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Tag: cancer journey

so close to the bone

uncharted is pretty much the most fitting descriptor for the cartography of cancer. undiscovered nooks hide in the shadows. though not all of it is somber. sometimes, with no warning, you find yourself among an unexplored parcel for the very first time. 

i’m covered with goosebumps this week, not because my latest scan was ominous (it wasn’t) but because i am reminded again this week, viscerally so, how very damn thin this ice is—the ice that is any cancer, and mine in particular. i sat down with my oncologist the other day, and she spelled out so many truths about the merciless ways of cancer—how so many hit-or-miss variables make up each individual constellation, how some of mine fall in the you-don’t-wish-this column, and one or two don’t, how some cancers are “undruggable” (mine is) yet some of the drugs are so toxic you’re mostly relieved you don’t have to have them coursing through your veins—and it all becomes stunningly clear that there really is not much certainty or sense to the prognostication at play here. sometimes you make it through the labyrinth, sometimes you don’t. who’s to say what flicks the switch that plays out your story. 

but that wasn’t the only reason for goosebumps. 

a curious thing happens almost instantaneously and mysteriously when you find out you’ve been highjacked into cancer camp: you make fast friends. with the ones you find strolling around the campground, the ones who know the indignities of needle pokes and incision tattoos that now crosshatch your flesh; the ones who spout the most off-color jokes, and know all the words to the worries that keep you awake in the night; the ones who strip truth to the bone and don’t shy away from words that others dare not utter. 

one of those friends died this week. bruce was his name, and not too many months ago, he was the one who all but talked me onto the airplane to new york to get a second opinion, when i—the one who never has had a taste for ruffling feathers, nor for appearing to second-guess authority—was so afraid to face the cold hard reality of a cancer center whose very name registers the seriousness with which cancer is to be taken. bruce told me all about his trek to mayo clinic, and insisted i get on that plane to sloan kettering. and when i got home, he checked in to make sure i’d stayed in one piece. his wife, eileen, also my close cancer buddy (and also with ratchety-vocal-cord voice), has been one of the ones who until now has made me laugh the hardest; lately, her texts have been tearing me apart, especially when she told me she’s mostly been crying herself to sleep these last couple months.

and just yesterday i was scrolling across the internet and bumped into the news that one of the fiercest patient advocates in the world of lung cancer, a woman whose cancer (diagnosed when she was 39, and recurred multiple times) has defied all odds for 16 years, has just started another round of radiation for two metastatic nodules on her chest wall. 

when one of us goes down, the thud is felt by all. 

and so, as if never before, i am looking out at the snow-caked garden, at the beefeater-sized snow caps atop all my birdhouses and feeders, and i am whispering, whispering, inaudible prayers of pure and profound thanks. for the miracle of another winter. for the quotidian phone call from one of my boys. for the chance to sit in a near-freezing kitchen to work side-by-side my second born. for the husband who leaves his car in the snow, so i can pull into the snowless garage. and who waits till i get home late one night to eat his bowl of cereal, while i slurp my soup. 

and tough as it is to swallow, and bracing and sad as it all sometimes is, i am, in the end, more than a little grateful to be so fully awake to the whole of it: the friend whose courage i’ll carry; the blessing of a doctor who minces no words and delivers each one so bountifully, and with such tender, all-absorbing care; the miracle of any old friday or thursday or tuesday; the lungs that still work as mightily as they can; this place that lets me write it all down, because sometimes you just need a way to make sense of the blur, and this was one of those weeks. 

not because i’m dying; because i’m alive.


and with that, a poem that so deeply echoes the essence of all that pulses through me these days, and is, in many ways, the core message of book No. 6 now in the pipeline….

Praise What Comes 
surprising as unplanned kisses, all you haven’t deserved
of days and solitude, your body’s immoderate good health
that lets you work in many kinds of weather.  Praise

talk with just about anyone.  And quiet intervals, books
that are your food and your hunger; nightfall and walks
before sleep.  Praising these for practice, perhaps

you will come at last to praise grief and the wrongs
you never intended.  At the end there may be no answers
and only a few very simple questions: did I love,

finish my task in the world?  Learn at least one
of the many names of God?
  At the intersections,
the boundaries where one life began and another

ended, the jumping-off places between fear and
possibility, at the ragged edges of pain,
did I catch the smallest glimpse of the holy?

~ Jeanne Lohmann ~
(The Light of Invisible Bodies)

Jeanne Lohmann was a Quaker poet, and one of the very favorites of the great Parker Palmer. as a wee bonus i am adding here the last stanza of another one of her beauties, “what the day gives.” she is a poet in whose work i shall be poking around. here’s the stanza:

Stunned by the astonishing mix in this uneasy world 
that plunges in a single day from despair 
to hope and back again, I commend my life 
to Ruskin’s difficult duty of delight, 
and to that most beautiful form of courage, 
to be happy.


and finally a poem from one of my favorite irish poets, eavan boland, passed along to me by one of my favorite humans. simply because it’s so perfectly, perfectly glorious…..and the very definition of love in its highest order….

Quarantine
by Eavan Boland

In the worst hour of the worst season
    of the worst year of a whole people
a man set out from the workhouse with his wife.
He was walking—they were both walking—north.

She was sick with famine fever and could not keep up.
     He lifted her and put her on his back.
He walked like that west and west and north.
Until at nightfall under freezing stars they arrived.

In the morning they were both found dead.
    Of cold. Of hunger. Of the toxins of a whole history.
But her feet were held against his breastbone.
The last heat of his flesh was his last gift to her.

Let no love poem ever come to this threshold.
     There is no place here for the inexact
praise of the easy graces and sensuality of the body.
There is only time for this merciless inventory:

Their death together in the winter of 1847.
      Also what they suffered. How they lived.
And what there is between a man and woman.
And in which darkness it can best be proved.

