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Category: cancer journey

December 5, 2025

so close to the bone

uncharted is pretty much the most fitting descriptor for the cartography of cancer. undiscovered nooks hide in the shadows. though not all of it is somber. sometimes, with no warning, you find yourself among an unexplored parcel for the very first time. 

i’m covered with goosebumps this week, not because my latest scan was ominous (it wasn’t) but because i am reminded again this week, viscerally so, how very damn thin this ice is—the ice that is any cancer, and mine in particular. i sat down with my oncologist the other day, and she spelled out so many truths about the merciless ways of cancer—how so many hit-or-miss variables make up each individual constellation, how some of mine fall in the you-don’t-wish-this column, and one or two don’t, how some cancers are “undruggable” (mine is) yet some of the drugs are so toxic you’re mostly relieved you don’t have to have them coursing through your veins—and it all becomes stunningly clear that there really is not much certainty or sense to the prognostication at play here. sometimes you make it through the labyrinth, sometimes you don’t. who’s to say what flicks the switch that plays out your story. 

but that wasn’t the only reason for goosebumps. 

a curious thing happens almost instantaneously and mysteriously when you find out you’ve been highjacked into cancer camp: you make fast friends. with the ones you find strolling around the campground, the ones who know the indignities of needle pokes and incision tattoos that now crosshatch your flesh; the ones who spout the most off-color jokes, and know all the words to the worries that keep you awake in the night; the ones who strip truth to the bone and don’t shy away from words that others dare not utter. 

one of those friends died this week. bruce was his name, and not too many months ago, he was the one who all but talked me onto the airplane to new york to get a second opinion, when i—the one who never has had a taste for ruffling feathers, nor for appearing to second-guess authority—was so afraid to face the cold hard reality of a cancer center whose very name registers the seriousness with which cancer is to be taken. bruce told me all about his trek to mayo clinic, and insisted i get on that plane to sloan kettering. and when i got home, he checked in to make sure i’d stayed in one piece. his wife, eileen, also my close cancer buddy (and also with ratchety-vocal-cord voice), has been one of the ones who until now has made me laugh the hardest; lately, her texts have been tearing me apart, especially when she told me she’s mostly been crying herself to sleep these last couple months.

and just yesterday i was scrolling across the internet and bumped into the news that one of the fiercest patient advocates in the world of lung cancer, a woman whose cancer (diagnosed when she was 39, and recurred multiple times) has defied all odds for 16 years, has just started another round of radiation for two metastatic nodules on her chest wall. 

when one of us goes down, the thud is felt by all. 

and so, as if never before, i am looking out at the snow-caked garden, at the beefeater-sized snow caps atop all my birdhouses and feeders, and i am whispering, whispering, inaudible prayers of pure and profound thanks. for the miracle of another winter. for the quotidian phone call from one of my boys. for the chance to sit in a near-freezing kitchen to work side-by-side my second born. for the husband who leaves his car in the snow, so i can pull into the snowless garage. and who waits till i get home late one night to eat his bowl of cereal, while i slurp my soup. 

and tough as it is to swallow, and bracing and sad as it all sometimes is, i am, in the end, more than a little grateful to be so fully awake to the whole of it: the friend whose courage i’ll carry; the blessing of a doctor who minces no words and delivers each one so bountifully, and with such tender, all-absorbing care; the miracle of any old friday or thursday or tuesday; the lungs that still work as mightily as they can; this place that lets me write it all down, because sometimes you just need a way to make sense of the blur, and this was one of those weeks. 

not because i’m dying; because i’m alive.

and with that, a poem that so deeply echoes the essence of all that pulses through me these days, and is, in many ways, the core message of book No. 6 now in the pipeline….

Praise What Comes 
surprising as unplanned kisses, all you haven’t deserved
of days and solitude, your body’s immoderate good health
that lets you work in many kinds of weather.  Praise

talk with just about anyone.  And quiet intervals, books
that are your food and your hunger; nightfall and walks
before sleep.  Praising these for practice, perhaps

you will come at last to praise grief and the wrongs
you never intended.  At the end there may be no answers
and only a few very simple questions: did I love,

finish my task in the world?  Learn at least one
of the many names of God?  At the intersections,
the boundaries where one life began and another

ended, the jumping-off places between fear and
possibility, at the ragged edges of pain,
did I catch the smallest glimpse of the holy?

~ Jeanne Lohmann ~
(The Light of Invisible Bodies)

Jeanne Lohmann was a Quaker poet, and one of the very favorites of the great Parker Palmer. as a wee bonus i am adding here the last stanza of another one of her beauties, “what the day gives.” she is a poet in whose work i shall be poking around. here’s the stanza:

Stunned by the astonishing mix in this uneasy world 
that plunges in a single day from despair 
to hope and back again, I commend my life 
to Ruskin’s difficult duty of delight, 
and to that most beautiful form of courage, 
to be happy.

and finally a poem from one of my favorite irish poets, eavan boland, passed along to me by one of my favorite humans. simply because it’s so perfectly, perfectly glorious…..and the very definition of love in its highest order….

Quarantine
by Eavan Boland

In the worst hour of the worst season
    of the worst year of a whole people
a man set out from the workhouse with his wife.
He was walking—they were both walking—north.

She was sick with famine fever and could not keep up.
     He lifted her and put her on his back.
He walked like that west and west and north.
Until at nightfall under freezing stars they arrived.

In the morning they were both found dead.
    Of cold. Of hunger. Of the toxins of a whole history.
But her feet were held against his breastbone.
The last heat of his flesh was his last gift to her.

Let no love poem ever come to this threshold.
     There is no place here for the inexact
praise of the easy graces and sensuality of the body.
There is only time for this merciless inventory:

Their death together in the winter of 1847.
      Also what they suffered. How they lived.
And what there is between a man and woman.
And in which darkness it can best be proved.

From New Collected Poems by Eavan Boland. Copyright © 2008 by Eavan Boland.

what brought you this week the deepest sense of how very blessed you are, to be alive and able to exercise love in whatever form fills you the most?

p.s. i hope all of you who still find a seat here (after all these years; 19 next week!), or who are here perhaps for the very first time, know how very very deeply this space, and your presence here, has become one of the polestars of my life. my calendar is set by writing the chairs (every friday morning without fail); six books now have first been seeded here; and the kindness circle we’ve all built together is rare and precious in the fullest sense of that word. as the world around us has grown harsher, and the rules of engagement seem to be shifting at rapid and dizzying pace, we have rooted ourselves more and more deeply in the gentle art of caring gently for each other, offering up wisdom by the ladleful (and i mean the wisdom you offer me, offer all of us), and lifting our kindness off the page (aka screen) and into the real living, breathing world. among the things for which i am so deeply grateful, all of you dwell at the core of my heart. bless you.

24 Comments
August 15, 2025

prodigal professor

professorial parking
we make welcome signs at our house
‘from dome to dome, welcome home,” reads the top one.

i poured myself out of bed minutes before three last night, as i seem to do like an old swiss clock. and in the murk of the dark, as i stumbled toward the bathroom, a thought crept forth reminding me this wasn’t any old middle-of-the-night trip to the bathroom, this was a night in which the professor was in the house. sleeping under this old roof. back in the room where he grew up.

it’s been 13 years, and a whole lot of law school, and bar exams, and zigzagging across the country. there’ve been trips to the ER that scared the behoozies out of me, and weeks that were hard, and hours that were glorious, but the kid with the dream, the kid who with all his heart was hoping to get back to this middle-of-america, one-of-a-kind american city, that happens to be “home,” is back. for at least a year, an equation my mind is still trying to absorb. any time he’s been here in all these years, it’s only been for a day or two, a week at the most. there was always an end date, a date he’d be leaving, and we’d be back to texting and calling. and missing.

he drove 12 hours to get here. he and a car stuffed to the gills with law tomes and professorial garb. and he’s here now, a truth i witnessed just now with my very own eyes as i tiptoed in the dawn’s thin light past the old room where he’s slumbering. i saw the lump in the bed: proof!

truth is, what prompted him most to want to come home, is that he, like the rest of us, had the behoozies shaken out of him by whatever it is that lurked/lurks in my lungs. we all know the grains of time are gliding from one end of the dial to the other. it’s a subtraction, no matter how you cut it. and so we are hellbent on making addition of it. in the best ways possible. in filling the vessel of time with pure unfiltered joy. pushing our hearts to our sleeves. living a life of heart-thumping gratitude. that’s a word so over-spun it’s lost what it means, but when you get to the heart of it, it’s living a life where the thin veil is lifted, the veil between heaven and earth, and the presence of God, of love, is palpable, is visible in the form of the wonders in which we’re immersed: the soft morning sounds, the laughter of knowing each other by heart, the hand reached across a table and squeezed.

