame. It’s not politicians, it’s humankind. Most avoid living as if nature matters, yet many are surprised when nature reminds us that she matters. While sad, these fires and losses are not unimaginable.”

we need to do better. we need to remember: this earth is the heart of a sacred equation. it’s ours to romp in, to delight in, to “awe” in. it bountifully feeds us and clothes us and warms us and shelters us. and brings us infinite timeless wisdoms. but it’s begging we till it and keep it. as in the beginning, and ever after. amen. 


a pair of bananaquit

i’m turning for wisdom again to my friend and fellow pilgrim suleika jaouad, in which she further outlines her antidotes for worry and fear, two conditions that quite prominently rear their heads in CancerLand….(here, prompted by the first bird she saw this year, a little caribbean bird called bananaquit, with a common name “the sugar bird,” suleika went for sweetness as her quest for 2025…funny how intent the searching for essence becomes when life-altering diagnosis is the propellant….

Looking for the sweetness seems like a perfect antidote to the worry and fear. By looking for the sweetness, I mean seeking beauty, presence, and peace in every circumstance, letting go of my fears of suffering and death and what binds us to the material world, being nourished by what’s already inside of us—the nectar of bliss, as its called in Bhagavad Gita. It’s an ongoing practice—to stay nimble, to accept the constant flux, to find contentment wherever I am. 


a simple question answered by a modernday mystic:

What do I mean by contemplation? And why does meditation lead us into this state of contemplation? Well, Thomas Aquinas defined contemplation very simply as ‘the simple enjoyment of the truth.’ The simple enjoyment of the truth. You couldn’t get anything more simple than that. It is simply finding joy in what is.
—Brother Lawrence Freeman OSB, World Community for Christian Meditation

seek joy, dear friends. and thank heaven for the peace and calm and freedom from fear that allows you to sit pensively at your kitchen table, or to look out a window, mug of hot something in hand, and dream of a kinder, gentler, more just world of our making….


arguing that loving is not some passive happenstance that wafts in like fairy dust, but rather a human art that insists we practice as a painter would daub day after day at her paints, or a sculptor with her forms and clay, the great german social psychologist, psychoanalyst, and philosopher erich fromm in his 1956 masterwork The Art of Loving makes the case: love is a skill to be honed the way artists apprentice themselves to the work on the way to mastery, demanding of its practitioner both knowledge and effort.

The first step to take is to become aware that love is an art, just as living is an art; if we want to learn how to love we must proceed in the same way we have to proceed if we want to learn any other art, say music, painting, carpentry, or the art of medicine or engineering. What are the necessary steps in learning any art? The process of learning an art can be divided conveniently into two parts: one, the mastery of the theory; the other, the mastery of the practice. If I want to learn the art of medicine, I must first know the facts about the human body, and about various diseases. When I have all this theoretical knowledge, I am by no means competent in the art of medicine. I shall become a master in this art only after a great deal of practice, until eventually the results of my theoretical knowledge and the results of my practice are blended into one — my intuition, the essence of the mastery of any art. But, aside from learning the theory and practice, there is a third factor necessary to becoming a master in any art — the mastery of the art must be a matter of ultimate concern; there must be nothing else in the world more important than the art. This holds true for music, for medicine, for carpentry — and for love. And, maybe, here lies the answer to the question of why people in our culture try so rarely to learn this art, in spite of their obvious failures: in spite of the deep-seated craving for love, almost everything else is considered to be more important than love: success, prestige, money, power — almost all our energy is used for the learning of how to achieve these aims, and almost none to learn the art of loving. —Erich Fromm 


and finally, simply because i love the language and the imagery, a bit of eliot to usher us into the week to come…

Chorus X from “The Rock” by T.S. Eliot

O Light Invisible, we praise Thee!
Too bright for mortal vision.
О Greater Light, we praise Thee for the less;
The eastern light our spires touch at morning,
The light that slants upon our western doors at evening.
The twilight over stagnant pools at batflight,
Moon light and star light, owl and moth light,
Glow-worm glowlight on a grassblade.
О Light Invisible, we worship Thee!