From New Collected Poems by Eavan Boland. Copyright © 2008 by Eavan Boland.

what brought you this week the deepest sense of how very blessed you are, to be alive and able to exercise love in whatever form fills you the most?

p.s. i hope all of you who still find a seat here (after all these years; 19 next week!), or who are here perhaps for the very first time, know how very very deeply this space, and your presence here, has become one of the polestars of my life. my calendar is set by writing the chairs (every friday morning without fail); six books now have first been seeded here; and the kindness circle we’ve all built together is rare and precious in the fullest sense of that word. as the world around us has grown harsher, and the rules of engagement seem to be shifting at rapid and dizzying pace, we have rooted ourselves more and more deeply in the gentle art of caring gently for each other, offering up wisdom by the ladleful (and i mean the wisdom you offer me, offer all of us), and lifting our kindness off the page (aka screen) and into the real living, breathing world. among the things for which i am so deeply grateful, all of you dwell at the core of my heart. bless you.

hope diamond, all right

i’m not too keen on wearing my medical woes on my sleeve, and in fact i wish i could keep them locked tight in a jar at the back of the cellar. but because sometimes i can’t hide how afraid i get, and because profound wisdoms are here to be unearthed in riding the hills and vales of cancerland, i’ve thought hard about when to say what. or whether to ever say anything at all. and today, i have a story to tell that might make you smile, and might bring you hope — for whatever your own scary tale is. (and it wouldn’t seem fair to leave you thinking that happy twists are never somewhere off in the distance.)

it’s a chapter that began back in early october when my every-six-months scan came back not the way anyone wanted, and the surgeon who called to give the bad news spent less than three minutes on the phone spelling it out, including the seconds it took for him to tell me that if in fact it was a recurrence (an especially bad thing, a mere 18 months from first diagnosis) they’d consider taking out the rest of my lung. that’s a lot for a girl to swallow in less than the time it takes to peel the skin off an apple. 

he wound up telling me he wanted to push up my next scan to just after the new year, a date that seemed a grand canyon away, the far side of thanksgiving, christmas, new years, and my birthday. 

so i did what any scared person with a bolt of bad news might do: i stopped breathing, started to cry, and because i was home alone i dialed a brother i love, a brother i’ve leaned on more than once when life’s at its thickest. (it was too scary to tell my own boys or practically anyone else for that matter, not when there were so many questions and no answers in sight. my number one instinct, no matter the script, seems to always be to protect my boys from unneeded worries. so i waited till i could give them more than a basket of runaway fears.)

tears dried that ominous october morn, i got on the horn, or in this case the keyboard whose little black keys allow me to reach far and wide to my wee brigade of self-assembled experts who understand the ins and outs of my wily little cancer, a cancer that doesn’t like to play by anyone’s rules. my No. 1 expert, a fellow with nose to the microscope who studies this rare iteration as well as lovingly caring for people who have it, wanted me to board a plane and fly to salt lake city to go under anesthesia and have a little chunk of lung snipped out for biopsy: the surest way to get to the bottom of things. but he also decided in the end that it might be just as reasonable, and a whole lot less stress, to wait for the next scan in chicago, a mere four weeks difference between the two options. 

it would not be understatement to say that i was pretty much as scared as i’ve ever been for a good bunch of that time. went so far as to type up housekeeping instructions, made sure my passwords were all up to date, and even thought hard about a few other things too dark to type here. it’s what happens when you know there’s a cancer lurking inside and you’ve no idea what it’s up to, but the indications aren’t good. 

i admit to a panic attack or two before things settled down. but then i started breathing again, and the day before my birthday (the one i’d once worried would never come) i swam a mile in my little warm bath of a swimming pool (i swim with the seniors these days, and by seniors i mean the ladies who glide out of wheelchairs and into the pool where they take laps walking edge to edge of the pool.) and the day before the scan i did it again. a mile, that is. my dear mama, looked at me in that way that she can, and asked, “what are you trying to prove?” to which the answer would be, that cancer can’t catch me. as if. 

well, it took a good week for the radiologists at my big fancy medical center to get a close look at the scan and when they did they finally sent word: looks good, they agreed. and even tossed in a cherry on top when they wrote “mild improvement” in one particularly concerning spot. 

it took a minute or two for the truth to sink in, but the image that came soonest to mind was a big shimmering diamond. a blob of diamond the likes of which i’d not before pictured in such shimmering shards of luminous light. 

i felt like someone had just handed me the hope diamond, the gift of six whole months before they need to go in there and peek around again. i felt the full sweep of six months in which every sentence my boys speak isn’t backwashed by my own private fear that i won’t be around for the end of the story. 

to be told that your worries, the ones that all but froze you in fear, are lifted, are zapped, are momentarily wiped off the map, is to be catapulted into a landscape you’d thought was a no-trespassing zone. 

it’s pretty much like getting your life handed back to you on a plate. a gold-rimmed one.

you get to imagine the very few ways you wish to cherish this breathtaking time. you consider buying a pair of plane tickets and telling each of your boys to pack a bag and fly away with you for a weekend. to take long walks, and sit over candlelit dinners. to hold hands on the sands of a beach. or a bustling city sidewalk. to tell the deepest truths. and to say as many times as you possibly possibly can that you will love them till beyond the end of all time. 

you think of the moments you might be around to absorb now that you’re not being shoved toward the exit. and the peals of pure joy sure to rise up when wee dreams come true. and maybe a big one or two. 

you think of how blessed you’ll feel, day in and day out, when not an hour nor minute is taken for granted. when staring up into a starry night, or tiptoeing into the dawn will each be a moment you’d feared would not come. will be a moment of beauty you all but bathe in, every drop of it sacred and whole. 

simply because you’re alive, you’re awake, and you’re drinking it in. 

you take a deep breath once again, and you all but fall on your knees: life is giving you one more run at making it count. and you’ll not waste it. you utterly, totally, certainly promise. 


here, some of the holiest words i read this week, while working my way through a good old-fashioned case of influenza, the kind with fever and cough that send you under the blankets….

May you grow still enough to hear the small noises earth makes in preparing for the long sleep of winter, so that you yourself may grow calm and grounded deep within. 

May you grow still enough to hear the trickling of water seeping into the ground, so that your soul may be softened and healed, and guided in its flow. 

May you grow still enough to hear the splintering of starlight in the winter sky and the roar at earth’s fiery core. 

May you grow still enough to hear the stir of a single snowflake in the air, so that your inner silence may turn into hushed expectation.  