so happens the kid got an invite to teach for a year at a law school not too far away. south bend, indiana, a destination i could reach by lunchtime if i decided at 10 in the morning to head there. he’s moving into an old farmhouse tomorrow, a house out in the country, where apples and peaches hang from the limbs in the orchard out back, and raspberries grow fat on the brambles. it’s a genius invention called a sabbatical home, where one professor hopscotches away, leaving behind a fully-furnished, fully-equipped home (straight down to the pioneer-grade hearth in the hoosier kitchen), and another professor on the visitor’s wheel moves in. keeps the place running, the lights on, till the semester ends.

it’s not lost on me how hard he worked to get here, nor the one or two strokes of pure chance that propelled this along. in these months when i’ve whittled my life to those rare few things that truly matter, being the four of us—mom, dad, and two kids, together, rolled in a ball—is at the tippy top of the list. i’ve imagined the hour when i take my last breath, and what i know is that the last faces i want to see in this life are the three of them, circling round me. i’ll promise to haunt them. and, so help me, i’ll do it. the friendliest ghost there ever was.

for now, though, i’m here and i’m kicking. we all are. and we’re holding on. and i am ever so grateful to the university of notre dame for bringing my beautiful beautiful boy, the professor, back home where we all belong.

radon update, for anyone who wondered: we’re not out of the darn woods yet. in fact, the trail is only more twisted. the little disc i bought on the internet, the one reputed to be so accurate, it’s still flashing bright red, a color that signals far more than caution. it’s readings are high, scary high. but the actual professional radon tester is now on the third round of testing, and each time we’ve passed with enough room to breathe. she’s now as curious as i am as to why the disparity in readings, and we’re about to be stuck in the balance of deciding what to do. it’s no small feat to remediate for radon, though i don’t think it entails knocking out the basement out from under us. my date with the pulmonologist has been moved up from november to next month, and maybe they’ll know from looking into my lungs if there’s any sign of radon’s wreaked havoc. once again: uncertainty, the state of existence i dwell in.

that’s the news from here at the house that might be glowing.

love, babs

do you have a prodigal story?

13 Comments
August 8, 2025

public health announcement: check your darn radon

so, in the latest twist and turn over here in medical odyssey land, a very fine pair of doctors looked into my lungs the other day, and saw yet another odd thing. and the oddest thing is, they don’t think it’s cancer in the other lobe, but they do think it might be radon. RADON! the number one cause of lung cancer in never smokers.

because we were zooming, the doctors were able to see the room behind me, and a room you might note for its decidedly not modern detail. it’s a fairly old house, though not old by historic standards. it’s 1941, which means it’s older than 1970 when homes started to be built with attention to radon, a radioactive gas naturally occurring in the earth. i’ve been breathing here for twenty-two years.

the good doctors wanted to know if we’d ever checked for radon. yes, yes, i quickly answered, sounding just like the girl who sat near the front of the classroom, waving her hand whenever she knew the answer—especially when she knew it faster than everyone else. (i am poking fun at myself here, lest you not see that!) anyway, back to the radon and the trusty detector i got two years ago when i first learned i had mysterious lung cancer. soon as the doctors finished their question, i pointed straight to the detector so the good doctors could see where i’d tucked it. um, not so good, they replied in unison.

the very good doctor explained that radon can only be detected in the first few inches off the ground, and it has to be measured at the lowest point in the house, where the foundation rubs up against ol’ mother earth. that meant the basement. where i’d never measured, even though i’ve been down there an hour a day walking on the treadmill for as long as we’ve lived here, all twenty-two years.

don’t you know that the second we got off the phone i was lickety-split in the basement with that little detector that until then had always flashed green, giving me the falsest assurance that all was well at chez 522.

took but five minutes for that ol’ detector to turn yellow (not so good) then red (get outa here folks!). and as i felt my heart sinking, and my tummy beginning a series of flipflops, i scampered back up the stairs, to report the damage to my fellow breather in this old house.

any minute now the radon detector lady is going to be knocking at the door with her super-duper testing devices. she’ll track our radioactive gas over the weekend, and come back monday to fetch it and read it. she will write up her report and pass it over to the very kind guy who will come to our rescue, apparently boring a hole through to the earth below, sucking out the noxious gas, and blowing it out through the roof. the mechanics of this are unbeknownst to me, but whatever they want, they can do. PVC pipes running through the living room? no problem. please, just save what’s left of my lungs.

in the meantime, i’ve let my doctor know the results of my home-testing detector, one thought to be accurate. and she’s snared me an appointment with the top pulmonologist at U of C, though i can’t get in till november. i’m thinking this stuff they see in my right upper lobe (my left lower is the lobe now missing) might explain why i get so exhausted, and why i sometimes feel pale as a semi-ghost. and why when i try to breathe and talk and walk, one of the three has to go.

so why i am divulging all this before i know more, before i have answers? because my doctor, who i loved at first sight, told me that too few people are aware of the dangers of radon; i know that, for me, it was merely what sounded like an infomercial droning on in between dramas, or noise on the car radio.

but, people, it’s real. and i have the holes in my lung to prove it, it seems.

my doctor, already known as the world pioneer of a particular lung cancer mutation, suggested we team up together for an awareness campaign. i’m all in. and i wasn’t willing to wait for definitive answers. i’m starting with this, and with you, my beloved, breathable chairs.

what i know is this: my lung is missing a part, my breathing doesn’t come easy too often of the time, and my detector is flashing red rings. i don’t want any of that to happen to you.

my doctor says that chicago is especially bad, with higher naturally occurring radon than other places. but she says that too few of us know. too few of us think of it.

here’s what the EPA, that now shaved-to-the-bone federal department charged with saving our air among other things, has to say about radon: “Radon is a radioactive gas that forms naturally when uranium, thorium, or radium, which are radioactive metals break down in rocks, soil and groundwater.”

gets a wee bit more vivid when you turn to plain ol’ google, now powered by AI: “Radon is a naturally occurring radioactive gas, invisible and odorless, produced by the breakdown of uranium in soil, rock, and water. It can seep into buildings, particularly through cracks and openings in foundations, and accumulate indoors, posing a lung cancer risk if inhaled. Testing and mitigation are crucial for managing radon exposure.”

radioactive, invisible, risk, and crucial, are all words that grab my attention. mightily.

it’s never too early to be warned of a risk that might mess with your lungs, so while i wait for vicki the radon detector to knock on the door, i want you to know that if you happen to live in an old house (the kind i’ve always loved best), and it sits on the ground, or worse yet, was plopped in a hole in the ground (the standard for two-story-or-more construction), you might wanna look into your radon.

i’ve no desire to be the poster child for radioactive invisible gases that can eat away at your lungs, but if that’s who i am then so be it. i offer my troubled breathing for your protection. please, please consider it.

and because that’s rather a dark chunk of news to drop on your laps this morning, i bring you one magnificent poem to even things out.

barbara ras

appropriately, it’s titled, “you can’t have it all,” and it’s glorious…..the poet is barbara ras, an american poet, translator, and publisher, born in new bedford, mass., and traveled extensively in central america. she’s been honored with the walt whitman award, and both guggenheim and breadloaf fellowships. her most recent poetry collection is The Blues of Heaven (University of Pittsburgh Press, 2021), preceded by The Last Skin (Penguin Books, 2010), One Hidden Stuff (Penguin Books, 2006), and her first collection Bite Every Sorrow (Louisiana State University Press, 1998). soon as my radioactive gas is dashed from this ol’ house and my edits are all wrapped up, i am diving deep into ras…..

YOU CAN’T HAVE IT ALL
by Barbara Ras

But you can have the fig tree and its fat leaves like clown hands
gloved with green. You can have the touch of a single eleven-year-old finger
on your cheek, waking you at one a.m. to say the hamster is back.
You can have the purr of the cat and the soulful look
of the black dog, the look that says, If I could I would bite
every sorrow until it fled, and when it is August,
you can have August and abundantly so. You can have love,
though often it will be mysterious, like the white foam
that bubbles up at the top of the bean pot over the red kidneys
until you realize foam’s twin is blood.
You can have the skin at the center between a man’s legs,
so solid, so doll-like. You can have the life of the mind,
glowing occasionally in priestly vestments, never admitting pettiness,
never stooping to bribe the sullen guard who’ll tell you
all roads narrow at the border.
You can speak a foreign language, sometimes,
and it can mean something. You can visit the marker on the grave
where your father wept openly. You can’t bring back the dead,
but you can have the words forgive and forget hold hands
as if they meant to spend a lifetime together. And you can be grateful
for makeup, the way it kisses your face, half spice, half amnesia, grateful
for Mozart, his many notes racing one another towards joy, for towels
sucking up the drops on your clean skin, and for deeper thirsts,
for passion fruit, for saliva. You can have the dream,
the dream of Egypt, the horses of Egypt and you riding in the hot sand.
You can have your grandfather sitting on the side of your bed,
at least for a while, you can have clouds and letters, the leaping
of distances, and Indian food with yellow sauce like sunrise.
You can’t count on grace to pick you out of a crowd
but here is your friend to teach you how to high jump,
how to throw yourself over the bar, backwards,
until you learn about love, about sweet surrender,
and here are periwinkles, buses that kneel, farms in the mind
as real as Africa. And when adulthood fails you,
you can still summon the memory of the black swan on the pond
of your childhood, the rye bread with peanut butter and bananas
your grandmother gave you while the rest of the family slept.
There is the voice you can still summon at will, like your mother’s,
it will always whisper, you can’t have it all,
but there is this.