We thank Thee for the lights that we have kindled,
The light of altar and of sanctuary;
Small lights of those who meditate at midnight
And lights directed through the coloured panes of windows
And light reflected from the polished stone,
The gilded carven wood, the coloured fresco.
Our gaze is submarine, our eyes look upward
And see the light that fractures through unquiet water.
We see the light but see not whence it comes.
О Light Invisible, we glorify Thee!

In our rhythm of earthly life we tire of light.
We are glad when the day ends, when the play ends; and ecstasy is too
much pain.
We are children quickly tired: children who are up in the night
and fall asleep as the rocket is fired; and the day is long for work or play.
We tire of distraction or concentration, we sleep and are glad to sleep,
Controlled by the rhythm of blood and the day and the night and the seasons.
And we must extinguish the candle, put out the light and relight it;
Forever must quench, forever relight the flame.
Therefore we thank Thee for our little light, that is dappled with shadow.
We thank Thee who hast moved us to building, to finding, to forming at the ends of our fingers and beams of our eyes.
And when we have built an altar to the Invisible Light, we may set thereon the little lights for which our bodily vision is made.
And we thank Thee that darkness reminds us of light.
O Light Invisible, we give Thee thanks for Thine great glory!

“The Rock” was Eliot’s play written and performed in 1934, to raise money for the building of new churches. it speaks to humankind’s relation to God, and the implications of a world lived without religion. makes me wonder what Eliot might write today, in a world where religions have wandered so far from their holy essence. the “choruses” in this 21-page play are spoken by the workers, the bands of laborers who build the churches, and is thought to be strongly pro-religion with anti-communist overtones in reaction to the “looming shadow of totalitarian regimes building in Europe and the rumblings of the coming Second World War.” apt.


as i write this, snow in fat flakes is tumbling down, birds are traffic jammed at the feeder, and all is silent save for the ticking of an old, old arthritic clock and the whoosh of a furnace. i am so deeply conscious of how blessed we are that we take our physical safety for granted here in the middle lands this morning. instead of a question, this is a morning for simple reflection, counting the blessings we so often forget to notice….

top photo above by JOSH EDELSON/AFP via Getty Images

one wish . . .

when i take a deep breath in tonight, and close my eyes to make a wish, there is only one wish i’m wishing this year: i wish for a birthday next year.

that’s everything, really. 

i’ll be wishing so hard.

it’s a wish that feels so far away. and so very big. like i’m asking for the moon. 

it’s a wish that carries a secret. one the sages and prophets and poets have known for a very long time.

it’s a paradox wish. it’s a koan. it’s a wish that makes you think. perk up and pay attention. root around for the wisdom, the immutable truth.

truth is, it’s even bigger than it seems. it’s a russian doll of a wish. one of those ones with umpteen tiny-grained wishes within. grain by grain by grain we make it across a year, and year by year a lifetime. 

a birthday next year. 

doesn’t sound like too much. but, oh, it’s infinite really. 

the blessing of cancer––and yes there are blessings, ones the sages and prophets all seem to have known without needing the verdict, without the scalawag cells lurking in shadows, cells that can’t wait to divide and multiply and muck up the works––is that it rejiggers your seeing. it’s the psychophysics of vision: when range is narrowed, acuity’s heightened. you learn to look not too far into the offing; you learn to look more closely than ever at whatever it is that’s right there before you. and, thus, you see all the more clearly the finest of grains all along the way. 

the fine grains are where the wonder, the magic, the awe, are kerneled inside, awaiting their turn to burst forth, to be seen, savored, not left by the wayside.

life in the up-close, life when we’re listening for whispers not waiting for timpani, is how we come to know the most sacred grain therein. 

in wishing for one more birthday––please God, just one is all i’m wishing this year (if wishes come true, i’ll wish it again and again and again as long as i can)––what i’m really wishing for are those tiny, tiny moments that strung onto a cord make for one holy rosary.

