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Tag: lung cancer

lung by lung

it is a strange sisterhood. it comes in out-of-the-blue phone calls that, within a sentence, pull us both into perhaps the darkest corner of our lives. “do you have time to talk?” is sometimes the precede. sometimes not even that. yesterday i got the precede. the time before i did not. (yes, that’s two such calls within the space of a month.)

i dialed the number attached to the text, and the woman who answered, a woman i barely know, suddenly inhabited the very same place i know too well, will never forget. she’d found out, the day before, that she had stage 4 lung cancer. she said it so fast — and so plainly — i had to ask her to say that again. i wasn’t quite sure i had heard what she said, couldn’t possibly have heard what it seemed like she said. she sounded so matter-of-fact when she said it.

she said it again. the day before, she’d gone in for biopsies, two of them, both in her lungs, and woke up to the surgeon telling her it was cancer, and it was stage 4, a number that scythes like a death knell.

not even a whole day later, she was working the phones, searching for doctors who would dole out what amounts to the only possible hope: chemo that just might stave off the spread, just might dial down the madness of cancerous cells that divide and multiply dervishly, devilishly, and finally deathly.

she’d heard that i too know what it is to find out cancer’s been lurking without any warning. lurking in the lungs, specifically. lurking in the very bellows of where and how you breathe.

when cancer, any cancer, is the subject at hand, you don’t need to know much about the someone you’re calling. you just call. because inside the very dark chamber in which you are finding yourself, you reach for any semblance of light seeping in. and someone who might know a doctor is all the light you might need.

so she called. and in curious ways, she sounded quite numb. as if gathering the names of oncologists, and deciding where she’d go for her daily infusions of chemo, was not too different from shopping for just the right shoes. but then the hand-grenade sentences came. when she said, “surgery isn’t an option for me. it’s all over my lungs.” and, when the subject of five-year-survival rates came up, she said plainly: “i won’t live that long.” and in between those sentences she mentioned how much she loves her life, how much she’s loved her thirty years being married to the love of her life, how her girls are her everything. it’s the whole gamut, from gut-wrenching realism to the first seeds of mourning, all in one fell swoop. and she spoke all of it without shedding a tear.

i gave her the name of the doctor i love, the doctor who pulls her stool close whenever she talks to you, presses her knees against yours, all but cups your face in her hands. i opened the door to a chamber in my heart that seems to have moulded itself into a space for those who know, for those swept into a club no one wants to belong to. but once there, we are sealed as tightly and fiercely as humans are able to be. we muster our “fight.” we pray fiercely for each other. we ride each other’s highs and lows and the muddies all in between. we laugh with the darkest of humors. we sometimes speak in a shorthand. i don’t need you to tell me how desperately you don’t want to die, to leave the luscious life you call your own; i already know. me, neither.

we speak each other’s most foreign language.

these phone calls remind me how human we are. how, within mere breaths of beginning to talk, to tell our worst imaginable stories, we can sidle so close to each other, we can almost finish each other’s sentences. at the core, there is so very much about us that isn’t so one-of-a-kind.

we humans get scared. we humans sometimes get dealt the worst possible news, news that wants to shatter us. but then, pressed against the warmth of someone else’s breath, someone’s skin, someone’s voice, we remember we’re not wholly alone.

there is someone out there who travels a similar road. someone else has heard the death-knell sentences and picked up the pieces and carried on. because that’s what humans do—till the end.

and in that associative property (the back and forth of courage and fear, of questions and answers, of hope maybe just maybe flashing off in the distance) we find the pulse beat to carry us forward. not alone. but tucked tight in a cocoon that no one wants to inhabit.

i will always, always answer those calls, make those calls, chase down the answer to questions that come in those calls. inscribe those someones on the close-to-my-heart rolls. check in just often enough, or sometimes out of the blue. because that’s what sisterhoods do. and there’s a mysterious beauty here in the chamber where no one wants to be: the truth-telling is as clear and unfettered as any i know. we might be our very most human in the space and the time when we realize time is short — so short — and all the distraction is stripped away, and we are living as close to the holy nub as we can possibly be.

i am still grieving—that raw early stage when it’s never far from mind—two of those sisterly souls who dwelled in that most sacred space, right alongside me, right till the end. their end. barely a month ago. and i can all but feel them just the other side of this worldly existence. they live in me now. i think we are sealed in the holiest union. and it all begins with the worst story we might have ever been told: you have cancer.

what’s beyond that story, that door, though, is breathtakingly, beautifully rare: the human spirit in all its magnificence; a muddling of courage and truth, of seeing through a luminous lens, asking the most eternal of questions, and sometimes just plain finding the hilarity in the ridiculous twists and turns on cancer’s godawful road.

in uncanny, indescribable ways, i am so blessed to find myself in this rarest of rooms. a room where all is magnified, and illumined, and little goes without notice. most emphatically, the marvel of every last drop of being alive.


