cancer | pull up a chair

be not afraid is the instructive. it comes in a hymn we belt from our pews, and in one form or another it’s spelled out in sacred text in most every religion. i’ve belted the words to the hymn with voice cracking, and tears running down my cheeks. i’ve belted out those words as if in singing them loudly i could muscle up to the task.

to be not afraid, we’ve been told, is to be certain of faith. what then of us wafflers? the ones with wobbly knees?

i sometimes think i’m the poster child for fear. and the fear i’ve felt in this whole last year is a whole new subterranean trembling. it’s one that wakes you in the night. and one that sends you and your worries catapulting off into nevernever land. all it takes is a headache that won’t go away. or a pang in the side that’s not from cold ice cream.

sometimes i think it’s only fair that i find myself in the company of fear so very often these days. it’s an unerasable fact of my life that not quite a year ago i awoke from a surgery and heard the doctor say, “i was so surprised, it was cancer.” and then, as if needing proof there on my gurney, i reached down to where the holes were, five of them––front, back, and side––the slits from which they pulled out a good chunk of my lung.

surprises like that are a bit hard to shake.

so now, for two long weeks, a curious constellation of queasies has been pinned to me like a shadow, and i am pretty much wide-eyed afraid. last night my doctor sent me for blood tests. a whole slew of them. i almost thought they’d grab a jug off the shelf and start to fill it.

for someone who doesn’t like talking about my medical woes, i am wading in a bit too deep here. but i am someone who takes to heart the knowledge that i’m not the only scaredy cat in the litter. and sometimes i think it’s the right thing to do to put voice to the truth that there are times when we aren’t so brave. there are times when we wish we could hide under the covers, or under the bed, and wait for the bogeyman’s footsteps to turn and go away.

does it mean i’m faithless because i’m afraid? i don’t think so. i think it means i’ve been keeping watch long enough to know that stories don’t always end with happy endings. and God can love you to pieces, but not write the story quite the way you’d plot it out. i mean, i’ve been to funerals of souls so breathtakingly good, you sit there gasping at the hole now left in their absence. at how the world without those particular angels living, breathing, and wafting among us is a far sorrier place. at how you can’t quite fathom a world without their showing us day after day just how magnificent the human species can be.

turns out the words to the song, “be not afraid,” were written by a jesuit priest-in-training who was deeply afraid when he wrote it. he was quaking with fear. the fear of not knowing what lay ahead. would he be any good at this priestly existence? where in the world would it lead him? was he hours away from the biggest mistake of his lifetime? well, father dufford was his name, and, on the cusp of his ordination, he was sent off to pray all by his lonesome. and that’s when he opened the nearest book to his elbow, which happened to be a Bible. flipping through chapter and verse, he turned to the story of the Annunciation, when the angel gabriel is said to have come to the Blessed Virgin Mary––an unmarried teen, you recall––to tell her she was “with child,” and gabriel said to her “do not be afraid.”

father dufford had his first line.

a few weeks later, as father D tells the tale, a friend of his told him she was being sent to ghana to do missionary work. and that made him really want to finish his hymn before she left. but hymn writing is not always easy. and despite his determination, he could only come up with a second line: “i go before you always.”

it would be a whole year before he got to the last line: “and i will give you rest.”

it’s a hymn that since 1975 has poured into the brokenness that defines so much of history, both the intimate personal history we know to be our very own, and the collective history of us as a people who’ve been crushed and shattered and brittled by so, so much.

it’s a hymn sister helen prejean, the great saint of death rows upon rows, often sings to those inmates she walks to death’s door––the last words they hear before their last breath. it’s the hymn bill clinton chose for his first inauguration at the morning prayer service. father dufford says that he’s gotten notes from people who lull themselves to sleep humming it on those nights when sleep won’t otherwise come.

when father dufford’s own father died some years later, he added one last verse:

And when the earth has turned beneath you and your voice is seldom heard,
When the flood of gifts that blessed your life has long since ebbed away,
When your mind is thick and hope is thin and dark is all around,
I will stand beside you till the dawn.