within my one moon-size, more-than-anything wish, here are some of the grains nestled inside:

i wish for the holy, holy sound of one or both of my boys calling me at some unlikely hour to tell me one of their dreams has come tumbling true. or at least the latest chapter therein. and before they’ve uttered a word, i’ll know from the sound of their breathing that the news that’s coming is good. and, dear God, i don’t wanna be stingy but i’d sure love one or two more of those sweet, sweet jubilant sounds.

and while i’m wishing, i sure wish i get to hear the rough draft versions of those dreams, as they’re in the making, as my boys try them on for size and dare to let me in on the beta versions.

i wish for their soft, big hands to wrap around my now-more-wrinkled littler one––to hold me steady, be it a cobblestone walk or life’s herky-jerky jolts tipping me over. 

i wish for one of those early mornings where no one is stirring but me, and the dawn hasn’t yet rosied the sky, and the biggest decision i’m called to make is which mug should i pull from the shelf.

i wish to sink my teeth into the sweetest strawberry of the season. ditto the crispest apple of fall. and the juiciest of august’s tomato. 

i wish to run down the airport corridor one more time and into the arms of my faraway boy, all while loudly belting out, “it’s been five years!” (even when it hasn’t been), only because all the good souls slumped in their hard plastic seats deserve a little airport sentimentality. even if it’s improv, and utterly fiction. and because there’s nothing i love so much as the arms of my boys wrapped round my shoulders.

i wish to come to the last page of a book with tears rolling down my cheeks, not yet wanting to say goodbye to characters i’ve come to love. 

i wish to sit down to dinner with only the one i love, or to a table filled with nearly a dozen i adore. 

i wish to exhale that one cleansing breath when the last of the dishes are done, and all that’s left is a long evening of laughter and stories and loving.

i wish for the sound of the crackling logs on the fire.

i wish to wake up one morning and remember there is not a single worry weighing me down.

i wish i could gather all the people i love—or just a good handful––and plonk down at a table where no one tries to corner the conversation and everyone takes a generous turn. and by the time i’m getting up from the table, i am marveling once again at the goodness, the depth, the hilarity of the vast human character.

i wish i could stand under the stars and behold the star-salted sky.

i wish i could pray so deeply that i felt the shoulder of God brushing against me. or catch myself walking alone in the woods and feeling a shaft of light break through the boughs, and sense that i wasn’t one bit alone, but that the God who i love was leading me forward.

i wish for those beautiful blessed souls who populate hospitals in the unlikeliest spots, the ones who radiate the gift of making you feel so deeply seen. and safe. and cocooned.

i wish for a sermon so stirring it breaks me into tears. 

i wish to hear the soul-stirring sound of the deepest laughter there is from the people i love who laugh the heartiest laugh, the sort of laughter that runs tears down your cheeks. and makes you gasp for a breath.

i wish i could answer the knock at the door and be just the person that someone needs, the shoulder to cry on, the arms to hold them steady, the one to dry the tears.

i wish i could wake up one morning and read a headline that makes me believe the good guys will finally, finally win. and that plain old gentle kindness and the raw courage to speak up for what’s fair and right and just will bend the arc toward justice once again….

that’s enough wishes for one russian doll of a wish, though the truth is i’m only beginning…


i found a few nuggets to launch this holy new year, all worthy of contemplation. the first is from the writer suleika jaouad, a comrade on the cancer road (and wife of the brilliant musician jon batiste). she’s suffering godawful setbacks these days and i’m holding her in my every day’s prayers…:

This year, we’re contemplating and reveling in the idea of magic. It’s based on a theme I’ve found myself returning to: the need to let go of the fear of the unknown and instead to open ourselves up to the mysteries and the magic of the unknown. That’s my constant work—and in this time when our world feels more uncertain than ever before, I’d venture to say that it’s all of our work.


from the inimitable mystic and theologian henri nouwen who guides my every day:

Born to Reconcile

If you dare to believe that you are beloved before you are born, you may suddenly realize that your life is very, very special. You become conscious that you were sent here just for a short time, for twenty, forty, or eighty years, to discover and believe that you are a beloved child of God. The length of time doesn’t matter. You are sent into this world to believe in yourself as God’s chosen one and then to help your brothers and sisters know that they are also Beloved Sons and Daughters of God who belong together. You’re sent into this world to be a people of reconciliation. You are sent to heal, to break down the walls between you and your neighbors, locally, nationally, and globally. Before all distinctions, the separations, and the walls built on foundations of fear, there was a unity in the mind and heart of God. Out of that unity, you are sent into this world for a little while to claim that you and every other human being belongs to the same God of Love who lives from eternity to eternity.


and, not least, my favorite, favorite after-Christmas prayer-poem from howard thurman, a prophet of his time. . .

The Work of Christmas

When the song of the angels is stilled,
When the star in the sky is gone,
When the kings and princes are home,
When the shepherds are back with their flock,
The work of Christmas begins:


To find the lost,
To heal the broken,
To feed the hungry,
To release the prisoner,
To rebuild the nations,
To bring peace among others,
To make music in the heart.

— Howard Thurman

what one wish will you make this year? (you needn’t reveal here, of course!)

bless you, each and every one for making this year more blessed than you might ever imagine. you have been there for me at every turn. even when you did not know it. and i am forever blessed by you.

p.s. photo above is from a few years back, but it captures the depth of a wish being cast to the stars and the heavens above….

the equinox of scan time: equal parts shadow and light

you start to wonder. which is another name for worry. for most of the last five months, i’ve worked at pushing it off to the edge of the frame. to keep it out of my focus. but october is coming. and with it, the next scan. the next clear-eyed peek into my insides, into my lungs, to see if anything’s lurking that oughtn’t be. 

i’ve mused about the saintly side of scan time. how it’s akin to memento mori, the ancient and holy practice of remembering our death so that we maximally live our one swift shot at this astonishing life. 

but the other side of scan time is the deeply human side. the wake-me-up-in-the-night, the try-not-to-worry-that-the-pain-in-my-ribs-is-anything-scary side. 

i feel it rumbling around the edges. the what-ifs i bat down as if a pesky mosquito that won’t leave me alone. i try not to tumble down the shadowy mole hole of imagining a call to my boys, letting them know i need another round of surgery. i try to quash the dialogue that runs through my head, my doctor’s voice telling me there’s something in the scan that looks worrisome, that needs more poking around. i try not to let cancer be the ice to my spine. 

i try not to cry.

but sometimes i get scared.

i am, always, bumpily, raggedly, very much human.

i’m still new to the tidal ebb and flow of scan time. and the scan now rising on the horizon’s edge is only my third since surgery, since they took out a chunk of my lung, since they found an uncommon cancer that sometimes decides to shuffle around in the lungs, settle in where it wasn’t before. what i’m finding here in the precinct of scan time is that when i near the one-month-to-go mark, the palpable fear comes. 

maybe each round i’ll get a little bit less wobbly (though, having lived with myself and my keen imagination for all of these years now, i tend to doubt that). maybe i won’t be tempted to imagine the worst. 

but the flip side, the smarter side, even now, even at the less-than-three-weeks-to-go mark, is that the hovering worry makes me sink deeper and deeper into the now. “today is a day when i don’t know anything’s wrong yet,” i sometimes hear myself saying. i suppose there are healthier ways to frame the day (for instance, omitting the “yet”), but once the doctor stamps the C word onto your chart, once it follows you pretty much wherever you go, it gets decidedly hard to unshackle yourself from being afraid.

remember, i’m bumpily, raggedly, very much human.

which is why a necessary ingredient on this bumpy, pock-riddled road is to enlist a battalion of comrades. some are fellow travelers i know up close and personal. a few are glorious souls i only know through their words, words they beam to me as if telepathic lifelines to put oomph where i’m lacking. 

whether they’re friends whose numbers i could find in my phone, or soulmates by circumstance, they’re all someones who know by heart how it is to live in the penumbra of cancer. what i find utterly indispensible about each and every one of them is that they put words to the rumblings i’d otherwise keep under lock and key. 