–David Steindl Rast, May You Grow Still Enough To Hear


and lastly, when you’re lying around under blankets, poking around the internet is the most fun you might find, so here’s what i found when i got curious about the hope diamond this week: 

the Hope Diamond, which happens to be blue as the sky in july, weighs in at a walloping 45.52 carats, and thus has been heralded round the world since the 18th century, though its story traces back to when it was dug from an indian mine a century earlier.

according to the mind hive that is wikipedia, its recorded history begins in 1666, when the French gem merchant Jean-Baptiste Tavernier purchased it in India in uncut form. After cutting it and renaming it “the French Blue” (Le bleu de France), Tavernier sold it to King Louis XIV of France in 1668. It was stolen in 1792 and re-cut, with the largest section of the diamond appearing under the Hope name in an 1839 gem catalogue from the Hope banking family, from whom the diamond’s name derives.

did any happy twists in a tale come upon you this week?

countdown. . .

i clambered up from the basement yesterday morn, and found myself face-to-face with a whiteout. snow falling in thickets. snow whirling wildly. snow, snow, and more snow for hours and hours and hours. 

it was all the currier & ives i needed to supercharge my countdown clock. the one that’s percolating at quicker and quicker clip as the days turn closer to wednesday a week, the eve of thanksgiving itself, when not just one but both of the boys i so love will––for the first time in almost a year––unfurl their dreams on the pillows of their long-ago boyhood beds, all nestled cozily under this mostly dependable, nearly centenarian roof. 

and i will savor the joy of kissing both on the forehead as i trundle off to bed hours before my wide-eyed night owls, or should we all stay up till the same insensible hour i will give it my best waltons’ bedtime holler, and call out from under my bedsheets and across the hall and down a few stairs, “good night, will. good night, Bear. good night, old house. sweet dreams, my beautiful boys.”

it’s been a long hard autumn, held in the vise of worries and fear the likes of which i’d not recommend. and so this coming thanksgiving is the emotional equivalent of frank lloyd wright’s trademark compress-and-release, in which the great architect intentionally magnified the vast spaciousness of a room by first pressing in the walls and the ceiling of the space leading into the room, so that upon stepping through the tight corridor and into the vaulted chamber the sense of openness would be perceived as vaster than ever. 

and so it is with the human dynamic of fear, grace, and gratitude: to walk through unbearable days, days that stretch into weeks, and weeks that stretch into more than a month, and then to find yourself falling into the arms of the human beings you most long to hold onto; it’s the pinnacle of paradise on earth, to be released from the vise and enwrapped in a love without end. 

cancer sharpens that point. cancer sometimes brings on seasons of uncertainty that are quickly populated with ghosts and demons that defy containment. i’m learning the undulations of cancer that are colored in shades of gray. interminable shades of gray. questions that come without answers. doctors who call with unwelcome news. and barely stay on the line long enough to answer a single question. and then you hang up and feel the floor drop out from under you. sometimes––if you’re me––you take the short road to doom. because that’s what worriers do. we worry. we pray for holy release.

in time, we get a grip. regain our bearings. hold our chin high, dry our tears, practice at being brave. whistle into the in-blowing winds. hold tight to the hands of the one or two who know how dark it’s become, and we fall to our knees, or fold to the ground and enter the depths of divine meditation. i’ve spent more hours with eyes closed, palms open, sitting in silence, beckoning the perpetual God-flame within, than ever before. i’ve been tempted to beg, “more time, please.” but i don’t any longer believe i can––or hold any special claim to––change God’s equation, so what i pray for is grace. is heightened attention. what i pray for is an emphatic aliveness that infuses each turn of the day with unbarred acceptance. i don’t want to blink and miss something holy.

those prayers––for grace, for keen attention, for seeing deeper than ever day in and day out, for pausing to savor––are answered, blessedly. and my own season of unending thanks coincides with that of this nation founded on pillars of moral perpetude, and the hope of equal justice for all.

the essence of my life’s gratitude has always been the improbable miracle that i became a mother. that i birthed not one but two glorious humans, and devoted the best of my heart, my soul, my breath, my being, to carving out for them a space in which they’d be cocooned in the purest love i could imagine, could muster. along the way, i’ve tossed every life line i could whenever they needed, and now, lo and behold, they’re the lifelines and i’m the one needing.

and so all these past 45 days, i have longed for only one thing: hours more to sit side-by-side the ones i so fervently sumptuously love. to giggle at their antics. to marvel at their wild-eyed wonder tales. to feel their hands squeeze mine, to be wrapped in their arms, my ear pressed to their chest, absorbing the heartbeat i’ve loved since the very first ultrasound when that echoing lub-dub-dub poured over and through me like the holiest chrism. 

this is a countdown like never before. and my heart is more than open for business. the business of loving my boys. in real time. under one shared and sheltering roof.

thanksgiving morn, a few years ago.

here’s a poem, fittingly, a prayer poem by the great madeleine l’engle, who lived by words but found herself wordless in prayer. which, indeed, is sometimes the way to our deepest depths…

Word

I, who live by words, am wordless when
I try my words in prayer. All language turns
To silence. Prayer will take my words and then
Reveal their emptiness. The stilled voice learns
To hold its peace, to listen with the heart
To silence that is joy, is adoration.
The self is shattered, all words torn apart
In this strange patterned time of contemplation
That, in time, breaks time, breaks word, breaks me,
And then, in silence, leaves me healed and mended.
I leave, returned to language, for I see
Through words, even when all words are ended.
I, who live by words, am wordless when
I turn me to the Word to pray. Amen.

––Madeleine L’Engle


and here, because i love to imagine ladling steaming bowls of soup to people i love, is my new favorite stoup recipe, lemony chicken-feta meatball with spinach from my friends at NYT Cooking (you will be licking the bowl; it’s that good):

Lemony Chicken-Feta Meatball Soup With Spinach
By Yasmin Fahr
Yield: 4 servings
Total Time: 30 minutes

Note from NYT: Some might be suspicious of the rolled oats called for in this recipe, but used in place of breadcrumbs, they help create a light and tender chicken meatball. A half-cup more is simmered in the broth, which thickens it and provides a pleasant texture. The meatballs, made with ground chicken, feta and fresh dill, swim in a lemony, spinach-filled broth that’s comforting and light, perfect for lunch or dinner. Serve any leftovers with a fresh squeeze of lemon juice to brighten the soup.

INGREDIENTS
1 pound ground chicken or turkey, preferably dark meat (i use white meat)
½ cup crumbled feta
¾ cup old-fashioned rolled oats
1 small red onion, halved (½ diced, and ½ grated, then squeezed with a paper towel to remove excess liquid)
⅓ packed cup fresh dill leaves and fine stems, finely chopped
1 tablespoon ground cumin
½ teaspoon plus 1 tablespoon ground turmeric
Kosher salt and black pepper
3 tablespoons olive oil
½ teaspoon red-pepper flakes, plus more for serving
4 cups low-sodium chicken broth
4 packed cups baby spinach (about 5 ounces)
2 lemons (1 juiced and 1 cut into wedges for serving)

PREPARATION
Step 1
In a medium bowl, add the chicken, feta, ¼ cup oats, the grated onion, most of the dill (reserve about 2 tablespoons for garnish), the cumin, ½ teaspoon turmeric and 1 teaspoon salt. Gently combine without squeezing too hard or overworking the meat. Lightly wet your palms and shape the meat into small balls, a little smaller than the size of a golf ball, about 1½ inches. (You will have approximately 25 balls.)