maybe i should remember all the words.

and on the subject of fear and holding hands in the face of fear, here is this excerpt from naomi shihab nye’s “EVERY DAY AS A WIDE FIELD, EVERY PAGE,” a poem in which she puts word to the one sure thing i know that takes away my fears: when i picture ones i love huddled right beside me, squeezing my hand; when i remember that all of us together can keep our knees from buckling. isn’t that why we’re here? given that the world these days has plenty to knock us off our rockers, it’s a blessed thing to picture wide-eyed tender-hearted folk all around the globe, looking up into the night, holding hands in a virtual steadying circle. here’s naomi’s take on that, a thought that came to her watching fireflies blink in the dark of night….

We didn’t have to be in the same room —
the great modern magic.
Everywhere together now.
Even scared together now
from all points of the globe
which lessened it somehow.
Hopeful together too, exchanging
winks in the dark, the little lights blinking.
When your hope shrinks
you might feel the hope of
someone far away lifting you up.
Hope is the thing …

when i am afraid, i look to the stories and the strength of ordinary folk whose hurdles are daunting, and yet who lope forward with grace. i seize on the kindness of strangers, the lady at the immediate care check-in desk, the schedulers on the hospital phone, the sweet woman who tied on the tourniquet and borrowed those many tubes of blood. in the past year, i’ve bumbled into a troupe of brave souls whose fearlessness takes my breath away. some of their roads are far bumpier than mine, and yet they press on, shedding their light on all who are blessed enough to take a few steps beside them. maybe the gift of being afraid is that it makes you reach beyond your own trembling walls. it makes you take a deep breath and step into the darkness. and in time, you find your bearings, and you look down and realize you’re stronger and braver than you ever imagined.

where do you turn when you are afraid?

p.s. in poking around just now, looking for a photo that wasn’t hokey, i stumbled on this bit of intrigue: apparently the words, “do not be afraid,” appear in the bible 365 times. (i love the folks who count these things…) so, apparently, that’s a reminder a day. except for in leap year. which is this year. which is six days from now. so we’ll have to remind ourselves: do not be afraid.

34 Comments

August 4, 2023

early morning

Forest in the Morning Light, 1855 (Oil on Canvas), by Asher Brown Durand

early morning is when the veil is thinnest, my soul most porous. i sometimes imagine the air i breathe then, the soft air, the air a recipe of oxygen and dew, is dispatched directly from the heavens. it’s why i slide out from under the bedsheet, to begin the percolating thoughts that rise while the coffee brews. i step outside, and there, as always, is my old friend ancient moon. all but winks at me, that moon, lets me know i’m not alone. there’s watchkeeping at work. from up where angels roam.

my thoughts feel less alone then. in bed they sometimes wrestle me, won’t let me sleep. but once i’m upright, once there’s mug in hand, and moon above, they settle down, fall in some semblance of a line. i find sense then. i feel infused then. infused in a Godly way. as if my gliding out of bed when the clock strikes five gives me just a wee little jump on what God might want me to consider. as if that might be the hour when the clarity comes.

this morning was one of those mornings, after a long, long week that took every ounce of courage my little self contained. i flew hundreds of miles away to talk to a doctor who knows a thing or two about the cancer in my lung. i walked into a shiny tower with expanse of glass, where as much light could shine in as the heavens had to spare. the place is infused with light, as if to tip the balance of all the darkness you can feel in every hallway, in every bent over human body, bodies leaning on canes, on walkers, in wheelchairs, on whomever walks beside them. where every body seemed to have an extra limb in the form of plastic tubes and tiny pumps, all attached, sometimes trailing, peeking out from under pant legs or flapping-open gowns, or tethered to misbehaving poles. all chasing out the demon cells that know not when to stop.

to sit in those waiting rooms is to witness human compassion at its most majestic. hands rubbing shoulders, rubbing backs. hands trying to knead the ache out of someone else’s flesh and bone. foreheads pressed against foreheads. words whispered. holy words. the most emphatic prayers i might ever have witnessed from across a room.