kelly belmonte

before i go, i found a poem this week, and another poet who will someday soon be the subject of the next installment of adopt-a-poet. i found her through anglican poet, priest, singer, songwriter, and hobbit lookalike, malcolm guite, who included this poem in his anthology for lent, titled word in the wilderness: a poem a day for lent and easter. the poet, kelly belmonte, who hails from upstate new york, is the creator and founder of All Nine, a creative collaborative. she explains the “nine” as “a reference to the nine sister muses of Greek mythology. These inspirational sisters represent multiple domains of creativity and intelligence, from epic poetry to science. For any vision to move from the inside of one person’s eyelids to the physical world where it can make a positive impact, it takes a collaborative effort across multiple disciplines and an openness to many sources of inspiration. Hence, all nine.”

her latest work, the mother of all words, came out last year, and is on my library list. belmonte claims as her poetic influences an eclectic list including Kobayashi Issa, R.M. Rilke, Mary Oliver, and Frank X. Gaspar.

i found myself stunned by the interplay of the quotidian here, and the easy reach within which we find God….

How I Talk to God

Coffee in one hand
leaning in to share, listen:
How I talk to God.

“Momma, you’re special.”
Three-year-old touches my cheek.
How God talks to me.

While driving I make
lists: done, do, hope, love, hate, try.
How I talk to God.

Above the highway
hawk: high, alone, free, focused.
How God talks to me.

Rash, impetuous
chatter, followed by silence:
How I talk to God.

First, second, third, fourth
chance to hear, then another:
How God talks to me.

Fetal position
under flannel sheets, weeping
How I talk to God.

Moonlight on pillow
tending to my open wounds
How God talks to me.

Pulling from my heap
of words, the ones that mean yes:
How I talk to God.

Infinite connects
with finite, without words:
How God talks to me.

how do you talk to God?

some words are hard to say. . .

i don’t think i will ever forget the first time i heard the word cancer spoken in a sentence in which i was the unspoken subject. i was groggy from anesthesia, but there was my surgeon, leaning against the curtain in the recovery room. he was dressed in street clothes, his backpack slung over his shoulder, headed home to dinner, i imagined, with his little brood up here in the leafy suburbs, where we happen to both share the same zip code. i heard him say “it was cancer,” and i heard him say he was so surprised. i don’t think i heard much after that. and for all the days since i’ve been trying on that word. 

it’s a word that’s hard to say. it’s a word that’s hard to slip your lips around. especially when it belongs to you. and when the cancer in question is the one that was settled quite inconspicuously in your very own lung. i’ve thought a lot about the eight years since they first saw it there. no one thought it was cancer. they thought maybe it was a scar, from a pneumonia i’d once had. or an old broken rib. nothing to worry about. all those years. all those christmases and birthday candles blown. all those graduations and droppings off at college, and at law school. all those late late nights when a million worries kept me up, but never that one. never ever a worry that i had cancer in my lungs.

until december, when someone once again saw it by accident and decided we should not ignore it anymore. i owe that someone every year of the rest of my life. and while the next weeks of january into march were a wild, wild ride, it took till april 18 to finally figure out what it was, to finally figure out that the suspicious “neoplastic process” was in fact just that: neoplastic is another word for cancer. 

and it’s gone now. they cut it out. all of it, we hope. my surgeon called the other day and in the cheeriest voice i might ever have heard, he said “congratulations;” said “it’s as good a report as we could hope for, knowing it was cancer.”

i am writing the word here, because words are how i make sense of life. i have always found my way with words. words on paper most of all. words on paper even more than words in air. words on paper are the tracings across the topography of my life. i find my way stringing one word to another, groping along from one to another till the sentence ends. and right now i am in a thicket that makes very little sense. for a few days there, i could not for the life of me tell which way was north, and which was south. i was all turned around, and upside down. i wept and wept some more. 

but slowly, slowly, i am feeling my way. and i am feeling very brave. braver than i ever would have guessed. i would have guessed i’d crumble. but maybe all my crumbling is only in my imaginings. maybe, over the years, when i’ve played out my potpourri of disaster scenarios, i’ve been getting the crumbling out of the way, so that when the real thing came along i was practiced, i was ready to step boldly, bravely, even valiantly up to the plate. 

part of being brave is learning to say those two words, strung together: lung + cancer. lung cancer. i am now part of an unwelcome sisterhood; i’m among the ones to whom those words now belong, and whose lives are shaped and re-shaped thereafter and ever after. and i am linking arms emphatically with the ones who know these hauntings and these hollows. i am, so help me God, intending with every ounce of will and fierce determination to be among the ones who say aloud that we’ve had lung cancer and we are here to prove you can live beyond it. you can live with it shrinking––day by day, month by month––into the distant distance. 