Step 2
Heat the oil in a large Dutch oven or wide pot over medium until shimmering. Add the diced onion, season with salt, and cook until it begins to soften, about 2 minutes, stirring occasionally. Add the remaining 1 tablespoon turmeric and the red-pepper flakes, and stir until fragrant, about 30 seconds. Push the onions to the sides as best you can, then add the meatballs. (They will be close together, and that’s OK.) Cook until browned on two sides, 5 to 7 minutes total.

Step 3
Pour in the broth and remaining ½ cup oats, then gently tilt the pot to the right and left to distribute the oats and broth without disturbing the meatballs. Bring to a gentle boil, then immediately reduce the heat to maintain an active simmer. Season with salt. Cook, gently stirring occasionally to make sure nothing is sticking to the bottom, until the oats have softened and the meatballs are cooked through, about 4 minutes more.

Step 4
Stir in the spinach and lemon juice until the spinach is wilted, about 2 minutes more. Adjust the seasoning to taste. Spoon into bowls, top with pepper and the remaining dill. Serve with lemon wedges.

what is your heart longing for this season of through-and-through thanks?

the equinox of scan time: equal parts shadow and light

you start to wonder. which is another name for worry. for most of the last five months, i’ve worked at pushing it off to the edge of the frame. to keep it out of my focus. but october is coming. and with it, the next scan. the next clear-eyed peek into my insides, into my lungs, to see if anything’s lurking that oughtn’t be. 

i’ve mused about the saintly side of scan time. how it’s akin to memento mori, the ancient and holy practice of remembering our death so that we maximally live our one swift shot at this astonishing life. 

but the other side of scan time is the deeply human side. the wake-me-up-in-the-night, the try-not-to-worry-that-the-pain-in-my-ribs-is-anything-scary side. 

i feel it rumbling around the edges. the what-ifs i bat down as if a pesky mosquito that won’t leave me alone. i try not to tumble down the shadowy mole hole of imagining a call to my boys, letting them know i need another round of surgery. i try to quash the dialogue that runs through my head, my doctor’s voice telling me there’s something in the scan that looks worrisome, that needs more poking around. i try not to let cancer be the ice to my spine. 

i try not to cry.

but sometimes i get scared.

i am, always, bumpily, raggedly, very much human.

i’m still new to the tidal ebb and flow of scan time. and the scan now rising on the horizon’s edge is only my third since surgery, since they took out a chunk of my lung, since they found an uncommon cancer that sometimes decides to shuffle around in the lungs, settle in where it wasn’t before. what i’m finding here in the precinct of scan time is that when i near the one-month-to-go mark, the palpable fear comes. 

maybe each round i’ll get a little bit less wobbly (though, having lived with myself and my keen imagination for all of these years now, i tend to doubt that). maybe i won’t be tempted to imagine the worst. 

but the flip side, the smarter side, even now, even at the less-than-three-weeks-to-go mark, is that the hovering worry makes me sink deeper and deeper into the now. “today is a day when i don’t know anything’s wrong yet,” i sometimes hear myself saying. i suppose there are healthier ways to frame the day (for instance, omitting the “yet”), but once the doctor stamps the C word onto your chart, once it follows you pretty much wherever you go, it gets decidedly hard to unshackle yourself from being afraid.

remember, i’m bumpily, raggedly, very much human.

which is why a necessary ingredient on this bumpy, pock-riddled road is to enlist a battalion of comrades. some are fellow travelers i know up close and personal. a few are glorious souls i only know through their words, words they beam to me as if telepathic lifelines to put oomph where i’m lacking. 

whether they’re friends whose numbers i could find in my phone, or soulmates by circumstance, they’re all someones who know by heart how it is to live in the penumbra of cancer. what i find utterly indispensible about each and every one of them is that they put words to the rumblings i’d otherwise keep under lock and key. 

and when you hear the worst of your worries, the very words you’ve not yet dared to utter aloud, come out of a mouth that’s not yours, there comes an incomparable sigh, a sheer and certain relief to find you are hardly alone. and deep in communion, even if it’s a union to which you wish you didn’t belong.

one of my incomparable comrades is suleika jaouad, the best-selling author of between two kingdoms: a memoir of a life interrupted, the new york times writer of the “life interrupted” column, and every week in my inbox, the author of “the isolation journals,” her unfolding and intimate chronicle of her rare leukemia and relapse and bone marrow transplant. she’s one of the ones whose wisdom and courage i lean on. she infuses me. and, often, she steadies me. 

just the other day, after a weeks-long silence that signaled something amiss, suleika, who indeed has suffered yet another relapse and is back to chemotherapy, mused about radical acceptance.

she wrote:

That’s not to say I don’t feel fear—of course, I do. But strangely, the anticipation of pain can be far scarier than just being in it, actually confronting it. After my first transplant, in the years when I was cancer-free, I felt hijacked by the prospect of a recurrence and afraid that I wouldn’t be able to handle it. When it actually happened, I faced it. Knowing that, I have been trying to practice a kind of radical acceptance of whatever comes up, responding with whatever the situation calls for.

Take last weekend, for example. On Saturday, I had to go in for my last infusion of my second round of chemo. The side effects compound day-to-day, and afterward I felt awful, and I knew I’d be spending the day in bed. It had been a rainy morning, but on my way home, the sky began to clear, and I beheld a spectacular rainbow. For a moment, I glimpsed a sense of wonder. When I got to my room, I said to myself, “If I have to be in bed all day, so be it. What can I do to make this a little less miserable?” I took some anti-nausea meds and got a big glass of water. I put on my favorite face oil, wrapped myself a heating pad, gathered my pups around me, and queued up some favorite old movies to watch. Did I still feel awful? Yes. But instead of fighting it, or lamenting all of the things I wouldn’t be able to accomplish that day, I accepted it. And it turned out that staying in bed all day felt almost luxurious.

she speaks such truth. and then she somehow wraps it in what feels like a velvet blanket, somehow makes even a day in the sickbed sound a bit like a day at the spa. no wonder suleika is someone whose hand i would reach for on the darkest and scariest of days.

even though she wouldn’t know me if i bumped into her in the revolving door of sloan-kettering (a hospital entrance both of us have spun through) i wrote her right away to thank her for planting seeds of courage that some day might be my ballast. and i seized on her phrase, “radical acceptance,” to try to put it to practice. to not let my fears escape from the barnyard. to not be hijacked by fear, but to stare it square on, and to remind myself that time and again in my fair little life, i’ve steadied my knees and my spine in the fulcrum of whatever would have been my worst fear. i’ve always been braver than i’d ever imagined. i think we all are.