the prayers prayed there are the ones that gush up from untapped places in the soul. those places not known till life excavates to its deepest depths. till prognoses are spelled out, and sentences put forth — and i don’t mean the sentences with verb and nouns.

my visit was not so dire, but it was a visit that’s left me plenty to sift through, as i work hard — so hard — at absorbing all that’s been, and deciding how to seize my holy, holy days.

so i’m up early. where me and God are most likely to bump into each other. where sometimes when i plant my bum on the stoop just beyond the kitchen door, i almost feel another shoulder rubbing up against mine.

little gems just kept floating my way this week, in that way that sometimes blessings know to come. r.s. thomas, an anglican priest poet who kept watch on the rocky edge of wales, is one of my most favorite holy poets. i discovered him when i went to poetry school at yale divinity school a few blessed summers back. reading him always carries me back to the sunlit seminar room where i first met him.

THE BRIGHT FIELD

I have seen the sun break through
to illuminate a small field
for a while, and gone my way
and forgotten it. But that was the
pearl of great price, the one field that had
treasure in it. I realise now
that I must give all that I have
to possess it. Life is not hurrying

on to a receding future, nor hankering after
an imagined past. It is the turning
aside like Moses to the miracle
of the lit bush, to a brightness
that seemed as transitory as your youth
once, but is the eternity that awaits you.
— R. S. Thomas

this one came from a gentle tender soul who breathes poetry. i thought as i started to read it, that she had written it, but then i glanced down and saw “david whyte,” another in my pantheon of saintly poets, the ones who capture threads of my very own heart and weave them into stanzas…

AT HOME

At home amidst
the bees
wandering
the garden
in the summer
light
the sky
a broad roof
for the house
of contentment
where I wish
to
live forever
in the eternity
of my own
fleeting
and momentary
happiness.

I walk toward
the kitchen
door as if walking
toward the
door of a recognized
heaven

and see the
simplicity
of shelves and
the blue dishes
and the
vapouring
steam rising
from the kettle
that called me in.

Not just this
aromatic cup
from which to drink
but the flavour
of a life made whole
and lovely
through the
imagination
seeking its way.

Not just this
house around me
but the arms
of a fierce
but healing world.

Not just this line
I write
but the
innocence
of an earned
forgiveness
flowing again
through hands
made new with
writing.

And a man
with no company
but his house,
his garden,
and his own
well peopled solitude,

entering
the silences
and chambers
of the heart
to start again.

-from The House of Belonging
David Whyte

this one, from pablo neruda, needs no introduction. simply behold it.

Night,
night of mine,
night of the entire world,
you have something inside you, round
like a child
about to be born, like
a bursting
seed,
it is the miracle,
it is the day.
You are more beautiful
because with your darker blood
you feed the poppy being born,
because you work with eyes closed
so eyes can open,
so water can sing,
so our lives
might resuscitate.

—Ode to Night by Pablo Neruda (translated by Ilan Stavans)

and here, if you’ve read all the way down to here, is one last succulence. again, sent by a friend, a blessed friend, of this old chair.

Life is amazing. And then it’s awful. And then it’s amazing again. And in between the amazing and awful it’s ordinary and mundane and routine. Breathe in the amazing, hold on through the awful, and relax and exhale during the ordinary. That’s just living heartbreaking, soul-healing, amazing, awful, ordinary life. And it’s breathtakingly beautiful.
L.R. Knost

what time of day is thinnest for you? and did any gems flutter from the heavens for you this week?

i swear there must be more babies born in august than any other month (it’s not the case; i’ve checked) and some of my favorites are in the parade: my beloved brother david (today); my beloved blair (sunday, in which he will find himself among those competing in the triathlon world’s big national swim, bike, run along milwaukee’s lakefront); and my teddy (who is camping under the stars out in the rocky mountains for the next two weeks, and whose big day is tuesday). happy birthday to each of you whom i love with every chamber of my heart and then some! xoxoxox

17 Comments

April 28, 2023

some words are hard to say. . .