most importantly of this fine day, it’s my beautiful beautiful miracle boy’s 24th birthday. two dozen sumptuous years of loving the kid whose insistence on “seeing the world” prompted us leap outa the nest, and spend a year of thinking sumptuously in yet another one of the current administration’s targeted campuses, the one in cambridge, MA. he is perhaps the sweetest soul on the planet, with the tenderest heart. he’s the first to reach for my hand any time there’s a step to descend or a sidewalk that might be riddled with bumps. his birthing, two dozen years ago on the night just passed, was dicey there for a while, but with every drop of sinew and soul that i had, i did what the doctor ordered and got him delivered to safety, soon nestled as close to my heart as any human can be. happy birthday, teddster. love, love, love, your ol’ mama.

is that not a face you could love till the end of all time?
20 Comments
July 18, 2025

light and shadow, in perpetual dance

all you need do is glance toward the sky, eyes skimming over the players on high. sunlight and cumulus. sunlight and cirrus. sunlight and nimbostratus. sunlight and cloud ever in play, in duet, in doh-si-doh of shadow and light. 

there’s a truth being told there, a universal and organizing principle of all creation. on the first day, in the second verse, there was darkness, darkness hovering over the deep. in the third verse, light. God commanded it. and God saw that it was good. 

in our lives, the leitmotif is a given. light will come. shadow will follow. light will come again. 

so it was in my reading this week, when first i tumbled deeply into a luminous shaft, a boreen* of writings from a norwegian bishop and monk, erik varden, whose power as a writer was pointed out to me by a poetry friend whose taste i know to be exquisite and deep. i swiftly realized the bishop’s thinking and writing are everything they were billed to be: rare. exquisite. deep. radiant.

but then, hours later, shadow: i began reading a string of sentences posted from the account of one of my lifeline poets, someone you might call a patron saint of heartbreak and healing, of being more alive than you’ve ever imagined. i started to read, as if it were just another brilliant post: “Whenever I leave this world, whether it’s sixty years from now, I wouldn’t want anyone to say I lost some battle. I’ll be a winner that day.” and then i got to these words: “Andrea Gibson was a winner today. On July 14th, at 4:16AM, Andrea Gibson died…” and my legs stopped moving, and my breath was caught in midstream, and i read and read again. and then my fingers started to tremble, and my knees too. 

andrea gibson

andrea gibson, 49, colorado poet laureate in 2023, queer activist (they/them/their pronouns), who had been diagnosed with stage 4 ovarian cancer in 2021, not long after they’d started a newsletter titled “Things That Don’t Suck,” had many, many times pried open my heart, pulled out the unspoken words and the fears and set them soaring. when i too found out what it is to live with cancer as one of the nouns in my story, i drew andrea into my innermost circle. the ones who know, without you uttering a word, just what you’re thinking, you’re feeling, you’re praying. the ones who some days save you. because even though the cyberworld is distant and intangible, it works in mysterious ways, and someone with whom you’ve never breathed the same air can become someone whose voice you can hear as you flutter to sleep, and whose courage you conjure as they glide you into the sarcophagus that is your biannual CT scan.

light. shadow. light from shadow. shadow deepening light. it’s the dance of the duet, interminably entwined. one is always more beautiful because of the other’s presence, because the duet is perpetual. 

first, this week’s light:

that monk on a bicycle, spotted cycling through the garth just beyond the cloister, is all it took for me to want to whisper my vows, and cycle along. 

as i’m quick to do, i signed up for bishop varden’s website, coram fratribus, a name derived from his episcopal (meaning “of the bishop”) motto, coram fratribus intellexi, latin for “understanding with my brothers.” because the bishop is shepherd of a flock spread across 22,000 square miles in the north of norway, extending beyond the polar circle, he sees his site as a way to speak to the diaspora, to think aloud of those things he finds beautiful or challenging, to gather his flock into a communion of thought. specifically, i felt my heart quicken as i burrowed into the bishop’s collections of writings under the tabs “life illumined,” and the shorter jottings under “notebook,” which he describes thusly: 

“To scribble in the margins of texts is an ancient practice. There are people, these days, who make an academic career out of studying ancient marginalia. Any exercise of reading is fundamentally conversational. The notes collected here are brief responses to impressions received not just through books, but also through encounters, art, music, and films.”

now you see why i, a marginalian of long practice, swoon?

before i get to the paragraph in “life illumined” that drew me deep into thought, let us pause to note why we see that little outline of an owl, in the upper right corner, and hovering over every page of the site. the good bishop describes that choice thusly (emphasis mine from here on in): 

“The emblem of the site is an owl. The owl does not just wing you back to the front page. It has for centuries been a symbol of the monk. Why? Because it watches in the night, when most people sleep; because it is able to see in the dark, discerning movements and patterns, foundations of meaning, where the human eye perceives only vaguely. I am fond of this Italian doggerel:

“Sopra una vecchia quercia
c’era un vecchio gufo:
più sapeva e più taceva,
più taceva e più sapeva.

“In an old oak tree
there sat an old owl:
the more it knew, the silenter it was;
the silenter it was, the more it knew.”

what fluttered into my mailbox the other morning was a page of the monk’s notebook on the nightingale, complete with an ancient poem (from the early middle ages, written by alcuin of york, an adviser to charlemagne) mourning the absence of the wild creature and its delicate throat. a recitation in english and latin, and including a recording of the nightingale’s song. that alone was more than beautiful enough. and then my poking and peeking accelerated, and that’s how, under the “life illumined” tab, i found a break-me-open paragraph on learning to pray.

in an essay focused on the simplicity of jesus’s prayer, and the universal cry of all believers, “lord, teach us to pray,” varden paints the scene of 72 disciples who learned not simply by listening to the words of jesus in prayer, but in witness to his consuming attention to the ways and will of God. varden expounds: 

“Jesus’s teaching on prayer amounted to more than the provision of a text for recitation, that is clear. It was the sight of Jesus praying that made the disciples wish to learn prayer. The words of prayer, which touch our reason and orient our will, point towards the breaking-open of our heart, the transformation of our being as we dare to aspire, even in this life, to ‘become participants of the divine nature’.”

it is the breaking open of the heart, indeed, where the truest serum of our souls pours out. only in the last couple years have i understood that as profoundly as i do now. and, yes, that breaking so often comes with pain, or in pain, or through pain. but i’ve learned now how it truly is the propellent, the force that pushes us deeper into sacred truths than we might otherwise venture. without the breaking open, we might cling to the safer and shallower waters.

the bishop goes on. takes us beyond merely the breaking, and makes the point of its purpose. be it through prayer or through living, the breaking open is the vehicle for those who dare to aspire, in the here and now, to become participants of the divine nature. to inch as close as we can in this lifetime to something akin to sacred. i found a redemptive resonance in that line because at heart, even for the quiet ones among us, we are a people of communion, and there is a heartening, an emboldening, that comes in finding that your purpose, your aim, is not yours alone, but shared in common understanding with at least some of your sisters and brothers.

let us be broken open, then, if it points us toward our holiest purpose. through the break in the clouds, the light comes.

and onto the shadow, the eclipsing shadow…

less than one month shy of her fiftieth birthday, andrea gibson, the poet who boldly faced the coming of her death, who has been amplifying wonder, making us see the unseen, relish the oft-overlooked, took her last breath in the wee hours of monday morning.

i have been relishing her, here and in my everyday, for years now. curiously, her presence in my life spans almost precisely the arc of time in which i’ve been in the company of my own cancer. 

the month before my lung surgery, when the world felt overwhelmingly like the depths of a cave, i wrote of andrea and lines i’d inscribed on my heart: 

thanks to a friend i love with my whole heart, i stumbled on another wise soul with buckets of beauty to grace the world. a poet-activist-performer named andrea gibson, now a cancer survivor whose words might take your breath away. andrea identifies as queer, and uses the pronoun “they;” and they are known for their trademark honesty and bare-naked vulnerability, traits i find irresistible and blessed beyond words. here are just a few lines i couldn’t keep from scribbling down:

when it comes to hearts i want always to be size queen…

i love you because we both showed up to kindness tryouts with notes from the school nurse that said we were too hurt to participate….

when your heart is broken, you plant seeds in the cracks and pray for rain.

before i die, i want to be somebody’s favorite hiding place, the place they can put everything they know they need to survive, every secret, every solitude, every nervous prayer, and be absolutely certain i will keep it safe. i will keep it safe.

andrea gibson

and nearly a year ago, in a musing about scan time’s equal measures of shadow and light, i shared lines that kept me from drowning.

and just a little more than a month ago, i wrote about them and a poem i called more than enough:

yesterday, thursday, this slipped into my mailbox from andrea’s wife, meg:

A couple years ago, Andrea said, “Whenever I leave this world, whether it’s sixty years from now, I wouldn’t want anyone to say I lost some battle. I’ll be a winner that day.”