and when you hear the worst of your worries, the very words you’ve not yet dared to utter aloud, come out of a mouth that’s not yours, there comes an incomparable sigh, a sheer and certain relief to find you are hardly alone. and deep in communion, even if it’s a union to which you wish you didn’t belong.

one of my incomparable comrades is suleika jaouad, the best-selling author of between two kingdoms: a memoir of a life interrupted, the new york times writer of the “life interrupted” column, and every week in my inbox, the author of “the isolation journals,” her unfolding and intimate chronicle of her rare leukemia and relapse and bone marrow transplant. she’s one of the ones whose wisdom and courage i lean on. she infuses me. and, often, she steadies me. 

just the other day, after a weeks-long silence that signaled something amiss, suleika, who indeed has suffered yet another relapse and is back to chemotherapy, mused about radical acceptance.

she wrote:

That’s not to say I don’t feel fear—of course, I do. But strangely, the anticipation of pain can be far scarier than just being in it, actually confronting it. After my first transplant, in the years when I was cancer-free, I felt hijacked by the prospect of a recurrence and afraid that I wouldn’t be able to handle it. When it actually happened, I faced it. Knowing that, I have been trying to practice a kind of radical acceptance of whatever comes up, responding with whatever the situation calls for.

Take last weekend, for example. On Saturday, I had to go in for my last infusion of my second round of chemo. The side effects compound day-to-day, and afterward I felt awful, and I knew I’d be spending the day in bed. It had been a rainy morning, but on my way home, the sky began to clear, and I beheld a spectacular rainbow. For a moment, I glimpsed a sense of wonder. When I got to my room, I said to myself, “If I have to be in bed all day, so be it. What can I do to make this a little less miserable?” I took some anti-nausea meds and got a big glass of water. I put on my favorite face oil, wrapped myself a heating pad, gathered my pups around me, and queued up some favorite old movies to watch. Did I still feel awful? Yes. But instead of fighting it, or lamenting all of the things I wouldn’t be able to accomplish that day, I accepted it. And it turned out that staying in bed all day felt almost luxurious.

she speaks such truth. and then she somehow wraps it in what feels like a velvet blanket, somehow makes even a day in the sickbed sound a bit like a day at the spa. no wonder suleika is someone whose hand i would reach for on the darkest and scariest of days.

even though she wouldn’t know me if i bumped into her in the revolving door of sloan-kettering (a hospital entrance both of us have spun through) i wrote her right away to thank her for planting seeds of courage that some day might be my ballast. and i seized on her phrase, “radical acceptance,” to try to put it to practice. to not let my fears escape from the barnyard. to not be hijacked by fear, but to stare it square on, and to remind myself that time and again in my fair little life, i’ve steadied my knees and my spine in the fulcrum of whatever would have been my worst fear. i’ve always been braver than i’d ever imagined. i think we all are.

another one of my unparalleled big-hearted compatriot warriors who speaks to my deepest-down soul is the spoken-word poet and queer activist andrea gibson, diagnosed with ovarian cancer in 2021 and a recurrence last spring. i can’t count the times she’s sprung me to tears. tears of recognition. of stripped-naked truths. of beauty so rare and so fine i sometimes imagine she dwells with celestial beings. 

here’s a line from one of her poems that stiffened my spine and reminded me to steady my ways:

My worst fear come true. But stay with me y’all-
because my story is one about happiness
being easier to find once we finally realize
we do not have forever to find it. 

we do not have forever to find it…

i play their words over and over, as if a broken record, hoping and hoping that with each spin of needle to groove, i might finally inscribe their wisdom, their wonder, their truth, onto my heart. or at least find a strong steady hand to hold while i aim there….

what steadies you when you’re afraid?

the blessing of an open window and other wonderments. . .

the whoosh of summer’s soundtrack is back again. windows were blessedly opened as the stars beckoned last night, as the little numbers on the don’t-breathe-this scale finally slid down to mere double digits. we are breathing again.