i don’t think i will ever forget the first time i heard the word cancer spoken in a sentence in which i was the unspoken subject. i was groggy from anesthesia, but there was my surgeon, leaning against the curtain in the recovery room. he was dressed in street clothes, his backpack slung over his shoulder, headed home to dinner, i imagined, with his little brood up here in the leafy suburbs, where we happen to both share the same zip code. i heard him say “it was cancer,” and i heard him say he was so surprised. i don’t think i heard much after that. and for all the days since i’ve been trying on that word.

it’s a word that’s hard to say. it’s a word that’s hard to slip your lips around. especially when it belongs to you. and when the cancer in question is the one that was settled quite inconspicuously in your very own lung. i’ve thought a lot about the eight years since they first saw it there. no one thought it was cancer. they thought maybe it was a scar, from a pneumonia i’d once had. or an old broken rib. nothing to worry about. all those years. all those christmases and birthday candles blown. all those graduations and droppings off at college, and at law school. all those late late nights when a million worries kept me up, but never that one. never ever a worry that i had cancer in my lungs.

until december, when someone once again saw it by accident and decided we should not ignore it anymore. i owe that someone every year of the rest of my life. and while the next weeks of january into march were a wild, wild ride, it took till april 18 to finally figure out what it was, to finally figure out that the suspicious “neoplastic process” was in fact just that: neoplastic is another word for cancer.

and it’s gone now. they cut it out. all of it, we hope. my surgeon called the other day and in the cheeriest voice i might ever have heard, he said “congratulations;” said “it’s as good a report as we could hope for, knowing it was cancer.”

i am writing the word here, because words are how i make sense of life. i have always found my way with words. words on paper most of all. words on paper even more than words in air. words on paper are the tracings across the topography of my life. i find my way stringing one word to another, groping along from one to another till the sentence ends. and right now i am in a thicket that makes very little sense. for a few days there, i could not for the life of me tell which way was north, and which was south. i was all turned around, and upside down. i wept and wept some more.

but slowly, slowly, i am feeling my way. and i am feeling very brave. braver than i ever would have guessed. i would have guessed i’d crumble. but maybe all my crumbling is only in my imaginings. maybe, over the years, when i’ve played out my potpourri of disaster scenarios, i’ve been getting the crumbling out of the way, so that when the real thing came along i was practiced, i was ready to step boldly, bravely, even valiantly up to the plate.

part of being brave is learning to say those two words, strung together: lung + cancer. lung cancer. i am now part of an unwelcome sisterhood; i’m among the ones to whom those words now belong, and whose lives are shaped and re-shaped thereafter and ever after. and i am linking arms emphatically with the ones who know these hauntings and these hollows. i am, so help me God, intending with every ounce of will and fierce determination to be among the ones who say aloud that we’ve had lung cancer and we are here to prove you can live beyond it. you can live with it shrinking––day by day, month by month––into the distant distance.

i am still going to dance at my firstborn’s wedding, and my secondborn’s too (or whatever is the life event for which cakes will be ordered and flowers strung). i am going to sashay through my garden, the wise old woman who communes with birds and bumblebees and baby ferns. i will some day tell stories that include the chapter of the time they made the words lung and cancer a part of my vernacular. how never in a million years did i think those words would find their way into my narrative. but here they are. and who knows where they’ll take me, though i’ve a hunch it will be a heady, heady heart-swelling somewhere. i’m not one to leave life’s sheddings by the wayside, unstudied, unplumbed for all their wisdoms and epiphanies.

these might be the two hardest words i’ve ever said. but i am going to say them till they shrink in size, in wallop. i am going to say them till they’re stripped of high-voltage burn capacity.

we all have words that are hard to say, words we don’t think will ever be ours. words we don’t want to be ours: widow, widower, survivor, victim, divorcee, depressed, anxious, anorexic (the word that used to be my hardest one to say), amputee, diabetic, dyslexic, broken-hearted. maybe the point is to take on those words, slip our arms through their sleeves, make them a part of who we are, but not the whole of who we are. to be not afraid, nor defined solely by their simple syllables. but to allow them to deepen who we are, to add contour and dimension, to layer on the empathies. to shape our particular view of how we see the world. and where we find our place within it.