Whatever beast of emotion bucks or whimpers through you right now, I hope you can hold that line beside it: Andrea didn’t lose anything. If you had been here in our home during the three days of their dying—if you’d seen dozens of friends drift in to help, to say goodbye, to say thank you, to kiss their perfect face, if you’d felt the love that floored every hospice nurse—you would have agreed. Andrea won.

I won’t sugarcoat the fact that they desperately wanted more time on this planet that they loved so much. This planet of squirrels and romance and basketball and moonlight.

But the time they had was significant, prismatic, and wild. It was full of trampolines and mountain ranges, stage lights and pants-peeing laughter. In their words, they “juiced the sun for every holy drop.” One of the last things they said before dying was, “I fucking loved my life.” Their conviction stunned the room.

If Andrea’s life was a poem (and it was), could there be a better last line?

a little backstory, again from meg: 

In 2021, before the diagnosis, Andrea announced they were writing a newsletter, titled Things That Don’t Suck. A few weeks later, we learned they had ovarian cancer.

At first, Andrea said, “What a terrible time to be committed to writing about what doesn’t suck.” Then, almost immediately, they shifted their perspective and said, “What a perfect time.”

And so, this space was born. Part journal, part poetry, part pep talk, part treasure hunt. It became an archive of Andrea’s ability to find beauty in unlikely places, to wring gratitude from even the hardest hours. A museum of how they danced through their diagnosis, always turning their compass toward joy. It fostered a community they deeply loved.

And Andrea wanted all of it to continue.

meg tells us it will. there are reams and reams of unpublished writings, lines scribbled under the silvery light of the moon on those nights when sleep wouldn’t come. pages poured into volumes tucked away. a memoir, unfinished. half-written poems. a documentary coming this fall. 

and meg promises this: 

And there are stories of our life, and of the last months, that I, as their partner, and as a writer, feel both lucky to carry and uniquely able to tell.

As gut-wrenching, impossible, and tear-soaked as this moment is, I’m grateful beyond measure that they were so prolific. Through their books, their reels, their interviews, their albums, Andrea’s incredible mind will reverberate for a century—I’m sure of that.

and so, in the presence of the bishop monk, and the absence of the poet prophet, we shall go on. awake in the light and the shadow. and the shadow that deepens the light. 

in case you’re curious, a bit more about dear bishop varden:

it was only after absorbing so much of his writing that i circled back to learn a bit of his origin story. 

varden was born into a non-practicing lutheran family in a small village in the south of norway, and would go on to earn a doctorate in theology and religious studies at the university of cambridge, and further study in rome. a convert to catholicism at 19, he was drawn to the monastic life, and joined the mount saint bernard abbey, a cistertian monastery, in charnwood forest, in leicestershire, england. he was called to rome to be a professor of syriac language, monastic history, and Christian anthropology. and two years later, returned to the abbey when he was named its eleventh abbot. and, in 2019, pope francis named him bishop of trondheim, a nearly 22,000-square-mile prelature north of the polar circle in norway.

mount saint bernard abbey, varden’s home monastery, is where the only Trappist beer is brewed in all of England, under the name Tynt Meadow English Trappist Ale. beer to the trappists is no earthly distraction. the belgian trappists have a saying: “Beer should be liquid bread, not coloured water.”

and here’s a morsel, this one on the theology of beer, as spoken at the blessing of the monk’s brewery on st. george’s day, 2018. from Dom Erik’s address:

“One of the fascinating things about beer, is that this (potentially) sophisticated beverage is made of the simplest ingredients. By being refined to manifest their choicest qualities; by being brought together in a favourable environment; by mingling their properties and so revealing fresh potential; by being carefully stored and matured, the humble malt, hops, yeast, and water are spirit-filled and bring forth something new, something nurturing and good, that brings joy to those who share it. Considered in this perspective, the brewery provides us with a parable for our monastic life, with the Lord as virtuoso brewmaster. The Scriptures favour wine as an image of the Gospel – but that is culturally conditioned; beer, it seems to me, is a much neglected theological symbol.” 

*boreen, you might recall from a few weeks ago, is the old irish word for what we might call a pothole, a rabbit’s hole, but in ireland, an island etched with cowpaths, it’s a word derived from a meandering side path when the cow decides to venture off on her own….if language is a cumulative patchwork, boreen is a word now in my lexicon….

you’ll find a veritable font of andrea’s spoken word poems, and writings at their website, andrea gibson.org. spend some good time there.

where did you find light and shadow this week?

2 Comments
January 17, 2025

hope diamond, all right

i’m not too keen on wearing my medical woes on my sleeve, and in fact i wish i could keep them locked tight in a jar at the back of the cellar. but because sometimes i can’t hide how afraid i get, and because profound wisdoms are here to be unearthed in riding the hills and vales of cancerland, i’ve thought hard about when to say what. or whether to ever say anything at all. and today, i have a story to tell that might make you smile, and might bring you hope — for whatever your own scary tale is. (and it wouldn’t seem fair to leave you thinking that happy twists are never somewhere off in the distance.)

it’s a chapter that began back in early october when my every-six-months scan came back not the way anyone wanted, and the surgeon who called to give the bad news spent less than three minutes on the phone spelling it out, including the seconds it took for him to tell me that if in fact it was a recurrence (an especially bad thing, a mere 18 months from first diagnosis) they’d consider taking out the rest of my lung. that’s a lot for a girl to swallow in less than the time it takes to peel the skin off an apple. 

he wound up telling me he wanted to push up my next scan to just after the new year, a date that seemed a grand canyon away, the far side of thanksgiving, christmas, new years, and my birthday. 

so i did what any scared person with a bolt of bad news might do: i stopped breathing, started to cry, and because i was home alone i dialed a brother i love, a brother i’ve leaned on more than once when life’s at its thickest. (it was too scary to tell my own boys or practically anyone else for that matter, not when there were so many questions and no answers in sight. my number one instinct, no matter the script, seems to always be to protect my boys from unneeded worries. so i waited till i could give them more than a basket of runaway fears.)

tears dried that ominous october morn, i got on the horn, or in this case the keyboard whose little black keys allow me to reach far and wide to my wee brigade of self-assembled experts who understand the ins and outs of my wily little cancer, a cancer that doesn’t like to play by anyone’s rules. my No. 1 expert, a fellow with nose to the microscope who studies this rare iteration as well as lovingly caring for people who have it, wanted me to board a plane and fly to salt lake city to go under anesthesia and have a little chunk of lung snipped out for biopsy: the surest way to get to the bottom of things. but he also decided in the end that it might be just as reasonable, and a whole lot less stress, to wait for the next scan in chicago, a mere four weeks difference between the two options. 

it would not be understatement to say that i was pretty much as scared as i’ve ever been for a good bunch of that time. went so far as to type up housekeeping instructions, made sure my passwords were all up to date, and even thought hard about a few other things too dark to type here. it’s what happens when you know there’s a cancer lurking inside and you’ve no idea what it’s up to, but the indications aren’t good. 

i admit to a panic attack or two before things settled down. but then i started breathing again, and the day before my birthday (the one i’d once worried would never come) i swam a mile in my little warm bath of a swimming pool (i swim with the seniors these days, and by seniors i mean the ladies who glide out of wheelchairs and into the pool where they take laps walking edge to edge of the pool.) and the day before the scan i did it again. a mile, that is. my dear mama, looked at me in that way that she can, and asked, “what are you trying to prove?” to which the answer would be, that cancer can’t catch me. as if. 

well, it took a good week for the radiologists at my big fancy medical center to get a close look at the scan and when they did they finally sent word: looks good, they agreed. and even tossed in a cherry on top when they wrote “mild improvement” in one particularly concerning spot. 

it took a minute or two for the truth to sink in, but the image that came soonest to mind was a big shimmering diamond. a blob of diamond the likes of which i’d not before pictured in such shimmering shards of luminous light. 

i felt like someone had just handed me the hope diamond, the gift of six whole months before they need to go in there and peek around again. i felt the full sweep of six months in which every sentence my boys speak isn’t backwashed by my own private fear that i won’t be around for the end of the story. 

to be told that your worries, the ones that all but froze you in fear, are lifted, are zapped, are momentarily wiped off the map, is to be catapulted into a landscape you’d thought was a no-trespassing zone. 

it’s pretty much like getting your life handed back to you on a plate. a gold-rimmed one.

you get to imagine the very few ways you wish to cherish this breathtaking time. you consider buying a pair of plane tickets and telling each of your boys to pack a bag and fly away with you for a weekend. to take long walks, and sit over candlelit dinners. to hold hands on the sands of a beach. or a bustling city sidewalk. to tell the deepest truths. and to say as many times as you possibly possibly can that you will love them till beyond the end of all time. 

you think of the moments you might be around to absorb now that you’re not being shoved toward the exit. and the peals of pure joy sure to rise up when wee dreams come true. and maybe a big one or two. 

you think of how blessed you’ll feel, day in and day out, when not an hour nor minute is taken for granted. when staring up into a starry night, or tiptoeing into the dawn will each be a moment you’d feared would not come. will be a moment of beauty you all but bathe in, every drop of it sacred and whole. 

simply because you’re alive, you’re awake, and you’re drinking it in. 

you take a deep breath once again, and you all but fall on your knees: life is giving you one more run at making it count. and you’ll not waste it. you utterly, totally, certainly promise. 

here, some of the holiest words i read this week, while working my way through a good old-fashioned case of influenza, the kind with fever and cough that send you under the blankets….