another one of my unparalleled big-hearted compatriot warriors who speaks to my deepest-down soul is the spoken-word poet and queer activist andrea gibson, diagnosed with ovarian cancer in 2021 and a recurrence last spring. i can’t count the times she’s sprung me to tears. tears of recognition. of stripped-naked truths. of beauty so rare and so fine i sometimes imagine she dwells with celestial beings. 

here’s a line from one of her poems that stiffened my spine and reminded me to steady my ways:

My worst fear come true. But stay with me y’all-
because my story is one about happiness
being easier to find once we finally realize
we do not have forever to find it. 

we do not have forever to find it…

i play their words over and over, as if a broken record, hoping and hoping that with each spin of needle to groove, i might finally inscribe their wisdom, their wonder, their truth, onto my heart. or at least find a strong steady hand to hold while i aim there….

what steadies you when you’re afraid?

scan time

so, some months ago now, in the days not long after my first follow-up lung scan (they come at six-month intervals) when i was marinating, once again, in the new measure of time that comes when they’ve peered under your ribs and found something not welcome there, i started to think of how this close watch-keeping snaps me into an attention that echoes an ancient spiritual practice. i started to think of how taking my life in abbreviated brackets of time, six months per dose, compels me to pay attention to the nth power, to relish each and every bead of time, from the quotidian to the ones that break you out in goosebumps.

so i did what i do: i sat down to start typing. i peeled back my shy parts, and let the raw truth come tumbling onto the page (aka screen). i try to put things in words because maybe just maybe there’s someone out there looking for someone who knows how it feels, how scary it is, and how maybe just maybe there’s a way to turn that fear into fuel: to be more alive than before the word cancer came barging into our lives. that i found it, and find it, a spiritual tether, to live my life in what i think of as scan time, well, maybe it was worth saying aloud.

so america magazine, the journalistic home base of the american jesuits, an order of priestly folk known for their piercing intellects and forward-thinking ways (although when my sweet husband once asked a priest friend of ours if he was a jesuit, the friend — a diocesan priest, who grew up in his father’s south side chicago tavern — shot right back with “no, i’m a real priest,” which tells you how jesuits are regarded in some corners), decided to print my little essay in their june issue, and unbeknownst to me it showed up online last night.

i’m a bit shy about social media these days, but the chair is a place i think of as safe, the closest virtual approximation to the old maple table scattered with mugs and spoons and the crumbs from someone’s lemon-blueberry bread. so, i’m leaving it here. with big thanks to america magazine, and an even bigger prayer that that one someone (someone living in her or his own scan time) just might find it, and welcome the company…

Living on Scan Time: My life after a cancer diagnosis
Barbara Mahany
May 16, 2024

Ever since the murky hour when, through an ethereal fog, I made out the silhouette of my surgeon beside the bed where I lay tethered to tubes, ever since I heard him utter the words, “Turns out it was cancer; I was really surprised,” and I pressed my hand to where half my lung used to be, I have been living in Scan Time.
 
Scan Time is time reordered, narrowed, heightened. Scan Time is time abbreviated, shrunken to digestible, perceptible segments. It comes in the immediate wake of finding out you have cancer—in my case, lung cancer. Now that my tumor and a good chunk of lung have been removed, watchkeeping—scans every three to six months, for at least five years—is my first line of defense against its return.
 
Appointments are made a half year out; the date on the calendar becomes your benchmark, the point as far in the distance as you will let yourself see. The screens in the waiting rooms at Memorial Sloan Kettering Cancer Center flash with a digital message: Scanxiety? We understand that waiting for scans can be hard. Call our social work team now. Everyone grasps that whatever the future is, it hinges on what they find when the all-seeing machine—a Goliathan O-ring that swallows you whole—peers deep inside your body.
 
You are told not to move once you climb onto the hard plastic bed that makes me think sarcophagus, especially as it glides eerily into the shadowed encasement. And then comes this contender for the world’s most redundant instruction: “Hold your breath,” the disembodied words piped in from what seems an otherworldly station.
 
In lieu of breathing, you pray mightily that no new ghostly suspicions emerge. And then you wait. And wait.
 
Should the all-clear be granted, you are etch-a-sketched back to a clean slate.
 
Scan Time: the lease on your life, meted out in six-month installments.
 
Turns out, it’s something of a blessing, one that sharpens the focus on the miracle of each moment, peels away the anesthetization to time that, for most of us, is default mode. We live, most of us, thinking ours is a timeline that extends into the far-off far off. And that dulls the noticing of each never-again day.
 
But when you’re told you’ve got cancer, when you feel the iron weight of that sentence fall with a thunk on your every breath, the bracketed finiteness of time—of life itself—now doled out in measures of half a year per dose, it amplifies everything. Each pulsebeat of living is magnified, glorified. It’s time distilled to its most sacred concentration.
 
And it draws out a knowing that’s deep and profound, one that’s not too dissimilar to an ancient spiritual practice that understands the holiness in contemplating our death. Or, in my case, contemplating the reduction of time, the days I count on my half-year watch. At first glance, that might sound morbid. But it’s emphatically the opposite.
 
Memento mori is the age-old practice of remembering that you will die. It’s an ancient philosophical thread, a spiritual practice woven across time and traditions (be they moral or religious traditions) from early Stoicism to medieval Christianity, from ancient Judaism to the central teachings of Buddhism.

St. Benedict of Nursia, in his sixth-century book of precepts known simply as the Rule, exhorted his monks to “keep death daily” before their eyes. It’s an awareness that winds its way through most world religions, although barely so in the West, where we do all we can to push away any whiff of dying or death.
 
To understand that our days are not infinite, not a bottomless pour, spilling one after another so dizzyingly that we are numb to each dawn’s awakening, is to tight-squeeze our focus on how precious this time of ours is. Pope Francis, in his apostolic exhortation “Laudate Deum,” posed three critical questions: “What is the meaning of my life? What is the meaning of my time on this earth? And what is the ultimate meaning of all my work and effort?”
 
Those questions take on an inescapable edge when held up in six-month increments. We’re a simpler people than we sometimes pretend. We’re keener at grasping hard truths when they’re pressed up against us. Cancer presses hard truths. Scan Time sharpens focus, propels us deep into seizing the day. Seizing each blessed day.
 