i don’t intend to turn this into a place where we contemplate cancer. not at all. but right now, it’s the woodsy thicket in which i am trying to find my way. if i—someone who never smoked a single cigarette, someone who never lived with anyone who smoked—can bring the words out into the open then maybe, just maybe, it won’t be such a surprise to the next someone who finds herself stymied by a spot on her lung that cannot be explained. i will be the first one to wave my hand in the air, and say, please don’t wait. don’t hesitate. bite the bullet and let them have at it. find out if it’s cancer or not. don’t dawdle. cuz dawdling does not buy time.

only courage buys time. stare it down, this cancer. let it know who’s in charge. let it know that you’ve no intention of letting it steal a day of your most precious life.

i have always known that life is fragile precious. i’ve known that since long before the day my papa died, and i somehow kept on breathing after he was gone. i’ve known it over and over and over again. i’ve known it on the day i got married, when walking down the aisle was something i never really knew i’d know. i’ve known it when i birthed each of my two boys, one whose birth almost felt as if it was about to slip away, but i was determined, and i was not going to lose the answer to the million prayers i’d prayed. i knew it, too, the night i miscarried my baby baby girl, a night as real to me as the ones that ended with babies cradled in my arms.

i’ve lived so many days i’d never thought i’d see.

and i am going to live even more. and i am going to say aloud that i once had cancer in my lung, but they cut it out, and now it’s gone. and i am going to tell the story of what it’s like to live emphatically after the doctor in the recovery room tells you he was so surprised. so so surprised to find out that it was, in fact, cancer idling in my lung.

cancer i hope and pray is gone. completely, totally, forever gone.

the two little bits i found this week seem fitting for a day of telling hard truths. first, musician Nick Cave’s advice to a 13-year-old:

“Read. Read as much as possible. Read the big stuff, the challenging stuff, the confronting stuff, and read the fun stuff too. Visit galleries and look at paintings, watch movies, listen to music, go to concerts — be a little vampire running around the place sucking up all the art and ideas you can. Fill yourself with the beautiful stuff of the world. Have fun. Get amazed. Get astonished. Get awed on a regular basis, so that getting awed is habitual and becomes a state of being. Fully understand your enormous value in the scheme of things because the planet needs people like you, smart young creatives full of awe, who can minister to the world with positive, mischievous energy, young people who seek spiritual enrichment and who see hatred and disconnection as the corrosive forces they are. These are manifest indicators of a human being with immense potential.

“Absorb into yourself the world’s full richness and goodness and fun and genius, so that when someone tells you it’s not worth fighting for, you will stick up for it, protect it, run to its defence, because it is your world they’re talking about, then watch that world continue to pour itself into you in gratitude. A little smart vampire full of raging love, amazed by the world.”

and next up, annie dillard on why we read and write at all….

“Why are we reading, if not in hope of beauty laid bare, life heightened and its deepest mystery probed? Can the writer isolate and vivify all in experience that most deeply engages our intellects and our hearts? Can the writer renew our hope for literary forms? Why are we reading if not in hope that the writer will magnify and dramatize our days, will illuminate and inspire us with wisdom, courage, and the possibility of meaningfulness, and will press upon our minds the deepest mysteries, so that we may feel again their majesty and power? What do we ever know that is higher than that power which, from time to time, seizes our lives, and reveals us startlingly to ourselves as creatures set down here bewildered?”

– Annie Dillard

and, this, maybe more than anything. . .

a friend who will be a lifeline sent me this late last night, and i breathed it in through my tears. we can do hard things. humans have done hard things since the beginning of time.

a little note: i am not going to share any medical details here, only the rumblings of my heart. please know that i have a team of angels on my side, medically.

what hard things have you done? and what lightened the load?

29 Comments

pull up a chair

Category: cancer

February 23, 2024

poster child for fear

August 4, 2023

early morning

April 28, 2023

some words are hard to say. . .