May you grow still enough to hear the small noises earth makes in preparing for the long sleep of winter, so that you yourself may grow calm and grounded deep within. 

May you grow still enough to hear the trickling of water seeping into the ground, so that your soul may be softened and healed, and guided in its flow. 

May you grow still enough to hear the splintering of starlight in the winter sky and the roar at earth’s fiery core. 

May you grow still enough to hear the stir of a single snowflake in the air, so that your inner silence may turn into hushed expectation.  

–David Steindl Rast, May You Grow Still Enough To Hear

and lastly, when you’re lying around under blankets, poking around the internet is the most fun you might find, so here’s what i found when i got curious about the hope diamond this week: 

the Hope Diamond, which happens to be blue as the sky in july, weighs in at a walloping 45.52 carats, and thus has been heralded round the world since the 18th century, though its story traces back to when it was dug from an indian mine a century earlier.

according to the mind hive that is wikipedia, its recorded history begins in 1666, when the French gem merchant Jean-Baptiste Tavernier purchased it in India in uncut form. After cutting it and renaming it “the French Blue” (Le bleu de France), Tavernier sold it to King Louis XIV of France in 1668. It was stolen in 1792 and re-cut, with the largest section of the diamond appearing under the Hope name in an 1839 gem catalogue from the Hope banking family, from whom the diamond’s name derives.

did any happy twists in a tale come upon you this week?

36 Comments
January 3, 2025

one wish . . .

when i take a deep breath in tonight, and close my eyes to make a wish, there is only one wish i’m wishing this year: i wish for a birthday next year.

that’s everything, really. 

i’ll be wishing so hard.

it’s a wish that feels so far away. and so very big. like i’m asking for the moon. 

it’s a wish that carries a secret. one the sages and prophets and poets have known for a very long time.

it’s a paradox wish. it’s a koan. it’s a wish that makes you think. perk up and pay attention. root around for the wisdom, the immutable truth.

truth is, it’s even bigger than it seems. it’s a russian doll of a wish. one of those ones with umpteen tiny-grained wishes within. grain by grain by grain we make it across a year, and year by year a lifetime. 

a birthday next year. 

doesn’t sound like too much. but, oh, it’s infinite really. 

the blessing of cancer––and yes there are blessings, ones the sages and prophets all seem to have known without needing the verdict, without the scalawag cells lurking in shadows, cells that can’t wait to divide and multiply and muck up the works––is that it rejiggers your seeing. it’s the psychophysics of vision: when range is narrowed, acuity’s heightened. you learn to look not too far into the offing; you learn to look more closely than ever at whatever it is that’s right there before you. and, thus, you see all the more clearly the finest of grains all along the way. 

the fine grains are where the wonder, the magic, the awe, are kerneled inside, awaiting their turn to burst forth, to be seen, savored, not left by the wayside.

life in the up-close, life when we’re listening for whispers not waiting for timpani, is how we come to know the most sacred grain therein. 

in wishing for one more birthday––please God, just one is all i’m wishing this year (if wishes come true, i’ll wish it again and again and again as long as i can)––what i’m really wishing for are those tiny, tiny moments that strung onto a cord make for one holy rosary.

within my one moon-size, more-than-anything wish, here are some of the grains nestled inside:

i wish for the holy, holy sound of one or both of my boys calling me at some unlikely hour to tell me one of their dreams has come tumbling true. or at least the latest chapter therein. and before they’ve uttered a word, i’ll know from the sound of their breathing that the news that’s coming is good. and, dear God, i don’t wanna be stingy but i’d sure love one or two more of those sweet, sweet jubilant sounds.

and while i’m wishing, i sure wish i get to hear the rough draft versions of those dreams, as they’re in the making, as my boys try them on for size and dare to let me in on the beta versions.

i wish for their soft, big hands to wrap around my now-more-wrinkled littler one––to hold me steady, be it a cobblestone walk or life’s herky-jerky jolts tipping me over. 

i wish for one of those early mornings where no one is stirring but me, and the dawn hasn’t yet rosied the sky, and the biggest decision i’m called to make is which mug should i pull from the shelf.

i wish to sink my teeth into the sweetest strawberry of the season. ditto the crispest apple of fall. and the juiciest of august’s tomato. 

i wish to run down the airport corridor one more time and into the arms of my faraway boy, all while loudly belting out, “it’s been five years!” (even when it hasn’t been), only because all the good souls slumped in their hard plastic seats deserve a little airport sentimentality. even if it’s improv, and utterly fiction. and because there’s nothing i love so much as the arms of my boys wrapped round my shoulders.

i wish to come to the last page of a book with tears rolling down my cheeks, not yet wanting to say goodbye to characters i’ve come to love. 

i wish to sit down to dinner with only the one i love, or to a table filled with nearly a dozen i adore. 

i wish to exhale that one cleansing breath when the last of the dishes are done, and all that’s left is a long evening of laughter and stories and loving.

i wish for the sound of the crackling logs on the fire.

i wish to wake up one morning and remember there is not a single worry weighing me down.

i wish i could gather all the people i love—or just a good handful––and plonk down at a table where no one tries to corner the conversation and everyone takes a generous turn. and by the time i’m getting up from the table, i am marveling once again at the goodness, the depth, the hilarity of the vast human character.

i wish i could stand under the stars and behold the star-salted sky.

i wish i could pray so deeply that i felt the shoulder of God brushing against me. or catch myself walking alone in the woods and feeling a shaft of light break through the boughs, and sense that i wasn’t one bit alone, but that the God who i love was leading me forward.

i wish for those beautiful blessed souls who populate hospitals in the unlikeliest spots, the ones who radiate the gift of making you feel so deeply seen. and safe. and cocooned.

i wish for a sermon so stirring it breaks me into tears. 

i wish to hear the soul-stirring sound of the deepest laughter there is from the people i love who laugh the heartiest laugh, the sort of laughter that runs tears down your cheeks. and makes you gasp for a breath.

i wish i could answer the knock at the door and be just the person that someone needs, the shoulder to cry on, the arms to hold them steady, the one to dry the tears.

i wish i could wake up one morning and read a headline that makes me believe the good guys will finally, finally win. and that plain old gentle kindness and the raw courage to speak up for what’s fair and right and just will bend the arc toward justice once again….

that’s enough wishes for one russian doll of a wish, though the truth is i’m only beginning…

i found a few nuggets to launch this holy new year, all worthy of contemplation. the first is from the writer suleika jaouad, a comrade on the cancer road (and wife of the brilliant musician jon batiste). she’s suffering godawful setbacks these days and i’m holding her in my every day’s prayers…:

This year, we’re contemplating and reveling in the idea of magic. It’s based on a theme I’ve found myself returning to: the need to let go of the fear of the unknown and instead to open ourselves up to the mysteries and the magic of the unknown. That’s my constant work—and in this time when our world feels more uncertain than ever before, I’d venture to say that it’s all of our work.

from the inimitable mystic and theologian henri nouwen who guides my every day:

Born to Reconcile

If you dare to believe that you are beloved before you are born, you may suddenly realize that your life is very, very special. You become conscious that you were sent here just for a short time, for twenty, forty, or eighty years, to discover and believe that you are a beloved child of God. The length of time doesn’t matter. You are sent into this world to believe in yourself as God’s chosen one and then to help your brothers and sisters know that they are also Beloved Sons and Daughters of God who belong together. You’re sent into this world to be a people of reconciliation. You are sent to heal, to break down the walls between you and your neighbors, locally, nationally, and globally. Before all distinctions, the separations, and the walls built on foundations of fear, there was a unity in the mind and heart of God. Out of that unity, you are sent into this world for a little while to claim that you and every other human being belongs to the same God of Love who lives from eternity to eternity.

and, not least, my favorite, favorite after-Christmas prayer-poem from howard thurman, a prophet of his time. . .

The Work of Christmas

When the song of the angels is stilled,
When the star in the sky is gone,
When the kings and princes are home,
When the shepherds are back with their flock,
The work of Christmas begins:

To find the lost,
To heal the broken,
To feed the hungry,
To release the prisoner,
To rebuild the nations,
To bring peace among others,
To make music in the heart.