i am still going to dance at my firstborn’s wedding, and my secondborn’s too (or whatever is the life event for which cakes will be ordered and flowers strung). i am going to sashay through my garden, the wise old woman who communes with birds and bumblebees and baby ferns. i will some day tell stories that include the chapter of the time they made the words lung and cancer a part of my vernacular. how never in a million years did i think those words would find their way into my narrative. but here they are. and who knows where they’ll take me, though i’ve a hunch it will be a heady, heady heart-swelling somewhere. i’m not one to leave life’s sheddings by the wayside, unstudied, unplumbed for all their wisdoms and epiphanies.

these might be the two hardest words i’ve ever said. but i am going to say them till they shrink in size, in wallop. i am going to say them till they’re stripped of high-voltage burn capacity.

we all have words that are hard to say, words we don’t think will ever be ours. words we don’t want to be ours: widow, widower, survivor, victim, divorcee, depressed, anxious, anorexic (the word that used to be my hardest one to say), amputee, diabetic, dyslexic, broken-hearted. maybe the point is to take on those words, slip our arms through their sleeves, make them a part of who we are, but not the whole of who we are. to be not afraid, nor defined solely by their simple syllables. but to allow them to deepen who we are, to add contour and dimension, to layer on the empathies. to shape our particular view of how we see the world. and where we find our place within it. 

i don’t intend to turn this into a place where we contemplate cancer. not at all. but right now, it’s the woodsy thicket in which i am trying to find my way. if i—someone who never smoked a single cigarette, someone who never lived with anyone who smoked—can bring the words out into the open then maybe, just maybe, it won’t be such a surprise to the next someone who finds herself stymied by a spot on her lung that cannot be explained. i will be the first one to wave my hand in the air, and say, please don’t wait. don’t hesitate. bite the bullet and let them have at it. find out if it’s cancer or not. don’t dawdle. cuz dawdling does not buy time. 

only courage buys time. stare it down, this cancer. let it know who’s in charge. let it know that you’ve no intention of letting it steal a day of your most precious life. 

i have always known that life is fragile precious. i’ve known that since long before the day my papa died, and i somehow kept on breathing after he was gone. i’ve known it over and over and over again. i’ve known it on the day i got married, when walking down the aisle was something i never really knew i’d know. i’ve known it when i birthed each of my two boys, one whose birth almost felt as if it was about to slip away, but i was determined, and i was not going to lose the answer to the million prayers i’d prayed. i knew it, too, the night i miscarried my baby baby girl, a night as real to me as the ones that ended with babies cradled in my arms. 

i’ve lived so many days i’d never thought i’d see. 

and i am going to live even more. and i am going to say aloud that i once had cancer in my lung, but they cut it out, and now it’s gone. and i am going to tell the story of what it’s like to live emphatically after the doctor in the recovery room tells you he was so surprised. so so surprised to find out that it was, in fact, cancer idling in my lung. 

cancer i hope and pray is gone. completely, totally, forever gone. 


the two little bits i found this week seem fitting for a day of telling hard truths. first, musician Nick Cave’s advice to a 13-year-old:

“Read. Read as much as possible. Read the big stuff, the challenging stuff, the confronting stuff, and read the fun stuff too. Visit galleries and look at paintings, watch movies, listen to music, go to concerts — be a little vampire running around the place sucking up all the art and ideas you can. Fill yourself with the beautiful stuff of the world. Have fun. Get amazed. Get astonished. Get awed on a regular basis, so that getting awed is habitual and becomes a state of being. Fully understand your enormous value in the scheme of things because the planet needs people like you, smart young creatives full of awe, who can minister to the world with positive, mischievous energy, young people who seek spiritual enrichment and who see hatred and disconnection as the corrosive forces they are. These are manifest indicators of a human being with immense potential.

“Absorb into yourself the world’s full richness and goodness and fun and genius, so that when someone tells you it’s not worth fighting for, you will stick up for it, protect it, run to its defence, because it is your world they’re talking about, then watch that world continue to pour itself into you in gratitude. A little smart vampire full of raging love, amazed by the world.”


 and next up, annie dillard on why we read and write at all….

“Why are we reading, if not in hope of beauty laid bare, life heightened and its deepest mystery probed? Can the writer isolate and vivify all in experience that most deeply engages our intellects and our hearts? Can the writer renew our hope for literary forms? Why are we reading if not in hope that the writer will magnify and dramatize our days, will illuminate and inspire us with wisdom, courage, and the possibility of meaningfulness, and will press upon our minds the deepest mysteries, so that we may feel again their majesty and power? What do we ever know that is higher than that power which, from time to time, seizes our lives, and reveals us startlingly to ourselves as creatures set down here bewildered?”

– Annie Dillard


and, this, maybe more than anything. . .

a friend who will be a lifeline sent me this late last night, and i breathed it in through my tears. we can do hard things. humans have done hard things since the beginning of time.

a little note: i am not going to share any medical details here, only the rumblings of my heart. please know that i have a team of angels on my side, medically.

what hard things have you done? and what lightened the load?