Once upon a time, I was a nurse who took care of kids with all sorts of cancers. Back in the days before scanners were part of every oncologist’s medical tool kit, I remember more than anything how those kids somehow eclipsed the cancer in their lives. They shoved it out of the viewfinder, didn’t let it intrude on however many days were counted in their too-short lives. Theirs was an innate genius—not a day dithered away—that echoes across the decades.
 
I remember how kids with an amputated leg and a hospital-issued pair of crutches clocked how swiftly they could race down the hall, without crashing into medicine carts­­—or their nurses. Or how, as soon as the retching from chemo ended, they’d order up midnight pizzas and hunker down in the supply closet for a tête-à-tête with their IV poles and their bald co-conspirators. Or how, one Halloween, one of my favorites, a 12-year-old with a tumor lodged in her spine that left her paralyzed from the waist down, didn’t let that stop her from slopping papier-mâché all over her bedsheets, as she crafted me a green, tempera-painted pumpkin head and crowned me her Irish Pumpkin Queen.
 
Those children made time count. And they didn’t need scans to prompt it. All these years later, I draw on their wisdom, though I lean on the scanner—a machine that might see what is inside me but not what lies down the road.
 
Scan Time, I’ve realized, propels me to live sacramentally, to hold time to the light, to behold its shimmering brilliance, the facets of my life I consider most indispensably sacred. And to enfold myself in each anointed hour..
 
I might be mesmerized by a butterfly. Might sit down to pen that long-overdue confession. Might devote my perishable days to those few souls I cannot bear to leave behind, revel in the litany of whimsies we’ve long promised we’d get to, indulge with abandon. Or maybe I’ll travel to pockets of the world where my heart and my hands—and my long-expired nursing license—might be put to good use.
 
Scan Time is palliative, too; it offers something of a balm. Where the arithmetic of five-year-survival rates sets me to trembling as I weigh cold, hard probabilities, I’m washed in some iteration of calm when I set my sights on half a year at a time. Like a mountain climber trekking past mile marker after mile marker, I keep my eyes on the immediate path and don’t try to peek around circuitous, unseeable bends.
 
Yet underpinning each round is the knowing this might be the last, the one with expiration. One of these rounds, you suppose, the call won’t be so freeing. And time then will shift again. Day after day the distilling comes, until each last minute holds all that you love, all that desperately matters.

(reprinted exactly as it appears on the pages of the june 2024 issue of america: the jesuit review of faith and culture)

for the record, my latest scan looked clean. and, in the spirit of seizing the days, we’re off to rome in just a few days. the four of us, G-d willing. we have four valid passports among us, and after having to leave one of us behind last year when a passport was found wanting, (not in accord with the french rule that your passport must be valid for 90 days after leaving the country, and our firstborn’s was a mere few days short) this adventure in world travel is one big giant hallelujah.

what are the forces in your life that propel you to seize each and every day? and or any other thoughts that might be burbling about in your beautiful minds….

turn, turn, turn . . .

“Ecclesiastes was onto something,” i wrote, as i dove into a meditation on the notch-by-notch turning of the dial, the dance between heaven and earth that is the shifting of season, as one fugue surrenders to another and another, over and over and over again.

and here we are again, at another cusp. the autumnal equinox. tonight (or, rather, tomorrow morning in the wee wee hours) at 10 minutes to 2 here in the heartland, central time zone.  

in my musing on seasons, in the pages of that latest little book of mine, the book of nature, i prattled on a bit longer. . .

“Each season, in four quarter turns, brings forth its own headlines. There’s the yin and yang of spring, the season of exodus and resurrection, of equal parts heartbreak and magic. ‘The fizz and the roar of the land coming back to life again,’ is how Robert Macfarlane brilliantly captured the vernal animations. There’s summer with its invitation for indolence, for taking it slow, savoring, all but licking your plate of its succulence. And autumn, the season that changes its tense, is letting-go time, the beginning of burrowing in, when the shadow grows longer and sunlight goes amber, when half the globe is stripping to its essence, revealing its unadorned spines. Then there’s winter, the stillest of all, when deep-down stirrings are all but invisible, and we learn to keep faith. Sometimes I think God couldn’t decide which channel was best, so the heavens kept jabbing the clicker. 

“It’s a wonder reel that never ends, yet never truly repeats—a koan for the ages. 

“I often contemplate the geometries of time, how the year is not an inescapable circle, a shape that would get us nowhere, but rather it’s a spiral, and from one winter to the next we’re never the same, always ascending, closer to the holiness we were meant to be—or so that’s the hope and the plan, anyway. Maybe that’s why God keeps this seasonal show on autoplay: maybe God knows how dense we are in the figuring-it-out department, how some of the lessons we need to review. Over and over and over again. Most especially at the fraying hems of the seasons when the doubt begins to creep in, the fear that we’ll never be loosed from whatever it is that tangles and knots us, and God needs to show us those few immutable threads: Resurrection comes. Quiet must follow exuberance. So too dormancy. Surrender to earth’s holy rhythms, the very ones that pull the tides and the flocks, paint the woods, star- stitch the night sky. Expect heartbreak. Await healing. Start all over again. 

“’The seasons are our scripture text,’ writes Celtic spiritualist Christine Valters Paintner. ‘This earth we are riding keeps trying to tell us something with its continuous scripture of leaves,’ echoes William Stafford, a poet and pacifist who referred to himself as ‘one of the quiet of the land.’ To the ancient Celts, the unfolding of the seasons read as ‘gospel without haste.’ And Walt Whitman, America’s latter-day Homer, put something of a military spin to it when he wrote that ‘nature marches in procession, in sections, like the corps of an army.'”

i prattle on a few pages more. but i’m already thinking anew about seasons. life, when we’re paying attention, comes in all sorts of seasons. some, clocked by the sun. some, by the tumults and percolations from deep down in our hearts and our souls.

the season of my soul that i’ve been dwelling in all these past months is one that opened in mystery, back when every day was bringing another scan, another long wait, another doctor’s uncertainty. then, when the surgeon finally extracted the answer, “it’s cancer,” i landed in shock and bewilderment. and ever since i’ve been encountering an underworld, a sometimes murky, sometimes brilliantly glistening world potholed with reams of unanswered questions and populated by fellow travelers who nearly always, uncannily, know just what to say and just what i’m thinking. it’s those fellow travelers who have thrown me life rope after life rope. just when i begin to feel the walls closing in, one of them pings me with hope. or pure simple kindness. or laugh-out-loud irreverence (eileen N i am looking at you!).