— Howard Thurman

what one wish will you make this year? (you needn’t reveal here, of course!)

bless you, each and every one for making this year more blessed than you might ever imagine. you have been there for me at every turn. even when you did not know it. and i am forever blessed by you.

p.s. photo above is from a few years back, but it captures the depth of a wish being cast to the stars and the heavens above….

38 Comments
December 6, 2024

when you find the sages on your shelf echoing one essential truth. . .

not so very long ago, within the reach of my old brain folders, this was the morn i had my boys set out shoes (sometimes admittedly smelly sneakers), which i filled with clementines and tinfoil-wrapped chocolates. the feast of st. nick, the jolly soul who in long-ago times filled the shoes of girls and boys with trinkets from his pouch. the original arbiter of good v. not-so-good; a lump of coal you did not want to find tucked in the toe of your wooden clog.

december, it seems, is a month punctuated with tradition. we embroider advent’s waiting, the dim day-by-day darkening with the kindled flickering of myth and lore and wonder gathered round the globe. every land, it seems, is looking for a bit of light amid the darkness.

i learned only this week of december fourth’s “barbara branch,” when the german tradition is to give the branch of a flowering tree to a barbara and await its blossoming by christmas. the story goes that barbara, who would become a saint and then later (at my tender and impressionable age of 9 or 10) be stripped of her sainthood (for reasons i never quite grasped but the good ol’ Church did it anyway), dear barbara back in medieval times was such a beauty that her wretched father locked her in a tower whenever he went away. and when she refused to marry some princely fellow, because she preferred to marry Jesus Christ (plenty of saints chose that path) he sent her off to prison, awaiting beheading. on the way to prison, so the story goes, a cherry branch snagged against her skirt, so wise and wily barbara clutched the branch and carried it along to her cell, whereupon every few days she watered it with drops from her scantly-filled drinking glass. and don’t you know that on the day she was burned at the stake and then beheaded, the branch blossomed. and so we barbaras carry on the blossoming, with branches awaiting bloom. my mother is a barbara, and she now has a dear friend where she lives who also happens to be a barbara. so this barbara brought those barbaras branches awaiting bloom. 

and so december goes. 

but really what i find myself thinking here this morning is how the sages i have come to know and love find themselves in conversation across space and time. how their wisdoms interlace and amplify, and to my mind underscore the eternal in their simple truths. 

the sages shelf: poets, left; mystics and sages to the right

the two i’ve drawn from my shelf this week are brian doyle, the beyond-brilliant late great essayist and longtime editor of portland magazine, who died of a brain tumor not too many years ago. his wisdoms cannily or not line up with those of dorothy day, the radical pacifist and co-founder of the Catholic Worker movement, devoted to the poor, the hungry, the broken, and now on the road to sainthood, though she famously protested that labelling when she once snapped: “don’t call me a saint. i don’t want to be dismissed so easily.” (a sassy saint she’ll be, patron saint of sassiness among her zillion virtues.)

i found myself pulling dear brian off my sages shelf this week, and zeroed in on this passage in particular from his magnificent one long river of song: notes on wonder (a book whose praises i once sang in the pages of the chicago tribune, back when i wrote a column called “books for the soul”): 

This is what I know: that the small is huge, that the tiny is vast, that pain is part and parcel of the gift of joy, and that this is love, and then there is everything else. You either walk toward love or away from it with every breath you draw. Humility is the road to love. Humility, maybe, is love.

he echoes the essence of dorothy’s wisdom, an epiphany of hers long etched on my heart. this simple, simple code: “by little and by little.” 

her biographer, robert ellsberg in dorothy day: selected writings, elucidates: “simply, it consisted of performing, in the presence and love of God, all the little things that make up our everyday life and contact with others. from therese [of lisieux, yet another saint, the one who inspired dorothy], dorothy learned that any act of love might contribute to the balance of love in the world, any suffering endured in love might ease the burden of others. . . we could only make use of the little things we possessed—the little faith, the little strength, the little courage. these were the loaves and fishes. we could only offer what we had, and pray that God would make the increase. it was all a matter of faith.”

what i’ve come to know, through the alchemies of age and maybe cancer, is that my one holy task here is to live by love, little by little, day by day, for as many days as i have. if i can be a little flame, if i can choose love, choose joy, choose kindness at each and every turn and each and every choice, then my swift life here will have left some mark and measure. if each one of us might tip the balance, bend the arc toward justice, then our existence holds holy purpose. the choice becomes so clear, so finely-grained focused: i aim to walk closer and closer to the holiness i was––we were all––meant to be. and to find unending bliss within.

so help me God. 

one more brian doyle: in a brilliant, brilliant essay (found in One Long River, p. 12) about two strangers holding hands as they leapt from the south tower on sept. 11, doyle wrote: “their hands reaching and joining are the most powerful prayer i can imagine, the most eloquent, the most graceful. it is everything we are capable of against horror and loss and death. it is what makes me believe we are not craven fools and charlatans to believe in God, to believe that human beings have greatness and holiness within them like seeds that open only under great fires, to believe that some unimaginable essence of who we are persists past the dissolution of what we were, to believe against such evil hourly evidence that love is why we are here.”

i don’t know why i even try to say what has been so magnificently, unforgettably uttered already. brian doyle’s truth i feel unfolding in me every blessed day. i feel those seeds breaking open in the roaring furnace that is a cancer in your lungs.

because, why not, two Advent poems from emily d. or at least two poems worth contemplating in this season of anticipation, of heightened awaiting, of soul on the lookout for wonder coming….(Advent reflection on the poems, from my friends at the Salt Project, down below, but first, emily, the belle of amherst:)

“The Infinite a sudden Guest” (1309)

The Infinite a sudden Guest
Has been assumed to be —
But how can that stupendous come
Which never went away?

“Tell all the truth but tell it slant — “ (1263)

Tell all the truth but tell it slant —
Success in Circuit lies
Too bright for our infirm Delight
The Truth’s superb surprise
As Lightning to the Children eased
With explanation kind
The Truth must dazzle gradually
Or every man be blind —

+ Emily Dickinson

and here’s what my friends at Salt Project say about both…

These two Dickinson poems are perfect meditations for Advent:

The first as a provocative play on one of the season’s mysteries (How can we “wait” for someone who is also present to us, and in us, even as we wait?); and the second as a window into the many ways the Advent and Christmas stories testify to a God who comes in ways that are somewhat softened, accessible, “slant,” camouflaged, even hidden.

An ordinary baby in an ordinary backwater town, signaled by a star so faint that only Magi can spot it (Herod’s assassins can’t!), and announced not to the powerful in Jerusalem but to nameless shepherds on a forgotten hillside, watching their flocks by night.

It’s as the old carol has it: “Veiled in flesh the Godhead see, Hail th’ incarnate Deity!” (that’s from “Hark the Herald Angels Sing”). Veiled, hidden, not so God disappears but precisely so God may appear — or rather, so we may see. The Truth must dazzle gradually…

what simple sages’ truths have you found echoing of late?

blessings to teresa p for teaching me all about BBs, barbara branches!

6 Comments
November 22, 2024

countdown. . .

i clambered up from the basement yesterday morn, and found myself face-to-face with a whiteout. snow falling in thickets. snow whirling wildly. snow, snow, and more snow for hours and hours and hours. 

it was all the currier & ives i needed to supercharge my countdown clock. the one that’s percolating at quicker and quicker clip as the days turn closer to wednesday a week, the eve of thanksgiving itself, when not just one but both of the boys i so love will––for the first time in almost a year––unfurl their dreams on the pillows of their long-ago boyhood beds, all nestled cozily under this mostly dependable, nearly centenarian roof. 

and i will savor the joy of kissing both on the forehead as i trundle off to bed hours before my wide-eyed night owls, or should we all stay up till the same insensible hour i will give it my best waltons’ bedtime holler, and call out from under my bedsheets and across the hall and down a few stairs, “good night, will. good night, Bear. good night, old house. sweet dreams, my beautiful boys.”

it’s been a long hard autumn, held in the vise of worries and fear the likes of which i’d not recommend. and so this coming thanksgiving is the emotional equivalent of frank lloyd wright’s trademark compress-and-release, in which the great architect intentionally magnified the vast spaciousness of a room by first pressing in the walls and the ceiling of the space leading into the room, so that upon stepping through the tight corridor and into the vaulted chamber the sense of openness would be perceived as vaster than ever. 

and so it is with the human dynamic of fear, grace, and gratitude: to walk through unbearable days, days that stretch into weeks, and weeks that stretch into more than a month, and then to find yourself falling into the arms of the human beings you most long to hold onto; it’s the pinnacle of paradise on earth, to be released from the vise and enwrapped in a love without end. 