canadian forests are burning and we here along the great lake were taking our due. as this noxious cloud wafts back and forth across the continent––making apocalyptic scenes of the brooklyn bridge, choking the air out of cleveland, blocking the view of the john hancock from chicago’s lake shore drive––we were holed up in a seasonal inversion: it’s one thing to be nose pressed to the window when snows are whirling and harsh winds are howling, but the summer sun was shining, the garden was begging attention, and we couldn’t step outside for fear of the poisons that’d swirl in our lungs (and some of us are paying particular attention to what swirls in our leftover lungs).

it’s a curious quirk of humanity, how we long for whatever it is we can’t have. and so i stood nose to the glass watching the summer without me. i longed for my wicker chair, the one that lets me watch mama wren unnoticed. and then i wondered about mama wren’s lungs, and what happens when she warbles or burbles like nobody’s business. her lungs are wee things, and i imagine the toxins that threaten my big ol’ (comparatively) breathers might all but close hers off. so now i am listening extra intently, hoping for that trademark mama-wren burble to come.

the week’s barely-breathable script was apocalyptic preamble. summer is the season of screens in the windows and doors left wide open. the indoors and outdoors, permeably conjoined. except when they’re not. except when the toxins per breath reach uninhabitable levels.

it’s a blessing to watch the curtains stir. to fall asleep to the hummings of nightfall’s lullaby. to hear the distant siren, the train in the offing, the raccoons holding their hootenanny.

when the windows are sealed, and the summer hermetically wrapped at safe distance, there’s little to do but long for the way summer once was. when sunlight glistened. and the creek tickled your toes. and long days in the woods were the very best thing you could do for your soul.

summer is back now. we can breathe again. and we can open our doors and our windows.

and i, for one, intend to breathe deeply.

teddy’s raspberries–three years in the making–finally ripe for the plucking.

summer reading from the e.b. white and kate di camillo files, a celestial pairing if ever there was…

this comes from a glorious letter di camillo, author of because of winn dixie and the tale of despereaux, once wrote to a fellow author who’d written her asking how honest a writer should be with the young children to whom they both wrote (a question that pertains just as vividly to any writing, i’d argue, and a question that has especially animated my writing in recent weeks).

“E. B. White loved the world. And in loving the world, he told the truth about it — its sorrow, its heartbreak, its devastating beauty. He trusted his readers enough to tell them the truth, and with that truth came comfort and a feeling that we were not alone.

“I think our job is to trust our readers.

“I think our job is to see and to let ourselves be seen.

“I think our job is to love the world.”

in yet another conversation di camillo refers to the writing she does as a “shortcut to the heart.”

and when she was awarded her second newbery medal (in 2004 for tale of despereaux and 2014 for flora & ulysses: the illuminated adventures), di camillo brilliantly captured her life’s work as this: “We have been given the sacred task of making hearts large through story. We are working to make hearts that are capable of containing much joy and much sorrow, hearts capacious enough to contain the complexities and mysteries … of ourselves and of each other.”


and finally, this capturing of grief by the tender and brilliant and fierce suleika jaouad, the author of the best-selling between two kingdoms: a memoir of a life interrupted, who was diagnosed with a rare form of acute myeloid lymphoma in 2011, a disease which recurred in late 2021, and for which she has had a second bone marrow transplant. she is married to the brilliant musician and magnificent soul jon batiste. and here’s what she wrote of grief:

“Grief is a ghost that visits without warning. It comes in the night and rips you from your sleep. It fills your chest with shards of glass. It interrupts you mid-laugh when you’re at a party, chastising you that, just for a moment, you’ve forgotten.” 

a more finely-grained exposition of grief i’ve not seen captured. and, by the way, suleika is exceedingly, exceedingly kind i’ve found out.


what stirred you most this week? or stifled you? and what’s topping your summer reading stack? i’ve been imagining a kate di camillo summer’s binge. and suleika’s is already on hold at my friendly local library…