one thing i know, which i am going to be thinking about for a long time to come (and trying desperately to put into words), is how love truly is a magnetic force field all its own. i can be teetering at the edge of some quicksand-y bog, and all of a sudden, out of the blue, kindness will come. and kindness, love’s gentle sister, can shatter the darkness to shards. kindness makes you not all alone. kindness holds your hand and squeezes it so tightly it won’t let you dangle. or drop. or run out of air.

just this week, a brilliant brilliant poet friend of mine sent me a note. and it might have been one of the wisest, kindest, gentlest things i’ve read in a long time. he wrote:

“You have spent a lifetime thinking and feeling deeply.  In my experience of living like that, I’ve found that pains are more painful and joys more joyful.  I think it also means that you are better able to face the sort of scary stuff you’re now facing.  I hope that your lifetime of thinking and feeling deeply gives you the strength to deal with this face-to-face…whatever ‘this’ ends up being.”

and so, my prayer as i look to my first post-surgical scan in the weeks just ahead, is that i begin to move now into a season where the edges aren’t so raw, and the fears aren’t quite so suffocating. there is love all around, and i know it will save me. no matter what comes.

tell a story of a kindness that saved you.

the apple slices above, already doused in caramel-y bath, are my sweet line cook’s first attempt at pie baking. his slicing alone impressed the heck out of me. just a month into the job at one of chicago’s finest eateries and the kid is picking up tricks. and pie recipes too. pretty sweet living at our house.

may this autumn, season of awe, of turning in and deepening, enrobe you in the brilliance you reach toward….

and a big giant thank you to each and all of you who have lavished me with kindnesses and love in this long season now turning…

p.s. i’m writing this from a hotel in ohio where tonight, squeaky squawky voice and all, i am getting up to a podium and giving a keynote address on the blessed book of nature…

voila!

they call it grounding for a reason . . .

mistletoe (now studied for its tumor-shrinking capacities) fights “convulsion fits, the apoplexy, palsy, and vertigo.” (elizabeth blackwell, 1737)

there’ve been days of late when i feel dizzy, dizzy with a lightheadedness that comes from being afraid, from not knowing, from wondering if i’m standing on a very thin edge, and worrying about what might swallow me. 

dizzy from trying to figure things out on my own, because doctors don’t always tell you all you need to know. so you piece it together the smartest ways you know. 

on those dizzying days, the days that come because it seems my cancer is more complicated than i was first told, i all but plant myself –– ground myself –– in this holy earth. i listen for the cardinal’s aubade at the hour of first light, as the inky molecules of night dissolve into the tissue-paper pink of dawn. i pluck flowers with whimsy and abandon, and tuck them willy-nilly into wee tiny bottles that line my sink and my windowsill, and make me dizzy with short breaths of joy. i stare into the depths of the starry night. i all but beg all the heavens and earth to enfold me. 

if creation is holy, and i believe it is, if holy God is the spark that animates the whisperings of the cottonwood’s quaking and the duet of the butterfly couplet, and i believe that God is, then this holy earth is here for more than just astonishment and wonder. 

this holy earth is here for healing. 

for healing what’s broken inside. deep inside. and broken in ways where you barely recognize the pieces, and can’t quite find the way to piece them together. 

holy earth has offered its healing since the beginning. the very beginning. 

foxglove

sometimes, it’s straight-up medicinal. the foxglove, a magnificent stalk dangling with deep-throated bells, is the font for digitalis, the cure for a galloping heart. coneflower is where we pluck echinacea, the compound that chases away a cold. even morphine, the pain killer to which i’m allergic, comes to us from the fields of poppies that sway in the mountains of turkey and burma. and it was madagascar periwinkle, described as a “carefree annual,” that gave its leaves to heal the kids with leukemia i cared for so long ago. (how gobsmacking miraculous is each of these earth-given cures?)

sometimes, it heals in ways that infuse without compound or molecule. sometimes, pharmacology is not in the equation. but the healing is as certain, as deep, as true, as that from any pill or tonic i’ve ever swallowed or slurped from a spoon. 

i was drawn back to the groundedness that comes from this earth, to the veritable apothecary of cures upon which we dwell –– both the medicinal and the ethereal (the ones that most often infuse me) –– when i stumbled upon a poem-slash-essay in orion magazine the other day. it was titled “11 interventions in the 10 days of your dying,” and, one by one, it ticks through the litany of earth’s holy graces that saved its writer as she watched her husband die. it ends in this coda: 

XI.
Katydids

I have kissed you goodbye, made the calls, packed our things. I step out into a hot summer midnight to the paeans of katydids ringing the trees. The only conceivable response is to set down our bags and bow.

trebbe johnson

i read that its author, a blessed woman named trebbe johnson, is a writer, wilderness leader, and founder of a global community that goes by the name “radical joy for hard times,” a community that describes itself as “devoted to finding and making beauty in wounded places.” sign me up, say i! 

because poking around is my default mode, i poked around long enough to peek into trebbe’s newest book, fierce consciousness: surviving the sorrows of earth and self, a book i’m ordering up from my friends at the library. here’s one paragraph that just might pull me out of the cold, dark well where i’ve been splashing about: 

so joy is what i’m seizing. joy with its amazing, even if only momentary, loft. startling joy. joy that comes up and grabs you at the heart, and taps on your chest long enough for you to notice. joy is the thing that carries us forward when our feet might feel stuck in the muck. 

joy comes in so many colors, and sounds, and serendipities. joy comes when someone breaks into a particular smile, and zings straight to your heart. joy comes when i sit here typing (another source of deep grounding i’ve noticed) and a word or three pop out in a particular order, one i’d not realized would happen, nor even imagined. 

joy, to me, is when an old friend i love as dearly as life calls me out of the blue, and out of the decades. just after i’ve walked in the door from a harrowing too many hours in the ultrasound chamber. joy is the sound of his voice when he tells me something he was reading felt like “a theological poem from the heart of God.” joy is remembering how deeply i loved him, my dear friend the priest who’s as joy-filled and funny and holy as just about anyone i’ve ever known.

and joy, nearly every day, is what pours from the throat of the cardinal, and the wing of the butterfly whirling. and the way the sunlight darts and illuminates. 

and joy, strung like beads on a string, just might save us. no matter the darkness. 

what radical joy is saving you these summery days?

seneca, ancient roman philosopher

p.s. i should probably listen to the old roman, seneca, who has this to say about groundless fears:

“There are more things … likely to frighten us than there are to crush us; we suffer more often in imagination than in reality.”

and i should probably pay heed to his follow-up advice: 

“What I advise you to do is, not to be unhappy before the crisis comes; since it may be that the dangers before which you paled as if they were threatening you, will never come upon you; they certainly have not yet come.