cancer sharpens that point. cancer sometimes brings on seasons of uncertainty that are quickly populated with ghosts and demons that defy containment. i’m learning the undulations of cancer that are colored in shades of gray. interminable shades of gray. questions that come without answers. doctors who call with unwelcome news. and barely stay on the line long enough to answer a single question. and then you hang up and feel the floor drop out from under you. sometimes––if you’re me––you take the short road to doom. because that’s what worriers do. we worry. we pray for holy release.

in time, we get a grip. regain our bearings. hold our chin high, dry our tears, practice at being brave. whistle into the in-blowing winds. hold tight to the hands of the one or two who know how dark it’s become, and we fall to our knees, or fold to the ground and enter the depths of divine meditation. i’ve spent more hours with eyes closed, palms open, sitting in silence, beckoning the perpetual God-flame within, than ever before. i’ve been tempted to beg, “more time, please.” but i don’t any longer believe i can––or hold any special claim to––change God’s equation, so what i pray for is grace. is heightened attention. what i pray for is an emphatic aliveness that infuses each turn of the day with unbarred acceptance. i don’t want to blink and miss something holy.

those prayers––for grace, for keen attention, for seeing deeper than ever day in and day out, for pausing to savor––are answered, blessedly. and my own season of unending thanks coincides with that of this nation founded on pillars of moral perpetude, and the hope of equal justice for all.

the essence of my life’s gratitude has always been the improbable miracle that i became a mother. that i birthed not one but two glorious humans, and devoted the best of my heart, my soul, my breath, my being, to carving out for them a space in which they’d be cocooned in the purest love i could imagine, could muster. along the way, i’ve tossed every life line i could whenever they needed, and now, lo and behold, they’re the lifelines and i’m the one needing.

and so all these past 45 days, i have longed for only one thing: hours more to sit side-by-side the ones i so fervently sumptuously love. to giggle at their antics. to marvel at their wild-eyed wonder tales. to feel their hands squeeze mine, to be wrapped in their arms, my ear pressed to their chest, absorbing the heartbeat i’ve loved since the very first ultrasound when that echoing lub-dub-dub poured over and through me like the holiest chrism. 

this is a countdown like never before. and my heart is more than open for business. the business of loving my boys. in real time. under one shared and sheltering roof.

thanksgiving morn, a few years ago.

here’s a poem, fittingly, a prayer poem by the great madeleine l’engle, who lived by words but found herself wordless in prayer. which, indeed, is sometimes the way to our deepest depths…

Word

I, who live by words, am wordless when
I try my words in prayer. All language turns
To silence. Prayer will take my words and then
Reveal their emptiness. The stilled voice learns
To hold its peace, to listen with the heart
To silence that is joy, is adoration.
The self is shattered, all words torn apart
In this strange patterned time of contemplation
That, in time, breaks time, breaks word, breaks me,
And then, in silence, leaves me healed and mended.
I leave, returned to language, for I see
Through words, even when all words are ended.
I, who live by words, am wordless when
I turn me to the Word to pray. Amen.

––Madeleine L’Engle

and here, because i love to imagine ladling steaming bowls of soup to people i love, is my new favorite stoup recipe, lemony chicken-feta meatball with spinach from my friends at NYT Cooking (you will be licking the bowl; it’s that good):

Lemony Chicken-Feta Meatball Soup With Spinach
By Yasmin Fahr
Yield: 4 servings
Total Time: 30 minutes
Note from NYT: Some might be suspicious of the rolled oats called for in this recipe, but used in place of breadcrumbs, they help create a light and tender chicken meatball. A half-cup more is simmered in the broth, which thickens it and provides a pleasant texture. The meatballs, made with ground chicken, feta and fresh dill, swim in a lemony, spinach-filled broth that’s comforting and light, perfect for lunch or dinner. Serve any leftovers with a fresh squeeze of lemon juice to brighten the soup.

INGREDIENTS
1 pound ground chicken or turkey, preferably dark meat (i use white meat)
½ cup crumbled feta
¾ cup old-fashioned rolled oats
1 small red onion, halved (½ diced, and ½ grated, then squeezed with a paper towel to remove excess liquid)
⅓ packed cup fresh dill leaves and fine stems, finely chopped
1 tablespoon ground cumin
½ teaspoon plus 1 tablespoon ground turmeric
Kosher salt and black pepper
3 tablespoons olive oil
½ teaspoon red-pepper flakes, plus more for serving
4 cups low-sodium chicken broth
4 packed cups baby spinach (about 5 ounces)
2 lemons (1 juiced and 1 cut into wedges for serving)

PREPARATION
Step 1
In a medium bowl, add the chicken, feta, ¼ cup oats, the grated onion, most of the dill (reserve about 2 tablespoons for garnish), the cumin, ½ teaspoon turmeric and 1 teaspoon salt. Gently combine without squeezing too hard or overworking the meat. Lightly wet your palms and shape the meat into small balls, a little smaller than the size of a golf ball, about 1½ inches. (You will have approximately 25 balls.)

Step 2
Heat the oil in a large Dutch oven or wide pot over medium until shimmering. Add the diced onion, season with salt, and cook until it begins to soften, about 2 minutes, stirring occasionally. Add the remaining 1 tablespoon turmeric and the red-pepper flakes, and stir until fragrant, about 30 seconds. Push the onions to the sides as best you can, then add the meatballs. (They will be close together, and that’s OK.) Cook until browned on two sides, 5 to 7 minutes total.

Step 3
Pour in the broth and remaining ½ cup oats, then gently tilt the pot to the right and left to distribute the oats and broth without disturbing the meatballs. Bring to a gentle boil, then immediately reduce the heat to maintain an active simmer. Season with salt. Cook, gently stirring occasionally to make sure nothing is sticking to the bottom, until the oats have softened and the meatballs are cooked through, about 4 minutes more.

Step 4
Stir in the spinach and lemon juice until the spinach is wilted, about 2 minutes more. Adjust the seasoning to taste. Spoon into bowls, top with pepper and the remaining dill. Serve with lemon wedges.

what is your heart longing for this season of through-and-through thanks?

17 Comments
October 25, 2024

pay attention to this one most blessed day. . .

i am sitting here in a shaft of golden light spilling across the worn planks of this old maple table. i am looking out at a world ablaze in iterations of gold. as if the world out my window is a benjamin-moore paint strip, all in the key of saffron. 

i sighed a deep sigh when i tiptoed down the stairs this morning, and filled my lungs with the glorious knowing that this day held no appointments. no doctors. no dentists. no needs to stand or sit in front of a crowd and talk about the words i’d poured onto a page. 

this day is a big blank slate. a slate to fill with the simple wonders of being alive. and i intend not to waste it, not a drop of it. and urgently so.

it’s the unintended gift of holding on for dear life to the life that you love with every cell of your being. 

it’s a day i might otherwise not have noticed quite so keenly. but i see more vividly now. the blessing of holding on dearly to life is that you see each new dawn for the miracle that it is. 

it might have been just another weekday. but suddenly, perceptibly, it is the answer to my deepest prayer, a day to simply be alive and breathing it in. every pore of it. the earthy rummesence of autumn leaves crisping and crinkling and falling in heaps to the ground. the last gasp of the garden, exploding in singular vibrancies that beg to be remembered all through the winter. the air, a mix of chill with undertones of heat as if the earth’s autumnal respirations draw forth the last breaths from summer’s stockpiled embers. 

to knowingly not waste a day is to live at fullest attention. while we can. while we’re upright and ambulant. 

sometimes we realize we shan’t take it for granted. 

sometimes we need a reminder. 

i am reminded. 

i am living inside a body that reminds me to savor it, to inhale it. to all but rub it over my skin, to  let it soak in through each wide-open pore. 

we all have days when our hours are clogged with the usual distractions. we forget the marvel of a friday reliably following a thursday. we look to the calendar as if it’s the sovereign of how we spend our time. we are chained and unchained. we’re obliged to to-do’s, and we forget that all the in-betweens might just be the hours we’re most deeply alive. we might, at any moment, put down the chores, surrender the assignments. we might seize the day in whatever outline or equation rises from the blur. 

we might call a friend whose voice we’ve not heard in too long. we might find a log in the woods, plop ourselves down, and keep watch––close watch. we might fill a bowl with the indulgences of autumn, the leaves and the seeds and the roots, all meant for seasonal sustenance. 

we might light a candle. sit in a shaft of sunlight, watching the dust motes ride the air. we might roll up our sleeves, or get down on our knees, and plant a few bulbs for the joy of it––for the allure and the promise and perpetual hope of the springtime to come.

more and more, one of the first prophets i turn to for wisdom is the incomparable maria popova, she of marginalian wonders. in a cataloging of eighteen wisdoms she’s extracted from her eighteen years of gathering wisdoms (she must have started her brain pickings––now re-named the marginalian––a mere two months before the first chair was pulled up, for we too are about to mark 18 years of chairing), she included this bit of wonder and wisdom that says it as beautifully as it might be said:

Choose joy. Choose it like a child chooses the shoe to put on the right foot, the crayon to paint a sky. Choose it at first consciously, effortfully, pressing against the weight of a world heavy with reasons for sorrow, restless with need for action. Feel the sorrow, take the action, but keep pressing the weight of joy against it all, until it becomes mindless, automated, like gravity pulling the stream down its course; until it becomes an inner law of nature. If Viktor Frankl can exclaim “yes to life, in spite of everything!” — and what an everything he lived through — then so can any one of us amid the rubble of our plans, so trifling by comparison. Joy is not a function of a life free of friction and frustration, but a function of focus — an inner elevation by the fulcrum of choice. So often, it is a matter of attending to what Hermann Hesse called, as the world was about to come unworlded by its first global war, “the little joys”; so often, those are the slender threads of which we weave the lifeline that saves us.

and she includes these lines from poet and former zen monk jane hirshfield’s “the weighing”:

So few grains of happiness
measured against all the dark
and still the scales balance.

and if all that isn’t enough joy stoking for the day, here’s one other wonder and wonder-soul i learned of this week at a book talk where to my delight and pure joy i was pointed toward good souls i fully intend to get to know more deeply and intimately. (i never cease to be amazed at the goodness lurking in utterly unexpected nooks and crannies of this world.)

here is a woman—one with a PhD in human anatomy and cell biology, no less—who happens to live in a house with a four-acre flower garden who coaxes beauty from the earth for the sole purpose of giving it all away, filling the flower fridges at hospices and homeless shelters, and the larders at food pantries near and far. she calls it the backyard flower lab. and it sounds like a holy slice of sustenance to me. i intend to point my old wagon in the direction of her flower farm before the sun sets on this day, and i will see where the adventure takes me. her name is april potterfield (which sounds to be a perfect plucked-from-the-storybook name for someone who grows beauty for joy), and you can find her on instagram at @thebackyardflowerlab.

what prompts you to find joy and seize the slender threads of which we weave our lifelines? and what are some of your favorite ways of doing so?

 the cobalt beauty perched on the windowsill above is an autumn vibrancy from my garden, the closing note of a summer’s-long love song. i call it monkshood, but it has other names: aconite, wolfsbane, leopard’s bane, devil’s helmet, or blue rocket. the name aconitum comes from the greek word ἀκόνιτον, which may derive from the greek akon for dart or javelin, the tips of which were poisoned with the substance, or from akonae, because of the rocky ground on which the plant was thought to grow.

deep thanks to maria popova who week after week for years now has filled me with wonder, with curiosities, and most of all with the breathtaking beauty of her intellect and imagination…

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September 20, 2024

the equinox of scan time: equal parts shadow and light

you start to wonder. which is another name for worry. for most of the last five months, i’ve worked at pushing it off to the edge of the frame. to keep it out of my focus. but october is coming. and with it, the next scan. the next clear-eyed peek into my insides, into my lungs, to see if anything’s lurking that oughtn’t be. 

i’ve mused about the saintly side of scan time. how it’s akin to memento mori, the ancient and holy practice of remembering our death so that we maximally live our one swift shot at this astonishing life. 

but the other side of scan time is the deeply human side. the wake-me-up-in-the-night, the try-not-to-worry-that-the-pain-in-my-ribs-is-anything-scary side. 

i feel it rumbling around the edges. the what-ifs i bat down as if a pesky mosquito that won’t leave me alone. i try not to tumble down the shadowy mole hole of imagining a call to my boys, letting them know i need another round of surgery. i try to quash the dialogue that runs through my head, my doctor’s voice telling me there’s something in the scan that looks worrisome, that needs more poking around. i try not to let cancer be the ice to my spine. 

i try not to cry.

but sometimes i get scared.

i am, always, bumpily, raggedly, very much human.

i’m still new to the tidal ebb and flow of scan time. and the scan now rising on the horizon’s edge is only my third since surgery, since they took out a chunk of my lung, since they found an uncommon cancer that sometimes decides to shuffle around in the lungs, settle in where it wasn’t before. what i’m finding here in the precinct of scan time is that when i near the one-month-to-go mark, the palpable fear comes. 

maybe each round i’ll get a little bit less wobbly (though, having lived with myself and my keen imagination for all of these years now, i tend to doubt that). maybe i won’t be tempted to imagine the worst. 

but the flip side, the smarter side, even now, even at the less-than-three-weeks-to-go mark, is that the hovering worry makes me sink deeper and deeper into the now. “today is a day when i don’t know anything’s wrong yet,” i sometimes hear myself saying. i suppose there are healthier ways to frame the day (for instance, omitting the “yet”), but once the doctor stamps the C word onto your chart, once it follows you pretty much wherever you go, it gets decidedly hard to unshackle yourself from being afraid.

remember, i’m bumpily, raggedly, very much human.

which is why a necessary ingredient on this bumpy, pock-riddled road is to enlist a battalion of comrades. some are fellow travelers i know up close and personal. a few are glorious souls i only know through their words, words they beam to me as if telepathic lifelines to put oomph where i’m lacking. 

whether they’re friends whose numbers i could find in my phone, or soulmates by circumstance, they’re all someones who know by heart how it is to live in the penumbra of cancer. what i find utterly indispensible about each and every one of them is that they put words to the rumblings i’d otherwise keep under lock and key. 

and when you hear the worst of your worries, the very words you’ve not yet dared to utter aloud, come out of a mouth that’s not yours, there comes an incomparable sigh, a sheer and certain relief to find you are hardly alone. and deep in communion, even if it’s a union to which you wish you didn’t belong.

one of my incomparable comrades is suleika jaouad, the best-selling author of between two kingdoms: a memoir of a life interrupted, the new york times writer of the “life interrupted” column, and every week in my inbox, the author of “the isolation journals,” her unfolding and intimate chronicle of her rare leukemia and relapse and bone marrow transplant. she’s one of the ones whose wisdom and courage i lean on. she infuses me. and, often, she steadies me. 

just the other day, after a weeks-long silence that signaled something amiss, suleika, who indeed has suffered yet another relapse and is back to chemotherapy, mused about radical acceptance.

she wrote:

That’s not to say I don’t feel fear—of course, I do. But strangely, the anticipation of pain can be far scarier than just being in it, actually confronting it. After my first transplant, in the years when I was cancer-free, I felt hijacked by the prospect of a recurrence and afraid that I wouldn’t be able to handle it. When it actually happened, I faced it. Knowing that, I have been trying to practice a kind of radical acceptance of whatever comes up, responding with whatever the situation calls for.

Take last weekend, for example. On Saturday, I had to go in for my last infusion of my second round of chemo. The side effects compound day-to-day, and afterward I felt awful, and I knew I’d be spending the day in bed. It had been a rainy morning, but on my way home, the sky began to clear, and I beheld a spectacular rainbow. For a moment, I glimpsed a sense of wonder. When I got to my room, I said to myself, “If I have to be in bed all day, so be it. What can I do to make this a little less miserable?” I took some anti-nausea meds and got a big glass of water. I put on my favorite face oil, wrapped myself a heating pad, gathered my pups around me, and queued up some favorite old movies to watch. Did I still feel awful? Yes. But instead of fighting it, or lamenting all of the things I wouldn’t be able to accomplish that day, I accepted it. And it turned out that staying in bed all day felt almost luxurious.

she speaks such truth. and then she somehow wraps it in what feels like a velvet blanket, somehow makes even a day in the sickbed sound a bit like a day at the spa. no wonder suleika is someone whose hand i would reach for on the darkest and scariest of days.

even though she wouldn’t know me if i bumped into her in the revolving door of sloan-kettering (a hospital entrance both of us have spun through) i wrote her right away to thank her for planting seeds of courage that some day might be my ballast. and i seized on her phrase, “radical acceptance,” to try to put it to practice. to not let my fears escape from the barnyard. to not be hijacked by fear, but to stare it square on, and to remind myself that time and again in my fair little life, i’ve steadied my knees and my spine in the fulcrum of whatever would have been my worst fear. i’ve always been braver than i’d ever imagined. i think we all are.

another one of my unparalleled big-hearted compatriot warriors who speaks to my deepest-down soul is the spoken-word poet and queer activist andrea gibson, diagnosed with ovarian cancer in 2021 and a recurrence last spring. i can’t count the times she’s sprung me to tears. tears of recognition. of stripped-naked truths. of beauty so rare and so fine i sometimes imagine she dwells with celestial beings. 

here’s a line from one of her poems that stiffened my spine and reminded me to steady my ways:

My worst fear come true. But stay with me y’all-
because my story is one about happiness
being easier to find once we finally realize
we do not have forever to find it. 

we do not have forever to find it…

i play their words over and over, as if a broken record, hoping and hoping that with each spin of needle to groove, i might finally inscribe their wisdom, their wonder, their truth, onto my heart. or at least find a strong steady hand to hold while i aim there….

what steadies you when you’re afraid?

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