“Accordingly, some things torment us more than they ought; some torment us before they ought; and some torment us when they ought not to torment us at all. We are in the habit of exaggerating, or imagining, or anticipating, sorrow.”

and here’s his kicker, quoting epicurus, an old greek philosopher: 

“The fool, with all his other faults, has this also, he is always getting ready to live.”

we should heed the ancients, is the moral here…

p.s.s. dearest chairs, i want to be sure you know that there is no need to worry about me. i am finding my way, and have chosen to be truly honest with you in the wake of my medical mystery tour (though sparing any medical details, as this is not the place for that). i don’t intend to write too often on the subject, but when it interlaces with whatever leaps out from my emotional landscape for a chosen pondering, i won’t skirt around it, and i will always write true. so when i write of being afraid, it’s because that is how this is, this thing that has boggled me and thrown me into territory i never would choose to enter. there are days that leave me gasping for breath and hope. and there are days where i can be utterly swept into joy upon joy. mostly, it’s just that this is all new, and uncharted. and i didn’t see it coming. i have always taken life and its emotional obstacles head-on. my knees might buckle, but my spine stays strong. and the only way i know is the truth way. we are all humans who find ourselves afraid. and i’m not afraid to say so. because in our vulnerabilities, we discover our strengths. especially when there are glorious hands to hold all along the way….

maybe acres of flowerpots would help. . .

in which i tell the truth and let on that this is a bumpy road right in here…

my summer companion, a fellow named tedd, leapt into the passenger seat, as he is wont to do these days. he loves nothing more than wending his way through the city, curiosity propelling the route. we stopped along the way, biscuits with cheddar and honey, fuel for the road. he took notes of places he’d want to come back to, the romanian sausage shop, the honeybear pancake house where the windows were bursting with clouds of silk flowers.

we were headed to a chicago institution, a garden shop that’s sprawled across city blocks. a garden shop that upholstered my very first garden, long long ago. we were looking, allegedly, for a fountain whose splash would punctuate the summer sounds, whose soothing whoosh might lull us into that fugue state that comes when you plop in a chair and listen to all that the world has to offer.

i love my companion more than life, and i love our urban adventures. but truth is, there was yet another uninvited passenger in the old red wagon, and its name was fear. i am inhabited of late by runaway fears, and worries, that this cancer has let loose and is running amok in odd parts of me. it’s too scary to say aloud to the people i love, so i mostly hold it inside. except for here, where words tapped out on keys have always been my one certain release valve.

it seems that two months after the day i first heard the words “it was cancer,” i’ve been caught in what’s likely an inevitable gulch. it’s a lot to absorb. it’s a lot to have half your lung up and cut out, sent off to pathology, where science-y folk slice it apart and mark it with names, stamp it with numbers that scare and confuse you. even the oncologist the other day said as much, though i think her words were something along the lines of “it rocks your world, especially when it’s right there in your chest.”

i was listening to a podcast the other day, a podcast for people with cancer (i still gulp when i write phrases like that, realizing i’m now among them, the people with cancer), and they talked knowingly about “the middle-of-the-night questions,” the ones that basically all circle back to “am i going to die?” there is solace, much solace, in knowing how universally some of this hits us. we are all human beings, a motley collection of bones and flesh, of freckles and smiles that wrinkle our faces in particular ways. we all hope big, though my big is different from yours. and we’ve all suffered hurts we’ll never forget, even if we’ve pushed them off to the side. and a lot of us get scared. the thing about cancer –– or any one of the other life-altering diagnoses –– is that it strips away so very much of the pretense. it’s brass tacks, and un-glittered questions. it’s a swift dunk in the truth-telling end of the pool, where you dispense with roundabout thoughts and spit out the unedited ones. the ones you might not bring up in the produce aisle, sifting through the bunches of carrots, or reaching for the ripest avocado.

once you have cancer, and find out the one or two others in your life who are on the same road, it’s like you’re ushered in to a particular locker room, where everyone walks around with the same flimsy towels, and no questions are barred. where you can say out loud those things that keep you awake in the night. and, somehow, putting breath to the words, seeing the knowing in the eyes of the one to whom you are talking, reminds you, over and over, how very much we all want to cling to this life we have built, this life filled with people we love, and dreams we still hold.

i’m thinking i’m struggling because all of this is so new, and it still feels like it came out of the blue. and it knocked the breath right out of me. i keep thinking that once i get one of those scans under my belt, the ones that will come every six months, i might settle in to the notion that maybe the cancer is gone. or at least settled back to its indolent state, my couch potato of a cancer, as the doctors proclaimed it (after all, it had been lolligagging down at the bottom of my lung for eight long years before anyone realized what trouble it was).

i realize i can’t call my doctor every time there’s an odd sensation — say, like the lump i feel in my armpit — or maybe i should just get a diagnostician on retainer, one who wouldn’t hold it against me for all of my worries.

somehow or other i am going to find my way to the other side of this rather dark cloud.

i intend to get on my knees. with trowel at my side. and a big jug of pellets, the ones that give plant roots a boost. while i’m down there i intend to dig deep into my very own soul, open up a portal to the God who animates the whole of me, and the whole of this earth.

deep in the night i spend plenty of time asking “those” questions. but i also spend just as much time lying in silence, holy silence, channeling the God in whose palm i am trying to rest, aching to rest.

i tend to find God when i’m out in the garden, or lying in the impossible dark. i tend to find God, too, when i tell the whole truth, and the balm comes — Holy Balm comes — to settle deep in the cracks.

how do you find your way to the other side, when the dark clouds come, or the wall of fear feels too high to scale?


i did find a couple poems i was going to leave here today, but i will save them for another day. and simply close with this blessed thought from rabbi abraham joshua heschel, one of my great, great sages…

To pray is to take notice of the wonder, to regain a sense of the mystery that animates all beings, the divine margin in all attainments. Prayer is our humble answer to the inconceivable surprise of living.

Abraham Joshua Heschel
photos (here and above) by teddy

p.s. a delightfully joyful thing did happen this week when, lo and behold, i discovered that none other than richard rohr, the great modern-day mystic, had quoted from The Book of Nature in his daily meditation for tuesday. and i’m getting back in the saddle this weekend, for a nature walk with an oak park synagogue, a two-hour radio show with a pittsburgh priest i’ve come to love, and a trek to milwaukee tuesday night for a conversation with the journal sentinel’s book critic, jim higgins, at the boswell book company, an east side literary institution.

p.s.s. happy blessed father’s day to the brilliant fathers who sometimes gather here…